Normalisingbirthforwomenwithadisability:Thechallengesfacing practitioners

Dympna Walsh-Gallagher, Marlene Sinclair, Roy McConkey, Ruth Clarke

Research output: Contribution to journalArticle

14 Citations (Scopus)

Abstract

Previousresearchonpregnantwomenwithadisabilityandtheirexperienceofmaternitycaredemonstratedthatthesemothersperceivedthemselvestobethe‘perennialoutsiders’withmidwivesautomaticallycategorisingthemas‘highrisk’becauseoftheirdisability.Theyalsofeltthattheirabilityto makechoices,stayincontrolandhavecontinuityofcarewasnotconsideredtobepartofthemainstreammaternitycareforthembecausetheydidnotfitthe‘normal’category.Objective:thisresearchwasundertakentoexploretheperceptionsoftwomultiprofessionalteamsin Irishhospitalsastohowmaternityservicestothesemotherscanbeimproved.Participants:nineteenhealth-careprofessionalsfrommidwifery,socialworkandpublichealthnursingwererecruited.Setting: twofromtwomajormaternityhospitals,oneintheNorthandoneintheSouthofIreland.were featured.Design: themethodchosenwasaqualitativeapproach,usingfocusgroupinterviewsinwhichcasestudiesdepictingarangeandbreadthofwomen’sbirthingexperienceswerepresentedanddiscussed.NewellandBurnard’s(2006) six stageapproachtothematiccontentanalysiswasused.Findings:theprofessionalsfoundthedisabledwomen’sstoriesbelievable,upsettingandchallenging.Keyconclusions:Staffacknowledgedtheir‘lackofcompetence,knowledgeandskill’regardingdisabilityandfeltthat,onreflection,theirfailuretoconsultandcollaboratewithdisabledwomencontributedtotheirfailingtoprovideindividualisedwomancentredcaretowomenwithadisability.Implicationsofpractice:Aseriesofrecommendationsforimprovedpracticewasagreed.& 2011ElsevierLtd.Allrightsreserved
LanguageEnglish
Pages294-299
JournalMidwifery
Volume29
Issue number4
DOIs
Publication statusPublished - Apr 2013

Cite this

Walsh-Gallagher, Dympna ; Sinclair, Marlene ; McConkey, Roy ; Clarke, Ruth. / Normalisingbirthforwomenwithadisability:Thechallengesfacing practitioners. In: Midwifery. 2013 ; Vol. 29, No. 4. pp. 294-299.
@article{e29d0b5336d1446194152cbd88617770,
title = "Normalisingbirthforwomenwithadisability:Thechallengesfacing practitioners",
abstract = "Previousresearchonpregnantwomenwithadisabilityandtheirexperienceofmaternitycaredemonstratedthatthesemothersperceivedthemselvestobethe‘perennialoutsiders’withmidwivesautomaticallycategorisingthemas‘highrisk’becauseoftheirdisability.Theyalsofeltthattheirabilityto makechoices,stayincontrolandhavecontinuityofcarewasnotconsideredtobepartofthemainstreammaternitycareforthembecausetheydidnotfitthe‘normal’category.Objective:thisresearchwasundertakentoexploretheperceptionsoftwomultiprofessionalteamsin Irishhospitalsastohowmaternityservicestothesemotherscanbeimproved.Participants:nineteenhealth-careprofessionalsfrommidwifery,socialworkandpublichealthnursingwererecruited.Setting: twofromtwomajormaternityhospitals,oneintheNorthandoneintheSouthofIreland.were featured.Design: themethodchosenwasaqualitativeapproach,usingfocusgroupinterviewsinwhichcasestudiesdepictingarangeandbreadthofwomen’sbirthingexperienceswerepresentedanddiscussed.NewellandBurnard’s(2006) six stageapproachtothematiccontentanalysiswasused.Findings:theprofessionalsfoundthedisabledwomen’sstoriesbelievable,upsettingandchallenging.Keyconclusions:Staffacknowledgedtheir‘lackofcompetence,knowledgeandskill’regardingdisabilityandfeltthat,onreflection,theirfailuretoconsultandcollaboratewithdisabledwomencontributedtotheirfailingtoprovideindividualisedwomancentredcaretowomenwithadisability.Implicationsofpractice:Aseriesofrecommendationsforimprovedpracticewasagreed.& 2011ElsevierLtd.Allrightsreserved",
author = "Dympna Walsh-Gallagher and Marlene Sinclair and Roy McConkey and Ruth Clarke",
note = "Reference text: Ash, A.,Fine,M.,1998.WomenwithDisabilities:EssaysinPsychology,Cultureand Politics. TempleUniversityPress,Philadelphia. Aunos, S.M.,Feldman,M.A.,2002.Attitudestowardssexuality,sterilizationand parenting rightsofpersonswithintellectualdisabilities.JournalofApplied Research inIntellectualDisabilities15,285–296. Becker, H.,Stuifberger,A.,Tinkle,M.,1997.Reproductivehealthcareexperiences of womenwithdisabilities:aqualitativestudy.JournalofPhysicalMedical Rehabilitation 78,26–33. Campion, M.J.,1990.TheBabyChallenge.AHandbookonPregnancyforWomen with aPhysicalDisability.Routledge,London. Conley-Jung, C.,Olkin,R.,2001.Motherswithvisualimpairmentsorblindness raising youngchildren.JournalofVisualImpairmentandBlindness91(1), 14–29. Culley, L.,Genders,N.,1999.Parentingbypeoplewithlearningdisabilities:the educational needsofthecommunitynurse.NurseEducationToday19, 502–508. Department ofHealth,1993.ChangingChildbirth.ReportoftheExpertMaternity Group. HMSO,London. Department ofHealth,2007.MaternityMatters:Choice,AccessandContinuityof Care inaSafeService.NHS. Disability DiscriminationAct,2005.London:HMSO. Kallianes, V.,Rubenfeld,P.,1997.Disabledwomenandreproductiverights. Disability andSociety12(2),203–221. Lee, E.K.O.,Oh,H.,2005.Awisewifeandgoodmother:reproductivehealthand maternity amongwomenwithdisabilityinSouthKorea.Sexualityand Disability 23(3),121–144. Mac Kay-Moffat,S.,2007.DisabilityinPregnancyandChildbirth.Churchill Livingstone, London. Mac Kay-Moffat,S.,Cunningham,C.,2006.Servicesforwomenwithdisabilities: mothers’ andmidwives’experiences.BritishJournalofMidwifery14(8), 472–477. Neville-Jan, A.,2004.Sellingyoursoultothedevil:anautoethnographyofpain, pleasure andthequestforachild.DisabilityandSociety19(2),113–127. Newell, P.,Burnard,P.,2006.IntroductiontoNursingResearch:Incorporating Evidence BasedPractice.BlackwellPublishing,London. Nosek, M.A.,Howland,B.A.,Rinalta,D.H.,Young,M.M.,Chanpong,M.S.,2001. National StudyofWomenwithPhysicalDisabilities:AchievingandMaintain- ing HealthandWellbeing. Prilleltensky, O.,2003.Aramptomotherhood:theexperiencesofmotherswith physical disabilities.SexualityandDisability21(1),21–47. Royal CollegeofMidwives,2000.Maternitycareforwomenwithdisabilities. Stationary Office,RCM,London. Saxton, M.,1996.Teachingproviderstobecomeourallies.In:Krotoski,D.M., Nosek, M.A.,Tuurk,M.A.(Eds.),WomenwithPhysicalDisabilities,Brookes, Baltimore. Shackle, M.,1994.IthoughtIwastheonlyone.AReportfromaConference ‘Disabled People,PregnancyandEarlyParenthood’.PartoftheMaternity Alliance WorkingGroupPack.MaternityAlliance,London. Shackleton, P.,Godard,L.,1997.Pregnancyanddisability.BirthIssues6(4),5–10. Thomas, C.,Curtis,P.,1997.Havingababy:somedisabledwomen’sreproductive experiences. Midwifery13,202–209. Toms Barker,L.T.,Maralani,V.,1997.ChallengesandStrategiesofDisabled Parents: FindingsfromaNationalSurveyofParentswithDisabilities.Berkely Planning Associates,Oakland. Tymchuk, A.J.,1999.Movingtowardsintegrationofservicesforparentswith intellectual disabilities.JournalofIntellectualDisabilities24(1),59–74. Walsh-Gallagher, D.,2009.TheLivedExperiencesofWomenwithDisabilities facing theChallengesofPregnancy,ChildbirthandMotherhood(2009):An Interpretative PhenomenologicalStudy’. Walsh, D.,Sinclair,M.,McConkey,R.Theambiguityofdisabledwomen’s experiences ofpregnancy,childbirthandmotherhood:aphenomenological study. Midwifery,doi10.1016/j.midw.2011.01.003,inpress. World HealthOrganisation,2001.InternationalClassificationofFunctioning, D",
year = "2013",
month = "4",
doi = "10.1016/j.midw.2011.10.007",
language = "English",
volume = "29",
pages = "294--299",
journal = "Midwifery",
issn = "0266-6138",
publisher = "Elsevier",
number = "4",

}

Normalisingbirthforwomenwithadisability:Thechallengesfacing practitioners. / Walsh-Gallagher, Dympna; Sinclair, Marlene; McConkey, Roy; Clarke, Ruth.

In: Midwifery, Vol. 29, No. 4, 04.2013, p. 294-299.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Normalisingbirthforwomenwithadisability:Thechallengesfacing practitioners

AU - Walsh-Gallagher, Dympna

AU - Sinclair, Marlene

AU - McConkey, Roy

AU - Clarke, Ruth

N1 - Reference text: Ash, A.,Fine,M.,1998.WomenwithDisabilities:EssaysinPsychology,Cultureand Politics. TempleUniversityPress,Philadelphia. Aunos, S.M.,Feldman,M.A.,2002.Attitudestowardssexuality,sterilizationand parenting rightsofpersonswithintellectualdisabilities.JournalofApplied Research inIntellectualDisabilities15,285–296. Becker, H.,Stuifberger,A.,Tinkle,M.,1997.Reproductivehealthcareexperiences of womenwithdisabilities:aqualitativestudy.JournalofPhysicalMedical Rehabilitation 78,26–33. Campion, M.J.,1990.TheBabyChallenge.AHandbookonPregnancyforWomen with aPhysicalDisability.Routledge,London. Conley-Jung, C.,Olkin,R.,2001.Motherswithvisualimpairmentsorblindness raising youngchildren.JournalofVisualImpairmentandBlindness91(1), 14–29. Culley, L.,Genders,N.,1999.Parentingbypeoplewithlearningdisabilities:the educational needsofthecommunitynurse.NurseEducationToday19, 502–508. Department ofHealth,1993.ChangingChildbirth.ReportoftheExpertMaternity Group. HMSO,London. Department ofHealth,2007.MaternityMatters:Choice,AccessandContinuityof Care inaSafeService.NHS. Disability DiscriminationAct,2005.London:HMSO. Kallianes, V.,Rubenfeld,P.,1997.Disabledwomenandreproductiverights. Disability andSociety12(2),203–221. Lee, E.K.O.,Oh,H.,2005.Awisewifeandgoodmother:reproductivehealthand maternity amongwomenwithdisabilityinSouthKorea.Sexualityand Disability 23(3),121–144. Mac Kay-Moffat,S.,2007.DisabilityinPregnancyandChildbirth.Churchill Livingstone, London. Mac Kay-Moffat,S.,Cunningham,C.,2006.Servicesforwomenwithdisabilities: mothers’ andmidwives’experiences.BritishJournalofMidwifery14(8), 472–477. Neville-Jan, A.,2004.Sellingyoursoultothedevil:anautoethnographyofpain, pleasure andthequestforachild.DisabilityandSociety19(2),113–127. Newell, P.,Burnard,P.,2006.IntroductiontoNursingResearch:Incorporating Evidence BasedPractice.BlackwellPublishing,London. Nosek, M.A.,Howland,B.A.,Rinalta,D.H.,Young,M.M.,Chanpong,M.S.,2001. National StudyofWomenwithPhysicalDisabilities:AchievingandMaintain- ing HealthandWellbeing. Prilleltensky, O.,2003.Aramptomotherhood:theexperiencesofmotherswith physical disabilities.SexualityandDisability21(1),21–47. Royal CollegeofMidwives,2000.Maternitycareforwomenwithdisabilities. Stationary Office,RCM,London. Saxton, M.,1996.Teachingproviderstobecomeourallies.In:Krotoski,D.M., Nosek, M.A.,Tuurk,M.A.(Eds.),WomenwithPhysicalDisabilities,Brookes, Baltimore. Shackle, M.,1994.IthoughtIwastheonlyone.AReportfromaConference ‘Disabled People,PregnancyandEarlyParenthood’.PartoftheMaternity Alliance WorkingGroupPack.MaternityAlliance,London. Shackleton, P.,Godard,L.,1997.Pregnancyanddisability.BirthIssues6(4),5–10. Thomas, C.,Curtis,P.,1997.Havingababy:somedisabledwomen’sreproductive experiences. Midwifery13,202–209. Toms Barker,L.T.,Maralani,V.,1997.ChallengesandStrategiesofDisabled Parents: FindingsfromaNationalSurveyofParentswithDisabilities.Berkely Planning Associates,Oakland. Tymchuk, A.J.,1999.Movingtowardsintegrationofservicesforparentswith intellectual disabilities.JournalofIntellectualDisabilities24(1),59–74. Walsh-Gallagher, D.,2009.TheLivedExperiencesofWomenwithDisabilities facing theChallengesofPregnancy,ChildbirthandMotherhood(2009):An Interpretative PhenomenologicalStudy’. Walsh, D.,Sinclair,M.,McConkey,R.Theambiguityofdisabledwomen’s experiences ofpregnancy,childbirthandmotherhood:aphenomenological study. Midwifery,doi10.1016/j.midw.2011.01.003,inpress. World HealthOrganisation,2001.InternationalClassificationofFunctioning, D

PY - 2013/4

Y1 - 2013/4

N2 - Previousresearchonpregnantwomenwithadisabilityandtheirexperienceofmaternitycaredemonstratedthatthesemothersperceivedthemselvestobethe‘perennialoutsiders’withmidwivesautomaticallycategorisingthemas‘highrisk’becauseoftheirdisability.Theyalsofeltthattheirabilityto makechoices,stayincontrolandhavecontinuityofcarewasnotconsideredtobepartofthemainstreammaternitycareforthembecausetheydidnotfitthe‘normal’category.Objective:thisresearchwasundertakentoexploretheperceptionsoftwomultiprofessionalteamsin Irishhospitalsastohowmaternityservicestothesemotherscanbeimproved.Participants:nineteenhealth-careprofessionalsfrommidwifery,socialworkandpublichealthnursingwererecruited.Setting: twofromtwomajormaternityhospitals,oneintheNorthandoneintheSouthofIreland.were featured.Design: themethodchosenwasaqualitativeapproach,usingfocusgroupinterviewsinwhichcasestudiesdepictingarangeandbreadthofwomen’sbirthingexperienceswerepresentedanddiscussed.NewellandBurnard’s(2006) six stageapproachtothematiccontentanalysiswasused.Findings:theprofessionalsfoundthedisabledwomen’sstoriesbelievable,upsettingandchallenging.Keyconclusions:Staffacknowledgedtheir‘lackofcompetence,knowledgeandskill’regardingdisabilityandfeltthat,onreflection,theirfailuretoconsultandcollaboratewithdisabledwomencontributedtotheirfailingtoprovideindividualisedwomancentredcaretowomenwithadisability.Implicationsofpractice:Aseriesofrecommendationsforimprovedpracticewasagreed.& 2011ElsevierLtd.Allrightsreserved

AB - Previousresearchonpregnantwomenwithadisabilityandtheirexperienceofmaternitycaredemonstratedthatthesemothersperceivedthemselvestobethe‘perennialoutsiders’withmidwivesautomaticallycategorisingthemas‘highrisk’becauseoftheirdisability.Theyalsofeltthattheirabilityto makechoices,stayincontrolandhavecontinuityofcarewasnotconsideredtobepartofthemainstreammaternitycareforthembecausetheydidnotfitthe‘normal’category.Objective:thisresearchwasundertakentoexploretheperceptionsoftwomultiprofessionalteamsin Irishhospitalsastohowmaternityservicestothesemotherscanbeimproved.Participants:nineteenhealth-careprofessionalsfrommidwifery,socialworkandpublichealthnursingwererecruited.Setting: twofromtwomajormaternityhospitals,oneintheNorthandoneintheSouthofIreland.were featured.Design: themethodchosenwasaqualitativeapproach,usingfocusgroupinterviewsinwhichcasestudiesdepictingarangeandbreadthofwomen’sbirthingexperienceswerepresentedanddiscussed.NewellandBurnard’s(2006) six stageapproachtothematiccontentanalysiswasused.Findings:theprofessionalsfoundthedisabledwomen’sstoriesbelievable,upsettingandchallenging.Keyconclusions:Staffacknowledgedtheir‘lackofcompetence,knowledgeandskill’regardingdisabilityandfeltthat,onreflection,theirfailuretoconsultandcollaboratewithdisabledwomencontributedtotheirfailingtoprovideindividualisedwomancentredcaretowomenwithadisability.Implicationsofpractice:Aseriesofrecommendationsforimprovedpracticewasagreed.& 2011ElsevierLtd.Allrightsreserved

U2 - 10.1016/j.midw.2011.10.007

DO - 10.1016/j.midw.2011.10.007

M3 - Article

VL - 29

SP - 294

EP - 299

JO - Midwifery

T2 - Midwifery

JF - Midwifery

SN - 0266-6138

IS - 4

ER -