METHODS OF INVOLVING DISABLED CHILDREN AND YOUNG PEOPLE IN CHILDREN’S SERVICES PLANNING

George Kernohan, Gayle Alexander Kernohan

Research output: Book/ReportCommissioned report

Abstract

There has been a discernible movement in recent years away from apaternalistic approach in the delivery of public services. Increasinglyprofessionals and users share some responsibility for decisions about theservice to be provided. The idea of partnership between professionalsand clients is encouraged as this can improve outcome, contain care costs,raise satisfaction as well as improving the quality of research. To identifypossible models of involvement of children and young people in servicesprovided by health and social care, education and the voluntary sector,seven senior executives of a variety of statutory and voluntary agencieswere interviewed by a 16 year old school-pupil using an agreed semistructuredschedule. Questions covered the services provided to childrenand young people and the associated planning process. Interviews wererecorded and transcribed for qualitative analysis. The key issuesuncovered were (a) time is needed for capacity-building; (b) a need to"get-real" (be pragmatic); (c) the public sector is not a leader in childparticipation, the voluntary sector has a more developed user-involvementapproach; (d) start with involvement in planning for individual care,before becoming strategic; (e) use advocacy as appropriate; (f) olderchildren who are frequent service users are more likely to respond thanyounger children who don’t use the system; (g) needs assessment requiresuser participation; (h) different types of condition/disability requiredifferent approaches; (i) information from routine care can informstrategy; and (j) feedback is possible by survey, suggestion box orcomplaints system. Eighteen models of potential user involvement wereidentified, including focus groups, reference /user groups, pupil council,advocacy, and independent visitor and through the process of normalprofessional practice. To gain an understanding of the process, these7models were mapped onto a user involvement scale, first described byArnstein in 1969, and then onto a two dimensional scale combining userinvolvement with communication level.Promising methods of user involvement include:a. “You tell-us, we put it all together”. Integration of existing datafrom regular case reviews, especially for children looked after by thesocial services (Arnstein step 3),b. “Helper” or an advocate especially for younger children and themore disabled young person (Arnstein step 5), andc. “You all decide” in a peer-led focus group (Arnstein step 6 or 7).By performing such multi-agency research, ideas for practicedevelopment can be found which have worked in another context. Afurther sharing of these ideas with young people is necessary in order toidentify favoured approaches to user involvement in strategic planning.
LanguageEnglish
Number of pages59
Publication statusPublished - Jun 2002

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planning
pupil
senior executive
helper
reference group
strategic planning
planning process
public service
public sector
pragmatics
Group
disability
leader
responsibility
participation
human being
communication
costs
interview
health

Keywords

  • Children Services Planning

Cite this

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keywords = "Children Services Planning",
author = "George Kernohan and Kernohan, {Gayle Alexander}",
note = "Reference text: Arnstein, S.R. (1969) A Ladder of Citizen Participation, Journal of the American Institute of Planners. 35 (4) 216-24. Beresford, P., Croft, S, (1993) Citizen involvement, Basingstoke; Macmillan. Department of Health (1997) The new NHS modern. Dependable, London; HMSO. Department of Health, Social Services and Public Safety (2000) Investing for Health, Belfast; HMSO. Department of Health, Social Services and Public Safety (2000) Building the Way Forward in Primary Care, Belfast; HMSO. Educable (2000) No Choice: No Chance. Belfast: Save the Children. Foley, P., Roche, J., Tucker, S. (eds.) (2001) Children in Society, Comtemporary Theory, Policy and Practice. Palgrave, Basingstoke. France, A. (2000) Youth researching youth: The Triumph and Success peer research project. National Youth Agency. Horgan G., Sinclair, R. Planning for Children in Care in Northern Ireland. National Children’ s Bureau Enterprises, London. Keeble, M. (2000) “ Just Do It!” A Directory of examples of service user involvement in supported housing. The Housing Corporation, London. NSPCC Consultancy Services (2000) Review of Services for Children with a Disability. Southern Health & Social Services Board, Armagh. Obeid, A. (2000) Perceptions of user participation in health care. JCN, 14 (4). O’Brien, J. (1987) Learning from Citizen Advocacy Programs, Georgia, USA, Georgia Advocacy Office. Office of the First Minister and Deputy First Minister (2001) Guide to Consultation Methods for Northern Ireland Public Authorities, Belfast; HMSO. Parahoo, A.K. (1997) Nursing Research- Principles, Process and Issues. Macmillan, London, Ryan, M. (1999) The Children Act 1989: Putting it into Practice (2nd ed.). Ashgate, Aldershot. Southern Health and Social Services Board (1993) User Participation Policy. Armagh. Various (1999) Embracing patient partnerships Br Med J 319 (7212). http://www.bmj.com/content/vol319/issue7212/ World Health Organization (1978). Primary Health Care: international conference on primary health care, Alma Atla, USSR. World Health Organisation in conjunction with United Nations Children’ s Fund. http://www.who.int/home-page/",
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METHODS OF INVOLVING DISABLED CHILDREN AND YOUNG PEOPLE IN CHILDREN’S SERVICES PLANNING. / Kernohan, George; Kernohan, Gayle Alexander.

2002. 59 p.

Research output: Book/ReportCommissioned report

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AB - There has been a discernible movement in recent years away from apaternalistic approach in the delivery of public services. Increasinglyprofessionals and users share some responsibility for decisions about theservice to be provided. The idea of partnership between professionalsand clients is encouraged as this can improve outcome, contain care costs,raise satisfaction as well as improving the quality of research. To identifypossible models of involvement of children and young people in servicesprovided by health and social care, education and the voluntary sector,seven senior executives of a variety of statutory and voluntary agencieswere interviewed by a 16 year old school-pupil using an agreed semistructuredschedule. Questions covered the services provided to childrenand young people and the associated planning process. Interviews wererecorded and transcribed for qualitative analysis. The key issuesuncovered were (a) time is needed for capacity-building; (b) a need to"get-real" (be pragmatic); (c) the public sector is not a leader in childparticipation, the voluntary sector has a more developed user-involvementapproach; (d) start with involvement in planning for individual care,before becoming strategic; (e) use advocacy as appropriate; (f) olderchildren who are frequent service users are more likely to respond thanyounger children who don’t use the system; (g) needs assessment requiresuser participation; (h) different types of condition/disability requiredifferent approaches; (i) information from routine care can informstrategy; and (j) feedback is possible by survey, suggestion box orcomplaints system. Eighteen models of potential user involvement wereidentified, including focus groups, reference /user groups, pupil council,advocacy, and independent visitor and through the process of normalprofessional practice. To gain an understanding of the process, these7models were mapped onto a user involvement scale, first described byArnstein in 1969, and then onto a two dimensional scale combining userinvolvement with communication level.Promising methods of user involvement include:a. “You tell-us, we put it all together”. Integration of existing datafrom regular case reviews, especially for children looked after by thesocial services (Arnstein step 3),b. “Helper” or an advocate especially for younger children and themore disabled young person (Arnstein step 5), andc. “You all decide” in a peer-led focus group (Arnstein step 6 or 7).By performing such multi-agency research, ideas for practicedevelopment can be found which have worked in another context. Afurther sharing of these ideas with young people is necessary in order toidentify favoured approaches to user involvement in strategic planning.

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