Understanding pregnancy loss in Taiwan

Hui-Lin Sun, Marlene Sinclair, George Kernohan, Hilary Patterson, Te-Hsin Chang

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Introduction: The experience of pregnancy following a previous pregnancy loss can be diffi cult and psychologicallychallenging. Over 34,000 women experience pregnancy loss in Taiwan every year. Objectives: Thispaper reports an action research project that mapped the journey of Taiwanese women who have sufferedprevious pregnancy loss.Methods: The methodology was participative and cyclical. Ethical approval was obtained from University ofUlster and the medical center in Taiwan. Women were invited to participant in the study and bereavement supportwas available for all participants. Initially, interviews were used with six Asian women living in Taiwan toelicit their perspectives on their journey. The second phase was the translation of the SANDS information packfrom English to Mandarin. The third phase was interviewed the reference mothers and health providers evaluatedthe value and acceptability of information pack. Results: The data of the first stage from six women wasanalyzed. A metaphor of “sailing against the tide” emerged from the data to depict three stages of the journeyfrom grief to joy. The second phase involved translation and adaptation of the SANDS pack into mandarin withthe support and advice of the expert reference groups including women, midwives, nurses, a social worker,and doctors. The analysis indicated an overall acceptance of the support pack with cultural modified required.There included removal of information about autopsy, clear indication that the majority of cases of the causeddeath is unknown, providing footprints of deceased baby as mementoes and more funeral information.Conclusion: The fi ndings have been used to draft a theoretical cameo of the journey and providechallenging insight into the needs of mothers. The information pack will be revised based on theculture difference and will support other women in similar circumstances. Perinatal bereavementcare with cultural sensitivity has potential in an Asian context.Acknowledgements: Thank the mothers and health providers whose commitment and generosityin sharing their stories and opinions made the research possible.
LanguageEnglish
Title of host publicationUnknown Host Publication
Pages94-94
Number of pages1
Publication statusPublished - 5 Nov 2008
Event2008 international stillbirth conference/ De 21. norsk perinatalmedisinsk forening - Oslo, Norway
Duration: 5 Nov 2008 → …
http://www.stillbirthalliance.org/conference/2008/

Conference

Conference2008 international stillbirth conference/ De 21. norsk perinatalmedisinsk forening
Period5/11/08 → …
Internet address

Fingerprint

Taiwan
Pregnancy
Mothers
Nurse Midwives
Bereavement
Metaphor
Grief
Health Services Research
Health
Autopsy
Interviews
Research

Cite this

Sun, H-L., Sinclair, M., Kernohan, G., Patterson, H., & Chang, T-H. (2008). Understanding pregnancy loss in Taiwan. In Unknown Host Publication (pp. 94-94)
Sun, Hui-Lin ; Sinclair, Marlene ; Kernohan, George ; Patterson, Hilary ; Chang, Te-Hsin. / Understanding pregnancy loss in Taiwan. Unknown Host Publication. 2008. pp. 94-94
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Sun, H-L, Sinclair, M, Kernohan, G, Patterson, H & Chang, T-H 2008, Understanding pregnancy loss in Taiwan. in Unknown Host Publication. pp. 94-94, 2008 international stillbirth conference/ De 21. norsk perinatalmedisinsk forening, 5/11/08.

Understanding pregnancy loss in Taiwan. / Sun, Hui-Lin; Sinclair, Marlene; Kernohan, George; Patterson, Hilary; Chang, Te-Hsin.

Unknown Host Publication. 2008. p. 94-94.

Research output: Chapter in Book/Report/Conference proceedingConference contribution

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N2 - Introduction: The experience of pregnancy following a previous pregnancy loss can be diffi cult and psychologicallychallenging. Over 34,000 women experience pregnancy loss in Taiwan every year. Objectives: Thispaper reports an action research project that mapped the journey of Taiwanese women who have sufferedprevious pregnancy loss.Methods: The methodology was participative and cyclical. Ethical approval was obtained from University ofUlster and the medical center in Taiwan. Women were invited to participant in the study and bereavement supportwas available for all participants. Initially, interviews were used with six Asian women living in Taiwan toelicit their perspectives on their journey. The second phase was the translation of the SANDS information packfrom English to Mandarin. The third phase was interviewed the reference mothers and health providers evaluatedthe value and acceptability of information pack. Results: The data of the first stage from six women wasanalyzed. A metaphor of “sailing against the tide” emerged from the data to depict three stages of the journeyfrom grief to joy. The second phase involved translation and adaptation of the SANDS pack into mandarin withthe support and advice of the expert reference groups including women, midwives, nurses, a social worker,and doctors. The analysis indicated an overall acceptance of the support pack with cultural modified required.There included removal of information about autopsy, clear indication that the majority of cases of the causeddeath is unknown, providing footprints of deceased baby as mementoes and more funeral information.Conclusion: The fi ndings have been used to draft a theoretical cameo of the journey and providechallenging insight into the needs of mothers. The information pack will be revised based on theculture difference and will support other women in similar circumstances. Perinatal bereavementcare with cultural sensitivity has potential in an Asian context.Acknowledgements: Thank the mothers and health providers whose commitment and generosityin sharing their stories and opinions made the research possible.

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Sun H-L, Sinclair M, Kernohan G, Patterson H, Chang T-H. Understanding pregnancy loss in Taiwan. In Unknown Host Publication. 2008. p. 94-94