Pulmonary rehabilitation and follow on services: A Northern Ireland survey.

Brenda O'Neill; J Stuart Elborn; Joseph MacMahon; Judy M Bradley

doi:10.1177/1479972308091825

Pulmonary rehabilitation and follow on services: A Northern Ireland survey.

Brenda O'Neill, J Stuart Elborn, Joseph MacMahon, Judy M Bradley

Research output: Contribution to journal › Article › peer-review

17 Citations (Scopus)

Abstract

Background: There should be a clear pathway through pulmonary rehabilitation and follow on services. The aim of this survey was to determine the characteristics of the different components of the patient pathway i.e. pulmonary rehabilitation programmes, ongoing exercise facilities and support networks in Northern Ireland. Methods: Questionnaires were sent to current providers of pulmonary rehabilitation, providers of ongoing exercise and support groups in Northern Ireland.Results Findings relating to the current status of pulmonary rehabilitation in Northern Ireland up to January 2007 are reported. There are currently 23 pulmonary rehabilitation programmes in Northern Ireland. There appears to be a pathway through the short term pulmonary rehabilitation programme (six to eight weeks). Programmes met standards for structure and format, except for the frequency of supervised exercise. Not all programmes have links for the provision of ongoing exercise but a range of exercise programmes are available in leisure centres in Northern Ireland that include people with respiratory disease. There are 13 support groups for patients with respiratory disease in Northern Ireland and their function is diverse. The pathway relating to the provision of ongoing exercise and networks for social support is underdeveloped and underutilised.Conclusion: Pulmonary rehabilitation is established in Northern Ireland, though not all patients are able to access these. Facilities for ongoing exercise and support groups are less developed. Improvements could be facilitated by better communication within the patient pathway and a strategic coordinated approach.

Original language	English
Pages (from-to)	149-154
Journal	Chronic Respiratory Disease
Volume	5
Issue number	3
DOIs	https://doi.org/10.1177/1479972308091825
Publication status	Published (in print/issue) - Aug 2008

Bibliographical note

‘The final, definitive version of this paper has been published in Chronic Respiratory Disease, Volume 5, 2008 by SAGE Publications Ltd SAGE Publications, Inc., All rights reserved. ©
Reference text: [1] Lacasse Y, Goldstein R, Lasserson TJ, Martin S. Pulmonary rehabilitation for chronic obstructive disease. Cochrane Database for Systematic Reviews 2006; Issue 4. Art. No.: CD003793 DOI: 101002/14651858CD003793.pub2.
[2] American Thoracic Society /European Respiratory Society Statement on Pulmonary Rehabilitation 2006. Am J Respir Crit Care Med 2006; 173: 1390-1413.

[3] Chronic Obstructive Pulmonary disease: National clinical guideline for management of chronic obstructive pulmonary disease in adults in primary and secondary care (National Institute for Clinical Excellence NICE). Thorax 2004; 59 (Suppl): 1-232.

[4] Cambach W, Wagenaar RC, Koelman TW, Van Keimpema ARJT, Kemper HCG. The long-term effects of pulmonary rehabilitation in patients with asthma and chronic obstructive pulmonary disease: A research synthesis. Arch Phys Med Rehabil 1999; 80: 103-11.

[5] O’Neill B, Mc Kevitt AM, Rafferty S, Bradley J, Johnston D, Bradbury I, Mac Mahon J. A comparison of twice versus once weekly supervision during pulmonary
rehabilitation in Chronic Obstructive Pulmonary Disease. Arch Phys Med Rehabil 2007: 88: 167-172.

[6] Pulmonary Rehabilitation. British Thoracic Society: Standards of care subcommittee on Pulmonary Rehabilitation. Thorax 2001; 56: 827-834.

[7] A Healthier Future: A Strategic Framework for Respiratory Conditions in NI March 2006. Department of Health.

[8] British Thoracic Society /British Lung Foundation. Pulmonary Rehabilitation survey 2002.

[9] Brooks D, Lacasse Y, Goldstein RS. Pulmonary rehabilitation programs in Canada: National survey. Canadian Respiratory Journal 1999: 6: 55-63.

[10] Bickford LS, Hodgkin JE, McInturff SL. National pulmonary rehabilitation survey: Update. J Cardiopulm Rehabil 1995: 15: 406-11.

[11] QOF database www.GPcontract.co.uk [last accessed February 2008]

[12] Green RH, Singh SJ, Williams J, Morgan MDL. A randomised controlled trial of four weeks versus seven weeks of pulmonary rehabilitation in chronic obstructive pulmonary disease. Thorax 2001: 56: 143-5.

[13] Wilson JS, O’Neill B, Reilly J, MacMahon J, Bradley JM. Education in pulmonary rehabilitation: The patients’ perspective. Arch Phys Med Rehabil 2007;88:1704-9.

[14] Gidlow C, Johnston LH. Attendance of exercise referral schemes in the UK: A systematic review. Health Education Journal 2005: 64: 168-186.

Keywords

maintenance exercise
pulmonary rehabilitation
survey

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10.1177/1479972308091825

Cite this

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title = "Pulmonary rehabilitation and follow on services: A Northern Ireland survey.",

abstract = "Background: There should be a clear pathway through pulmonary rehabilitation and follow on services. The aim of this survey was to determine the characteristics of the different components of the patient pathway i.e. pulmonary rehabilitation programmes, ongoing exercise facilities and support networks in Northern Ireland. Methods: Questionnaires were sent to current providers of pulmonary rehabilitation, providers of ongoing exercise and support groups in Northern Ireland.Results Findings relating to the current status of pulmonary rehabilitation in Northern Ireland up to January 2007 are reported. There are currently 23 pulmonary rehabilitation programmes in Northern Ireland. There appears to be a pathway through the short term pulmonary rehabilitation programme (six to eight weeks). Programmes met standards for structure and format, except for the frequency of supervised exercise. Not all programmes have links for the provision of ongoing exercise but a range of exercise programmes are available in leisure centres in Northern Ireland that include people with respiratory disease. There are 13 support groups for patients with respiratory disease in Northern Ireland and their function is diverse. The pathway relating to the provision of ongoing exercise and networks for social support is underdeveloped and underutilised.Conclusion: Pulmonary rehabilitation is established in Northern Ireland, though not all patients are able to access these. Facilities for ongoing exercise and support groups are less developed. Improvements could be facilitated by better communication within the patient pathway and a strategic coordinated approach.",

keywords = "maintenance exercise, pulmonary rehabilitation, survey",

author = "Brenda O'Neill and Elborn, {J Stuart} and Joseph MacMahon and Bradley, {Judy M}",

note = "{\textquoteleft}The final, definitive version of this paper has been published in Chronic Respiratory Disease, Volume 5, 2008 by SAGE Publications Ltd SAGE Publications, Inc., All rights reserved. {\textcopyright} Reference text: [1] Lacasse Y, Goldstein R, Lasserson TJ, Martin S. Pulmonary rehabilitation for chronic obstructive disease. Cochrane Database for Systematic Reviews 2006; Issue 4. Art. No.: CD003793 DOI: 101002/14651858CD003793.pub2. [2] American Thoracic Society /European Respiratory Society Statement on Pulmonary Rehabilitation 2006. Am J Respir Crit Care Med 2006; 173: 1390-1413. [3] Chronic Obstructive Pulmonary disease: National clinical guideline for management of chronic obstructive pulmonary disease in adults in primary and secondary care (National Institute for Clinical Excellence NICE). Thorax 2004; 59 (Suppl): 1-232. [4] Cambach W, Wagenaar RC, Koelman TW, Van Keimpema ARJT, Kemper HCG. The long-term effects of pulmonary rehabilitation in patients with asthma and chronic obstructive pulmonary disease: A research synthesis. Arch Phys Med Rehabil 1999; 80: 103-11. [5] O{\textquoteright}Neill B, Mc Kevitt AM, Rafferty S, Bradley J, Johnston D, Bradbury I, Mac Mahon J. A comparison of twice versus once weekly supervision during pulmonary rehabilitation in Chronic Obstructive Pulmonary Disease. Arch Phys Med Rehabil 2007: 88: 167-172. [6] Pulmonary Rehabilitation. British Thoracic Society: Standards of care subcommittee on Pulmonary Rehabilitation. Thorax 2001; 56: 827-834. [7] A Healthier Future: A Strategic Framework for Respiratory Conditions in NI March 2006. Department of Health. [8] British Thoracic Society /British Lung Foundation. Pulmonary Rehabilitation survey 2002. [9] Brooks D, Lacasse Y, Goldstein RS. Pulmonary rehabilitation programs in Canada: National survey. Canadian Respiratory Journal 1999: 6: 55-63. [10] Bickford LS, Hodgkin JE, McInturff SL. National pulmonary rehabilitation survey: Update. J Cardiopulm Rehabil 1995: 15: 406-11. [11] QOF database www.GPcontract.co.uk [last accessed February 2008] [12] Green RH, Singh SJ, Williams J, Morgan MDL. A randomised controlled trial of four weeks versus seven weeks of pulmonary rehabilitation in chronic obstructive pulmonary disease. Thorax 2001: 56: 143-5. [13] Wilson JS, O{\textquoteright}Neill B, Reilly J, MacMahon J, Bradley JM. Education in pulmonary rehabilitation: The patients{\textquoteright} perspective. Arch Phys Med Rehabil 2007;88:1704-9. [14] Gidlow C, Johnston LH. Attendance of exercise referral schemes in the UK: A systematic review. Health Education Journal 2005: 64: 168-186.",

year = "2008",

month = aug,

doi = "10.1177/1479972308091825",

language = "English",

volume = "5",

pages = "149--154",

journal = "Chronic Respiratory Disease",

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publisher = "SAGE Publications",

number = "3",

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T1 - Pulmonary rehabilitation and follow on services: A Northern Ireland survey.

AU - O'Neill, Brenda

AU - Elborn, J Stuart

AU - MacMahon, Joseph

AU - Bradley, Judy M

N1 - ‘The final, definitive version of this paper has been published in Chronic Respiratory Disease, Volume 5, 2008 by SAGE Publications Ltd SAGE Publications, Inc., All rights reserved. © Reference text: [1] Lacasse Y, Goldstein R, Lasserson TJ, Martin S. Pulmonary rehabilitation for chronic obstructive disease. Cochrane Database for Systematic Reviews 2006; Issue 4. Art. No.: CD003793 DOI: 101002/14651858CD003793.pub2. [2] American Thoracic Society /European Respiratory Society Statement on Pulmonary Rehabilitation 2006. Am J Respir Crit Care Med 2006; 173: 1390-1413. [3] Chronic Obstructive Pulmonary disease: National clinical guideline for management of chronic obstructive pulmonary disease in adults in primary and secondary care (National Institute for Clinical Excellence NICE). Thorax 2004; 59 (Suppl): 1-232. [4] Cambach W, Wagenaar RC, Koelman TW, Van Keimpema ARJT, Kemper HCG. The long-term effects of pulmonary rehabilitation in patients with asthma and chronic obstructive pulmonary disease: A research synthesis. Arch Phys Med Rehabil 1999; 80: 103-11. [5] O’Neill B, Mc Kevitt AM, Rafferty S, Bradley J, Johnston D, Bradbury I, Mac Mahon J. A comparison of twice versus once weekly supervision during pulmonary rehabilitation in Chronic Obstructive Pulmonary Disease. Arch Phys Med Rehabil 2007: 88: 167-172. [6] Pulmonary Rehabilitation. British Thoracic Society: Standards of care subcommittee on Pulmonary Rehabilitation. Thorax 2001; 56: 827-834. [7] A Healthier Future: A Strategic Framework for Respiratory Conditions in NI March 2006. Department of Health. [8] British Thoracic Society /British Lung Foundation. Pulmonary Rehabilitation survey 2002. [9] Brooks D, Lacasse Y, Goldstein RS. Pulmonary rehabilitation programs in Canada: National survey. Canadian Respiratory Journal 1999: 6: 55-63. [10] Bickford LS, Hodgkin JE, McInturff SL. National pulmonary rehabilitation survey: Update. J Cardiopulm Rehabil 1995: 15: 406-11. [11] QOF database www.GPcontract.co.uk [last accessed February 2008] [12] Green RH, Singh SJ, Williams J, Morgan MDL. A randomised controlled trial of four weeks versus seven weeks of pulmonary rehabilitation in chronic obstructive pulmonary disease. Thorax 2001: 56: 143-5. [13] Wilson JS, O’Neill B, Reilly J, MacMahon J, Bradley JM. Education in pulmonary rehabilitation: The patients’ perspective. Arch Phys Med Rehabil 2007;88:1704-9. [14] Gidlow C, Johnston LH. Attendance of exercise referral schemes in the UK: A systematic review. Health Education Journal 2005: 64: 168-186.

PY - 2008/8

Y1 - 2008/8

N2 - Background: There should be a clear pathway through pulmonary rehabilitation and follow on services. The aim of this survey was to determine the characteristics of the different components of the patient pathway i.e. pulmonary rehabilitation programmes, ongoing exercise facilities and support networks in Northern Ireland. Methods: Questionnaires were sent to current providers of pulmonary rehabilitation, providers of ongoing exercise and support groups in Northern Ireland.Results Findings relating to the current status of pulmonary rehabilitation in Northern Ireland up to January 2007 are reported. There are currently 23 pulmonary rehabilitation programmes in Northern Ireland. There appears to be a pathway through the short term pulmonary rehabilitation programme (six to eight weeks). Programmes met standards for structure and format, except for the frequency of supervised exercise. Not all programmes have links for the provision of ongoing exercise but a range of exercise programmes are available in leisure centres in Northern Ireland that include people with respiratory disease. There are 13 support groups for patients with respiratory disease in Northern Ireland and their function is diverse. The pathway relating to the provision of ongoing exercise and networks for social support is underdeveloped and underutilised.Conclusion: Pulmonary rehabilitation is established in Northern Ireland, though not all patients are able to access these. Facilities for ongoing exercise and support groups are less developed. Improvements could be facilitated by better communication within the patient pathway and a strategic coordinated approach.

AB - Background: There should be a clear pathway through pulmonary rehabilitation and follow on services. The aim of this survey was to determine the characteristics of the different components of the patient pathway i.e. pulmonary rehabilitation programmes, ongoing exercise facilities and support networks in Northern Ireland. Methods: Questionnaires were sent to current providers of pulmonary rehabilitation, providers of ongoing exercise and support groups in Northern Ireland.Results Findings relating to the current status of pulmonary rehabilitation in Northern Ireland up to January 2007 are reported. There are currently 23 pulmonary rehabilitation programmes in Northern Ireland. There appears to be a pathway through the short term pulmonary rehabilitation programme (six to eight weeks). Programmes met standards for structure and format, except for the frequency of supervised exercise. Not all programmes have links for the provision of ongoing exercise but a range of exercise programmes are available in leisure centres in Northern Ireland that include people with respiratory disease. There are 13 support groups for patients with respiratory disease in Northern Ireland and their function is diverse. The pathway relating to the provision of ongoing exercise and networks for social support is underdeveloped and underutilised.Conclusion: Pulmonary rehabilitation is established in Northern Ireland, though not all patients are able to access these. Facilities for ongoing exercise and support groups are less developed. Improvements could be facilitated by better communication within the patient pathway and a strategic coordinated approach.

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KW - pulmonary rehabilitation

KW - survey

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DO - 10.1177/1479972308091825

M3 - Article

SN - 1479-9731

VL - 5

SP - 149

EP - 154

JO - Chronic Respiratory Disease

JF - Chronic Respiratory Disease

IS - 3

ER -

Pulmonary rehabilitation and follow on services: A Northern Ireland survey.

Abstract

Bibliographical note

Keywords

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