Supporting women with intellectual disabilities to access breast cancer screening: a health care professional perspective

Sonja McIlfatrick, Laurence Taggart, Maria Truesdale-Kennedy

Research output: Contribution to journalArticle

25 Citations (Scopus)

Abstract

Cancer prevention has been identified as the most cost effective strategy for cancer control. This should extend to all groups including women with intellectual disability (ID), seeking to access breast cancer screening. The purpose of this study was to explore the role of health care professionals, such as primary health care staff (n=8) and breast care staff (n=10), on supporting women with ID to access breast screening in one region in the UK. A qualitative approach using focus groups and telephone interviews was adopted. Health care professionals identified that not only was it important that women with ID undergo regular breast screening but that they should have the same rights as other women to access breast screening services. Whilst many varied risk factors for breast cancer in women with ID were noted the level of cognitive functioning was clearly significant. Barriers to accessing breast screening included literacy problems, consent issues and physical health; practical barriers such as transport and timing of appointment; and barriers attributed to health careprofessionals, including staff attitude and lack of awareness and training. The participants identified the need to raise awareness and health promotion education not only for the women with ID but also for health care professionals, alongside developing more interdisciplinary practice.
LanguageEnglish
Pages412-420
JournalEuropean Journal of Cancer Care
Volume20
DOIs
Publication statusPublished - 2011

Fingerprint

Early Detection of Cancer
Intellectual Disability
Breast Neoplasms
Breast
Delivery of Health Care
Interviews
Attitude of Health Personnel
Health
Health Promotion
Focus Groups
Health Education
Neoplasms
Primary Health Care
Appointments and Schedules
Costs and Cost Analysis

Cite this

@article{b6c8764d551b4f029c4c2fc52df11d42,
title = "Supporting women with intellectual disabilities to access breast cancer screening: a health care professional perspective",
abstract = "Cancer prevention has been identified as the most cost effective strategy for cancer control. This should extend to all groups including women with intellectual disability (ID), seeking to access breast cancer screening. The purpose of this study was to explore the role of health care professionals, such as primary health care staff (n=8) and breast care staff (n=10), on supporting women with ID to access breast screening in one region in the UK. A qualitative approach using focus groups and telephone interviews was adopted. Health care professionals identified that not only was it important that women with ID undergo regular breast screening but that they should have the same rights as other women to access breast screening services. Whilst many varied risk factors for breast cancer in women with ID were noted the level of cognitive functioning was clearly significant. Barriers to accessing breast screening included literacy problems, consent issues and physical health; practical barriers such as transport and timing of appointment; and barriers attributed to health careprofessionals, including staff attitude and lack of awareness and training. The participants identified the need to raise awareness and health promotion education not only for the women with ID but also for health care professionals, alongside developing more interdisciplinary practice.",
author = "Sonja McIlfatrick and Laurence Taggart and Maria Truesdale-Kennedy",
year = "2011",
doi = "10.1111/j.1365-2354.2010.01221.x",
language = "English",
volume = "20",
pages = "412--420",
journal = "European Journal of Cancer Care",
issn = "0961-5423",

}

TY - JOUR

T1 - Supporting women with intellectual disabilities to access breast cancer screening: a health care professional perspective

AU - McIlfatrick, Sonja

AU - Taggart, Laurence

AU - Truesdale-Kennedy, Maria

PY - 2011

Y1 - 2011

N2 - Cancer prevention has been identified as the most cost effective strategy for cancer control. This should extend to all groups including women with intellectual disability (ID), seeking to access breast cancer screening. The purpose of this study was to explore the role of health care professionals, such as primary health care staff (n=8) and breast care staff (n=10), on supporting women with ID to access breast screening in one region in the UK. A qualitative approach using focus groups and telephone interviews was adopted. Health care professionals identified that not only was it important that women with ID undergo regular breast screening but that they should have the same rights as other women to access breast screening services. Whilst many varied risk factors for breast cancer in women with ID were noted the level of cognitive functioning was clearly significant. Barriers to accessing breast screening included literacy problems, consent issues and physical health; practical barriers such as transport and timing of appointment; and barriers attributed to health careprofessionals, including staff attitude and lack of awareness and training. The participants identified the need to raise awareness and health promotion education not only for the women with ID but also for health care professionals, alongside developing more interdisciplinary practice.

AB - Cancer prevention has been identified as the most cost effective strategy for cancer control. This should extend to all groups including women with intellectual disability (ID), seeking to access breast cancer screening. The purpose of this study was to explore the role of health care professionals, such as primary health care staff (n=8) and breast care staff (n=10), on supporting women with ID to access breast screening in one region in the UK. A qualitative approach using focus groups and telephone interviews was adopted. Health care professionals identified that not only was it important that women with ID undergo regular breast screening but that they should have the same rights as other women to access breast screening services. Whilst many varied risk factors for breast cancer in women with ID were noted the level of cognitive functioning was clearly significant. Barriers to accessing breast screening included literacy problems, consent issues and physical health; practical barriers such as transport and timing of appointment; and barriers attributed to health careprofessionals, including staff attitude and lack of awareness and training. The participants identified the need to raise awareness and health promotion education not only for the women with ID but also for health care professionals, alongside developing more interdisciplinary practice.

U2 - 10.1111/j.1365-2354.2010.01221.x

DO - 10.1111/j.1365-2354.2010.01221.x

M3 - Article

VL - 20

SP - 412

EP - 420

JO - European Journal of Cancer Care

T2 - European Journal of Cancer Care

JF - European Journal of Cancer Care

SN - 0961-5423

ER -