Abstract
Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something that all paediatric renal physicians and most paediatricians will encounter. In this paper, we present the literature on three key areas of palliative care practice essential to good clinical management: shared decision-making, advance care planning, and symptom management, with particular reference to CKD 5 where kidney transplant is not an option and where a decision has been made to withdraw or withhold dialysis. Some areas of care, particularly with regard to symptom management, have not been well-studied in children and young people (CYP) with CKD 5 and recommendations with regard to drug choice and dose modification are based on adult literature, known pharmacokinetics, and clinical experience.
Original language | English |
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Pages (from-to) | 105-112 |
Number of pages | 8 |
Journal | Pediatric nephrology (Berlin, Germany) |
Volume | 37 |
Issue number | 1 |
Early online date | 14 May 2021 |
DOIs | |
Publication status | Published (in print/issue) - Jan 2022 |
Bibliographical note
Funding Information:Ellen Henderson’s post is supported by a programme grant to the Louis Dundas Centre for Children's Palliative Care from Great Ormond Street Hospital Children's Charity.
Funding Information:
Bhumik Patel’s post is supported by a programme grant to the Louis Dundas Centre for Children’s Palliative Care from Great Ormond Hospital Children's Charity.
Funding Information:
Myra Bluebond-Langner’s post is supported by funding from TheTrue Colours Trust.
Publisher Copyright:
© 2021, The Authors.
Keywords
- Advance care planning
- Conservative management
- Kidney failure
- Palliative care
- Stage 5 chronic kidney disease (CKD 5)
- Symptom management
- Stage 5 chronic kidney disease (CKD 
- 5)