Participatory Research to Design a Novel Telehealth System to Support the Night-Time Needs of People with Dementia: NOCTURNAL

Suzanne Martin, Juan Carlos Augusto, PJ McCullagh, William Carswell, H Zheng, HY Wang, JG Wallace, Maurice Mulvenna

Research output: Contribution to journalArticle

19 Citations (Scopus)

Abstract

Strategies to support people living with dementia are broad in scope, proposing both pharmacological and non-pharmacological interventions as part of the care pathway. Assistive technologies form part of this offering as both stand-alone devices to support particular tasks and the more complex offering of the “smart home” to underpin ambient assisted living. This paper presents a technology-based system, which expands on the smart home architecture, orientated to support people with daily living. The system, NOCTURNAL, was developed by working directly with people who had dementia, and their carers using qualitative research methods. The research focused primarily on the nighttime needs of people living with dementia in real home settings. Eight people with dementia had the final prototype system installed for a three month evaluation at home. Disturbed sleep patterns, night-time wandering were a focus of this research not only in terms of detection by commercially available technology but also exploring if automated music, light and visual personalized photographs would be soothing to participants during the hours of darkness. The NOCTURNAL platform and associated services was informed by strong user engagement of people with dementia and the service providers who care for them. NOCTURNAL emerged as a holistic service offering a personalised therapeutic aspect with interactive capabilities.
LanguageEnglish
Pages6764-6782
JournalInternational Journal of Environmental Research and Public Health
Volume10
Issue number12
DOIs
Publication statusPublished - 2013

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Telemedicine
Dementia
Research Design
Technology
Self-Help Devices
Qualitative Research
Darkness
Music
Research
Caregivers
Sleep
Pharmacology
Light
Equipment and Supplies

Cite this

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