Perceptions of effective support services to families with disabled young people whose behaviour is severely challenging: a multi-informant study.

Roy McConkey, Clare Gent, Emma Scowcroft

    Research output: Contribution to journalArticle

    6 Citations (Scopus)

    Abstract

    Background Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioningand effectiveness of such services. Methods In all, 17 children were selected at random from the 123 who were currently receiving services or had done so in the past 2 years from three specialist short break and community support services. For each child, interviews were conducted with a parent, the child’s key worker within the service and the professional (mostly social workers) who had referred families to the services.Results Five core themes captured the informants’ common experiences: the complexities underlying the provision of services; the negotiations required to implement, maintain and adjust service packages; the relationships forged by the services; and the benefits they brought to children and families plus concerns about the future also featured.Conclusions Specialist short break services can make a vital contribution to retaining children within their families, but under some important conditions which this study has identified: notably, the management of complexity, the formation of trusted relationships andcreation of tangible benefits for the family and for the child.
    LanguageEnglish
    JournalJournal of Applied Research in Intellectual Disability
    VolumeNot as
    DOIs
    Publication statusPublished - 14 Feb 2013

    Fingerprint

    social worker
    parents
    worker
    interview
    management
    community
    evidence
    experience
    time

    Cite this

    @article{cfc8834a2a0e4c2e958d501fa8114ba4,
    title = "Perceptions of effective support services to families with disabled young people whose behaviour is severely challenging: a multi-informant study.",
    abstract = "Background Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioningand effectiveness of such services. Methods In all, 17 children were selected at random from the 123 who were currently receiving services or had done so in the past 2 years from three specialist short break and community support services. For each child, interviews were conducted with a parent, the child’s key worker within the service and the professional (mostly social workers) who had referred families to the services.Results Five core themes captured the informants’ common experiences: the complexities underlying the provision of services; the negotiations required to implement, maintain and adjust service packages; the relationships forged by the services; and the benefits they brought to children and families plus concerns about the future also featured.Conclusions Specialist short break services can make a vital contribution to retaining children within their families, but under some important conditions which this study has identified: notably, the management of complexity, the formation of trusted relationships andcreation of tangible benefits for the family and for the child.",
    author = "Roy McConkey and Clare Gent and Emma Scowcroft",
    year = "2013",
    month = "2",
    day = "14",
    doi = "10.1111/jar.12019",
    language = "English",
    volume = "Not as",
    journal = "Journal of Applied Research in Intellectual Disabilities",
    issn = "1360-2322",

    }

    TY - JOUR

    T1 - Perceptions of effective support services to families with disabled young people whose behaviour is severely challenging: a multi-informant study.

    AU - McConkey, Roy

    AU - Gent, Clare

    AU - Scowcroft, Emma

    PY - 2013/2/14

    Y1 - 2013/2/14

    N2 - Background Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioningand effectiveness of such services. Methods In all, 17 children were selected at random from the 123 who were currently receiving services or had done so in the past 2 years from three specialist short break and community support services. For each child, interviews were conducted with a parent, the child’s key worker within the service and the professional (mostly social workers) who had referred families to the services.Results Five core themes captured the informants’ common experiences: the complexities underlying the provision of services; the negotiations required to implement, maintain and adjust service packages; the relationships forged by the services; and the benefits they brought to children and families plus concerns about the future also featured.Conclusions Specialist short break services can make a vital contribution to retaining children within their families, but under some important conditions which this study has identified: notably, the management of complexity, the formation of trusted relationships andcreation of tangible benefits for the family and for the child.

    AB - Background Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioningand effectiveness of such services. Methods In all, 17 children were selected at random from the 123 who were currently receiving services or had done so in the past 2 years from three specialist short break and community support services. For each child, interviews were conducted with a parent, the child’s key worker within the service and the professional (mostly social workers) who had referred families to the services.Results Five core themes captured the informants’ common experiences: the complexities underlying the provision of services; the negotiations required to implement, maintain and adjust service packages; the relationships forged by the services; and the benefits they brought to children and families plus concerns about the future also featured.Conclusions Specialist short break services can make a vital contribution to retaining children within their families, but under some important conditions which this study has identified: notably, the management of complexity, the formation of trusted relationships andcreation of tangible benefits for the family and for the child.

    U2 - 10.1111/jar.12019

    DO - 10.1111/jar.12019

    M3 - Article

    VL - Not as

    JO - Journal of Applied Research in Intellectual Disabilities

    T2 - Journal of Applied Research in Intellectual Disabilities

    JF - Journal of Applied Research in Intellectual Disabilities

    SN - 1360-2322

    ER -