Service user engagement- a co-created interview schedule exploring mental health recovery in young adults.

Claire McCauley, HP McKenna, Sinead Keeney, Derek F McLaughlin

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Abstract AimTo co-create of an interview schedule exploring mental health recovery in collaboration with young adult service users.BackgroundService user involvement in research has been increasingly recognised as providing a vital authentic insight into mental health recovery. Engagement and collaboration with service users have facilitated the exploration of inaccessible or under-investigated aspects of the lived experience of mental health recovery, not only directing the trajectory of research, but making it relevant to their own contextual experience. DesignA qualitative content analysis framework was employed in the co-creation of a semi-structured interview schedule through an engagement process with service users.MethodsTwo separate engagement groups took place at the premises of the service user organisations, between January and February 2014. Miles and Huberman’s analysis framework was chosen for this phase as it enabled the visual presentation of factors, concepts or variables and the established relationship between them.ResultsThe lived experience of mental ill health in young adulthood and how this was understood by others was a particularly relevant theme for participants. Further themes were identified between the impact of painful experiences at this developmental life stage leading to a deeper understanding of others through finding meaning in their own mental health recovery journey.ConclusionOur findings identified that suffering painful experiences is an integral aspect in the process of mental health recovery. This understanding has particular relevance to mental health nursing practice, ensuring the care delivered is cognisant of the suffering or painful experiences that young adults are encountering.KeywordsCollaborative, group interactions, mental health and illness, nursing, recovery, suffering, young adults.
LanguageEnglish
Pages2361-2372
JournalJournal of Advanced Nursing
Volume73
Early online date5 Apr 2017
DOIs
Publication statusE-pub ahead of print - 5 Apr 2017

Fingerprint

Young Adult
Appointments and Schedules
Mental Health
Interviews
Psychiatric Nursing
Psychological Stress
Research

Keywords

  • Keywords
  • Collaborative
  • group interactions
  • mental health and illness
  • nursing
  • recovery
  • suffering
  • young adults.

Cite this

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title = "Service user engagement- a co-created interview schedule exploring mental health recovery in young adults.",
abstract = "Abstract AimTo co-create of an interview schedule exploring mental health recovery in collaboration with young adult service users.BackgroundService user involvement in research has been increasingly recognised as providing a vital authentic insight into mental health recovery. Engagement and collaboration with service users have facilitated the exploration of inaccessible or under-investigated aspects of the lived experience of mental health recovery, not only directing the trajectory of research, but making it relevant to their own contextual experience. DesignA qualitative content analysis framework was employed in the co-creation of a semi-structured interview schedule through an engagement process with service users.MethodsTwo separate engagement groups took place at the premises of the service user organisations, between January and February 2014. Miles and Huberman’s analysis framework was chosen for this phase as it enabled the visual presentation of factors, concepts or variables and the established relationship between them.ResultsThe lived experience of mental ill health in young adulthood and how this was understood by others was a particularly relevant theme for participants. Further themes were identified between the impact of painful experiences at this developmental life stage leading to a deeper understanding of others through finding meaning in their own mental health recovery journey.ConclusionOur findings identified that suffering painful experiences is an integral aspect in the process of mental health recovery. This understanding has particular relevance to mental health nursing practice, ensuring the care delivered is cognisant of the suffering or painful experiences that young adults are encountering.KeywordsCollaborative, group interactions, mental health and illness, nursing, recovery, suffering, young adults.",
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author = "Claire McCauley and HP McKenna and Sinead Keeney and McLaughlin, {Derek F}",
note = "Reference text: References Adame, A.L., Knudson, R.M. (2007). Beyond the counter-narrative: Exploring alternative narratives of recovery from the psychiatric survivor movement. Narrative Inquiry, 17 (2), 157-178. Aston, V., Coffey, M. (2012). Recovery: what mental health nurses and service users say about the concept of recovery. Journal of Psychiatric and Mental Health Nursing, 19, 257-263. Beresford, P., Nettle, M., Perring, R. (2010). Exploring a social model of madness and distress? Exploring what service users say. Joseph Rowntree Foundation. London. Available at: http://www.jrf.org.uk/sites/files/jrf/mental-health-service-models-full.pdf [Accessed on 3rd December 2013]. Carey, M.A. (1995). Comment: Concerns in the analysis of focus group data. Qualitative Health Research, 24(4), 487-495. Carlsen, B., Glenton, C. (2011). What about N? A methodological study of sample-size reporting in focus group studies. BMC Medical Research Methodology, 11:26. Creswell, J.W. 2013. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. 3rd ed. London: Sage. Davidson, L. (2003). Living Outside Mental Illness: Qualitative Studies of Recovery in Schizophrenia. New York: New York University Press. Davidson, L., Roe, D. (2007). Recovery from versus recovery in serious mental illness: One strategy for lessening confusion plaguing recovery. Journal of Mental Health, 16(4), 459-470 Deegan, P.E. (1988). Recovery: The lived experience of rehabilitation. Psychosocial Rehabilitation Journal, 11(4), 11-19. Denzin, N.K and Lincoln, Y.S. (2013). Strategies of Introduction. In: Denzin, N.K and Lincoln, Y.S., ed. Strategies of Qualitative Inquiry. California: Sage. 1-35. Department of Health, Social Services and Public Safety. (2015). Northern Ireland Health and Social Care Inequalities Monitoring System (HSCIMS)-Fourth Update Bulletin. [online] Belfast: Department of Health and Social Services and Public Safety. Available at: https://www.health-ni.gov.uk/sites/default/files/publications/dhssps/hscims-2015-key-facts.pdf [Accessed on 3rd January 2014] Eriksson, K. (2006). The Suffering Human Being. Chicago: Nordic Studies Press. Health and Social Care Research and Development Division. (2010). Strategy for Personal and Public Involvement in Health and Social Care Research. Belfast: Health and Social Care Research and Development Division. Available at: http://www.publichealth.hscni.net/sites/default/files/Strategy{\%}20for{\%}20Personal{\%}20and{\%}20Public{\%}20Involvement{\%}20in{\%}20Health{\%}20and{\%}20Social{\%}20Care{\%}20Research.pdf> [Accessed on 8th April 2013]. Karalova-O’Doherty, Y., Stevenson, C., Higgins, A. (2012). Reconnecting with life: a grounded theory study of mental health recovery in Ireland. Journal of Mental Health, 21(2), 136-144. Kleinman, A. (1988). The Illness Narratives: Suffering, Healing and the Human Condition. United States of America: Basic Books, A division of HarperCollins Publishers. Kogstad, R.E., Ekeland, T.J., Hummelvoll, J.K. (2011). In defence of a humanistic approach to mental health care: Recovery processes investigated with the help of clients’ narratives on turning points and processes of gradual change. Journal of Psychiatric and Mental Health Nursing, 18, 479-486. McCauley, C.O., McKenna, H.P., Keeney, S., McLaughlin, D.F. (2015). A concept analysis of mental health recovery in young adulthood. The Journal of Psychiatric and Mental Health Nursing, 22 (8), 579-589. Miles,M.B., Huberman, A.M. (1994). An Expanded Sourcebook: Qualitative Data Analysis. 2nd ed. California: Sage Publications. Neil, S.T., Price, J., Pitt, L., Welford, M., Nothard, S., Sellwood, W., Mulligan, J., Morrison, A.P. (2012). Working together: Service users and researchers in psychosis research. Psychosis: Psychological, Social and Integrative Approaches, 5(3), 306-316. Onken, S.J., Craig, C.M., Ridgeway, P., Ralph, R.O., Cook, J.A. (2007). An analysis of the definitions and elements of recovery: A review of the literature. Psychiatric Rehabilitation Journal, 31(1), 9-22. Owen, S. (2001). The practical, methodological and ethical dilemmas of conducting focus groups with vulnerable clients. Methodological Issues in Nursing Research, 36 (5), 652-658. Parahoo, K. (2006). Nursing Research: Principles, Process and Issues. 2nd ed. Basingstoke: Palgrave Macmillan. Patel.V., Fisher. A,J., Hetrick, S., McGorry, P. (2007). Mental health of young people: a global public-health challenge. Lancet, 369, 1302-1313. Pitt, L., Kilbride, M., Nothard, S., Welford, M., Morrison, A.P. (2007). Researching recovery from psychosis: a user-led project. The Psychiatrist, 31, 55-60. Polit, D.F., Beck, C.T. (2012). Nursing Research: Generating and Assessing Evidence for Nursing Practice. Philadelphia: Lippincott Williams &Wilkins. Romano, D.M., McCay, E., Goering, P., Boydell, K., Zipursky, R. (2010). Reshaping an enduring sense of self: the process of recovery from a first episode of schizophrenia. Early Intervention Psychiatry, 4, 243-250. Simonds, L.M., Pons, R.A., Stone, N.J., Warren, F., John, M. (2014). Adolescents with anxiety and depression: Is social recovery relevant? Clinical Psychology and Psychotherapy, 21, 289-298. Slade, M. (2010). Mental illness and well-being: the central importance of positive psychology and recovery approaches. BMC Health Services Research, 10 (26). Tobin, G.A., Begley, C.M. (2004). Methodological rigour within a qualitative framework. Methodological Issues in Nursing Research, 48(4), 388-396. Triveldi, P., Wykes, T. (2002). From passive subjects to equal partners: Qualitative review of user involvement in research. The British Journal of Psychiatry, 181, 468-472. Wallcraft, J., Bryant, J. (2003). The Sainsbury Centre for Mental Health Policy Paper 2: The mental health service user movement in England. London: The Sainsbury Centre for Mental Health, p. 2-19. Weinstein, J.ed., (2010). Mental Health, Service User Involvement and Recovery. London. Jessica Kingsley Publishers.",
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Service user engagement- a co-created interview schedule exploring mental health recovery in young adults. / McCauley, Claire; McKenna, HP; Keeney, Sinead; McLaughlin, Derek F.

In: Journal of Advanced Nursing, Vol. 73, 05.04.2017, p. 2361-2372.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Service user engagement- a co-created interview schedule exploring mental health recovery in young adults.

AU - McCauley, Claire

AU - McKenna, HP

AU - Keeney, Sinead

AU - McLaughlin, Derek F

N1 - Reference text: References Adame, A.L., Knudson, R.M. (2007). Beyond the counter-narrative: Exploring alternative narratives of recovery from the psychiatric survivor movement. Narrative Inquiry, 17 (2), 157-178. Aston, V., Coffey, M. (2012). Recovery: what mental health nurses and service users say about the concept of recovery. Journal of Psychiatric and Mental Health Nursing, 19, 257-263. Beresford, P., Nettle, M., Perring, R. (2010). Exploring a social model of madness and distress? Exploring what service users say. Joseph Rowntree Foundation. London. Available at: http://www.jrf.org.uk/sites/files/jrf/mental-health-service-models-full.pdf [Accessed on 3rd December 2013]. Carey, M.A. (1995). Comment: Concerns in the analysis of focus group data. Qualitative Health Research, 24(4), 487-495. Carlsen, B., Glenton, C. (2011). What about N? A methodological study of sample-size reporting in focus group studies. BMC Medical Research Methodology, 11:26. Creswell, J.W. 2013. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. 3rd ed. London: Sage. Davidson, L. (2003). Living Outside Mental Illness: Qualitative Studies of Recovery in Schizophrenia. New York: New York University Press. Davidson, L., Roe, D. (2007). Recovery from versus recovery in serious mental illness: One strategy for lessening confusion plaguing recovery. Journal of Mental Health, 16(4), 459-470 Deegan, P.E. (1988). Recovery: The lived experience of rehabilitation. Psychosocial Rehabilitation Journal, 11(4), 11-19. Denzin, N.K and Lincoln, Y.S. (2013). Strategies of Introduction. In: Denzin, N.K and Lincoln, Y.S., ed. Strategies of Qualitative Inquiry. California: Sage. 1-35. Department of Health, Social Services and Public Safety. (2015). Northern Ireland Health and Social Care Inequalities Monitoring System (HSCIMS)-Fourth Update Bulletin. [online] Belfast: Department of Health and Social Services and Public Safety. Available at: https://www.health-ni.gov.uk/sites/default/files/publications/dhssps/hscims-2015-key-facts.pdf [Accessed on 3rd January 2014] Eriksson, K. (2006). The Suffering Human Being. Chicago: Nordic Studies Press. Health and Social Care Research and Development Division. (2010). Strategy for Personal and Public Involvement in Health and Social Care Research. Belfast: Health and Social Care Research and Development Division. Available at: http://www.publichealth.hscni.net/sites/default/files/Strategy%20for%20Personal%20and%20Public%20Involvement%20in%20Health%20and%20Social%20Care%20Research.pdf> [Accessed on 8th April 2013]. Karalova-O’Doherty, Y., Stevenson, C., Higgins, A. (2012). Reconnecting with life: a grounded theory study of mental health recovery in Ireland. Journal of Mental Health, 21(2), 136-144. Kleinman, A. (1988). The Illness Narratives: Suffering, Healing and the Human Condition. United States of America: Basic Books, A division of HarperCollins Publishers. Kogstad, R.E., Ekeland, T.J., Hummelvoll, J.K. (2011). In defence of a humanistic approach to mental health care: Recovery processes investigated with the help of clients’ narratives on turning points and processes of gradual change. Journal of Psychiatric and Mental Health Nursing, 18, 479-486. McCauley, C.O., McKenna, H.P., Keeney, S., McLaughlin, D.F. (2015). A concept analysis of mental health recovery in young adulthood. The Journal of Psychiatric and Mental Health Nursing, 22 (8), 579-589. Miles,M.B., Huberman, A.M. (1994). An Expanded Sourcebook: Qualitative Data Analysis. 2nd ed. California: Sage Publications. Neil, S.T., Price, J., Pitt, L., Welford, M., Nothard, S., Sellwood, W., Mulligan, J., Morrison, A.P. (2012). Working together: Service users and researchers in psychosis research. Psychosis: Psychological, Social and Integrative Approaches, 5(3), 306-316. Onken, S.J., Craig, C.M., Ridgeway, P., Ralph, R.O., Cook, J.A. (2007). An analysis of the definitions and elements of recovery: A review of the literature. Psychiatric Rehabilitation Journal, 31(1), 9-22. Owen, S. (2001). The practical, methodological and ethical dilemmas of conducting focus groups with vulnerable clients. Methodological Issues in Nursing Research, 36 (5), 652-658. Parahoo, K. (2006). Nursing Research: Principles, Process and Issues. 2nd ed. Basingstoke: Palgrave Macmillan. Patel.V., Fisher. A,J., Hetrick, S., McGorry, P. (2007). Mental health of young people: a global public-health challenge. Lancet, 369, 1302-1313. Pitt, L., Kilbride, M., Nothard, S., Welford, M., Morrison, A.P. (2007). Researching recovery from psychosis: a user-led project. The Psychiatrist, 31, 55-60. Polit, D.F., Beck, C.T. (2012). Nursing Research: Generating and Assessing Evidence for Nursing Practice. Philadelphia: Lippincott Williams &Wilkins. Romano, D.M., McCay, E., Goering, P., Boydell, K., Zipursky, R. (2010). Reshaping an enduring sense of self: the process of recovery from a first episode of schizophrenia. Early Intervention Psychiatry, 4, 243-250. Simonds, L.M., Pons, R.A., Stone, N.J., Warren, F., John, M. (2014). Adolescents with anxiety and depression: Is social recovery relevant? Clinical Psychology and Psychotherapy, 21, 289-298. Slade, M. (2010). Mental illness and well-being: the central importance of positive psychology and recovery approaches. BMC Health Services Research, 10 (26). Tobin, G.A., Begley, C.M. (2004). Methodological rigour within a qualitative framework. Methodological Issues in Nursing Research, 48(4), 388-396. Triveldi, P., Wykes, T. (2002). From passive subjects to equal partners: Qualitative review of user involvement in research. The British Journal of Psychiatry, 181, 468-472. Wallcraft, J., Bryant, J. (2003). The Sainsbury Centre for Mental Health Policy Paper 2: The mental health service user movement in England. London: The Sainsbury Centre for Mental Health, p. 2-19. Weinstein, J.ed., (2010). Mental Health, Service User Involvement and Recovery. London. Jessica Kingsley Publishers.

PY - 2017/4/5

Y1 - 2017/4/5

N2 - Abstract AimTo co-create of an interview schedule exploring mental health recovery in collaboration with young adult service users.BackgroundService user involvement in research has been increasingly recognised as providing a vital authentic insight into mental health recovery. Engagement and collaboration with service users have facilitated the exploration of inaccessible or under-investigated aspects of the lived experience of mental health recovery, not only directing the trajectory of research, but making it relevant to their own contextual experience. DesignA qualitative content analysis framework was employed in the co-creation of a semi-structured interview schedule through an engagement process with service users.MethodsTwo separate engagement groups took place at the premises of the service user organisations, between January and February 2014. Miles and Huberman’s analysis framework was chosen for this phase as it enabled the visual presentation of factors, concepts or variables and the established relationship between them.ResultsThe lived experience of mental ill health in young adulthood and how this was understood by others was a particularly relevant theme for participants. Further themes were identified between the impact of painful experiences at this developmental life stage leading to a deeper understanding of others through finding meaning in their own mental health recovery journey.ConclusionOur findings identified that suffering painful experiences is an integral aspect in the process of mental health recovery. This understanding has particular relevance to mental health nursing practice, ensuring the care delivered is cognisant of the suffering or painful experiences that young adults are encountering.KeywordsCollaborative, group interactions, mental health and illness, nursing, recovery, suffering, young adults.

AB - Abstract AimTo co-create of an interview schedule exploring mental health recovery in collaboration with young adult service users.BackgroundService user involvement in research has been increasingly recognised as providing a vital authentic insight into mental health recovery. Engagement and collaboration with service users have facilitated the exploration of inaccessible or under-investigated aspects of the lived experience of mental health recovery, not only directing the trajectory of research, but making it relevant to their own contextual experience. DesignA qualitative content analysis framework was employed in the co-creation of a semi-structured interview schedule through an engagement process with service users.MethodsTwo separate engagement groups took place at the premises of the service user organisations, between January and February 2014. Miles and Huberman’s analysis framework was chosen for this phase as it enabled the visual presentation of factors, concepts or variables and the established relationship between them.ResultsThe lived experience of mental ill health in young adulthood and how this was understood by others was a particularly relevant theme for participants. Further themes were identified between the impact of painful experiences at this developmental life stage leading to a deeper understanding of others through finding meaning in their own mental health recovery journey.ConclusionOur findings identified that suffering painful experiences is an integral aspect in the process of mental health recovery. This understanding has particular relevance to mental health nursing practice, ensuring the care delivered is cognisant of the suffering or painful experiences that young adults are encountering.KeywordsCollaborative, group interactions, mental health and illness, nursing, recovery, suffering, young adults.

KW - Keywords

KW - Collaborative

KW - group interactions

KW - mental health and illness

KW - nursing

KW - recovery

KW - suffering

KW - young adults.

U2 - 10.1111/jan.13314

DO - 10.1111/jan.13314

M3 - Article

VL - 73

SP - 2361

EP - 2372

JO - Journal of Advanced Nursing

T2 - Journal of Advanced Nursing

JF - Journal of Advanced Nursing

SN - 0309-2402

ER -