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‘You’re a human being and not a robot that goes out to work’ : A qualitative study exploring factors impacting on wellbeing and intention to leave among lone working healthcare assistants providing palliative and end-of-life care in the community

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Abstract

Background:
Healthcare assistants (paid nursing support workers without professional qualifications) provide care for terminally ill patients but remain understudied in palliative care research. Working alone in patients’ homes presents a distinct set of intersecting challenges: decision-making in distressing situations, professional isolation and limited access to training and support. Despite growing recognition of the importance of staff wellbeing for care quality and workforce retention, little is known about factors affecting wellbeing and intention to leave among this workforce.
Aim:
To explore factors affecting wellbeing and intention to leave among lone working healthcare assistants providing palliative and end-of-life care in the community.
Design:
Qualitative study combining free-text survey responses and semi-structured interviews, analysed using reflexive thematic analysis.
Setting/participants:
Healthcare assistants from a charitable hospice organisation in the United Kingdom.
Results:
One-hundred and eighty-three participants completed free-text survey questions; 14 participated in interviews. A number of societal, organisational and individual factors impacting on wellbeing and intention to leave were generated. Healthcare assistants experience high job satisfaction from meaningful work alongside systematic undervaluation. Many factors that influence wellbeing and intention to leave fall within organisational control, particularly support systems, workplace culture, recognition, and training opportunities.
Conclusions:
Organisations have clear opportunities to improve healthcare assistants’ wellbeing and retention through targeted interventions addressing support, recognition, and professional development needs.
Original languageEnglish
Pages (from-to)833-844
Number of pages12
JournalPalliative Medicine
Volume40
Issue number6
Early online date18 Mar 2026
DOIs
Publication statusPublished (in print/issue) - 30 Jun 2026

Bibliographical note

© The Author(s) 2026.

Data Availability Statement

Data relating to this research project can be obtained by contacting the lead author at [email protected].

Funding

The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by Marie Curie Small Research Grant (MCSGS-22-8001). KP’s time on this study was funded by Marie Curie.

FundersFunder number
Marie CurieMCSGS-22-8001

    UN SDGs

    This output contributes to the following UN Sustainable Development Goals (SDGs)

    1. SDG 3 - Good Health and Well-being
      SDG 3 Good Health and Well-being

    Keywords

    • palliative care
    • nursing assistants
    • health services research
    • personnel turnover
    • occupational stress
    • Palliative Care/psychology
    • Humans
    • Middle Aged
    • Terminal Care/psychology
    • Personnel Turnover/statistics & numerical data
    • Working Conditions
    • Male
    • United Kingdom
    • Allied Health Personnel/psychology
    • Job Satisfaction
    • Psychological Well-Being
    • Female
    • Adult
    • Intention
    • Qualitative Research

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