Quality of life of patients attending Marie Curie day hospice over time: preliminary findings from a prospective cohort study

Sarah Cudmore, Anne Finucane, Gail Holloway, Pippa Grundy, Erna Haraldsdottir, Kevin Brazil, W.George Kernohan

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Introduction Palliative care day services (PCDS) is a popular if variable palliative intervention provided on a routine basis in many hospices.

Aim and method To understand PCDS within Marie Curie hospices we set out to identify the structure process and outcome associated with the service. We present preliminary data on quality of life from the Edinburgh service. A prospective cohort design was used to describe outcomes over an eight-week period. Attendance was recorded. Participants were invited to complete a set of questionnaires to assess quality of life at baseline four weeks and eight weeks post-baseline. Patient assessment involved completion of questionnaires covering physical and emotional health quality of life and wellbeing. The primary outcome measure was QoL as assessed by the McGill Quality of Life scale.

Results Over a nine-week period at one day hospice nine patients and five carers consented to participate. Of the nine patients eight were assessed at four-weeks post baseline (one patient was in hospital); seven patients were assessed at eight weeks post-baseline (one patient had died; one was unwell). Over the eight-week follow up period the total mean score remained stable. The single item quality of life score increased a little (as has quality of health care and environment) whilst symptoms worsened as might be expected in this population.

Conclusion Day services may sustain quality of life in spite of deteriorating health. Further data collection from two other sites is underway to enhance sample size.
LanguageEnglish
Title of host publicationBMJ Supportive and Palliative Care
Pages370-370
Number of pages1
Volume8
ISBN (Electronic)2045-4368
DOIs
Publication statusPublished - 1 Sep 2018
EventFrom radical to real: Implementing new models of palliative care - RSM 1 Wimpole Street, London, United Kingdom
Duration: 17 Oct 201817 Oct 2018

Conference

ConferenceFrom radical to real: Implementing new models of palliative care
CountryUnited Kingdom
CityLondon
Period17/10/1817/10/18

Fingerprint

Hospices
Cohort Studies
Quality of Life
Prospective Studies
Palliative Care
Quality of Health Care
Health
Sample Size
Caregivers
Outcome Assessment (Health Care)
Population

Cite this

Cudmore, S., Finucane, A., Holloway, G., Grundy, P., Haraldsdottir, E., Brazil, K., & Kernohan, W. G. (2018). Quality of life of patients attending Marie Curie day hospice over time: preliminary findings from a prospective cohort study. In BMJ Supportive and Palliative Care (Vol. 8, pp. 370-370). [28] https://doi.org/10.1136/bmjspcare-2018-mariecurie.28
Cudmore, Sarah ; Finucane, Anne ; Holloway, Gail ; Grundy, Pippa ; Haraldsdottir, Erna ; Brazil, Kevin ; Kernohan, W.George. / Quality of life of patients attending Marie Curie day hospice over time : preliminary findings from a prospective cohort study. BMJ Supportive and Palliative Care. Vol. 8 2018. pp. 370-370
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Cudmore, S, Finucane, A, Holloway, G, Grundy, P, Haraldsdottir, E, Brazil, K & Kernohan, WG 2018, Quality of life of patients attending Marie Curie day hospice over time: preliminary findings from a prospective cohort study. in BMJ Supportive and Palliative Care. vol. 8, 28, pp. 370-370, From radical to real: Implementing new models of palliative care, London, United Kingdom, 17/10/18. https://doi.org/10.1136/bmjspcare-2018-mariecurie.28

Quality of life of patients attending Marie Curie day hospice over time : preliminary findings from a prospective cohort study. / Cudmore, Sarah; Finucane, Anne; Holloway, Gail; Grundy, Pippa; Haraldsdottir, Erna; Brazil, Kevin; Kernohan, W.George.

BMJ Supportive and Palliative Care. Vol. 8 2018. p. 370-370 28.

Research output: Chapter in Book/Report/Conference proceedingConference contribution

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T1 - Quality of life of patients attending Marie Curie day hospice over time

T2 - preliminary findings from a prospective cohort study

AU - Cudmore, Sarah

AU - Finucane, Anne

AU - Holloway, Gail

AU - Grundy, Pippa

AU - Haraldsdottir, Erna

AU - Brazil, Kevin

AU - Kernohan, W.George

PY - 2018/9/1

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N2 - Introduction Palliative care day services (PCDS) is a popular if variable palliative intervention provided on a routine basis in many hospices.Aim and method To understand PCDS within Marie Curie hospices we set out to identify the structure process and outcome associated with the service. We present preliminary data on quality of life from the Edinburgh service. A prospective cohort design was used to describe outcomes over an eight-week period. Attendance was recorded. Participants were invited to complete a set of questionnaires to assess quality of life at baseline four weeks and eight weeks post-baseline. Patient assessment involved completion of questionnaires covering physical and emotional health quality of life and wellbeing. The primary outcome measure was QoL as assessed by the McGill Quality of Life scale.Results Over a nine-week period at one day hospice nine patients and five carers consented to participate. Of the nine patients eight were assessed at four-weeks post baseline (one patient was in hospital); seven patients were assessed at eight weeks post-baseline (one patient had died; one was unwell). Over the eight-week follow up period the total mean score remained stable. The single item quality of life score increased a little (as has quality of health care and environment) whilst symptoms worsened as might be expected in this population.Conclusion Day services may sustain quality of life in spite of deteriorating health. Further data collection from two other sites is underway to enhance sample size.

AB - Introduction Palliative care day services (PCDS) is a popular if variable palliative intervention provided on a routine basis in many hospices.Aim and method To understand PCDS within Marie Curie hospices we set out to identify the structure process and outcome associated with the service. We present preliminary data on quality of life from the Edinburgh service. A prospective cohort design was used to describe outcomes over an eight-week period. Attendance was recorded. Participants were invited to complete a set of questionnaires to assess quality of life at baseline four weeks and eight weeks post-baseline. Patient assessment involved completion of questionnaires covering physical and emotional health quality of life and wellbeing. The primary outcome measure was QoL as assessed by the McGill Quality of Life scale.Results Over a nine-week period at one day hospice nine patients and five carers consented to participate. Of the nine patients eight were assessed at four-weeks post baseline (one patient was in hospital); seven patients were assessed at eight weeks post-baseline (one patient had died; one was unwell). Over the eight-week follow up period the total mean score remained stable. The single item quality of life score increased a little (as has quality of health care and environment) whilst symptoms worsened as might be expected in this population.Conclusion Day services may sustain quality of life in spite of deteriorating health. Further data collection from two other sites is underway to enhance sample size.

U2 - 10.1136/bmjspcare-2018-mariecurie.28

DO - 10.1136/bmjspcare-2018-mariecurie.28

M3 - Conference contribution

SN - 2045-435X

VL - 8

SP - 370

EP - 370

BT - BMJ Supportive and Palliative Care

ER -

Cudmore S, Finucane A, Holloway G, Grundy P, Haraldsdottir E, Brazil K et al. Quality of life of patients attending Marie Curie day hospice over time: preliminary findings from a prospective cohort study. In BMJ Supportive and Palliative Care. Vol. 8. 2018. p. 370-370. 28 https://doi.org/10.1136/bmjspcare-2018-mariecurie.28