Inequalities in respite service provision: Insights from a national, longitudinal study of people with intellectual disabilities

Roy McConkey, F Kelly, H Mannan, S Craig

    Research output: Contribution to journalArticle

    15 Citations (Scopus)

    Abstract

    Background Respite or short breaks are frequently soughtby parents and demand for them usually exceeds theiravailability.Methods Using data from a national database in Irelandof around 16 000 persons living with family carers, theavailability of overnight respite provision was monitoredover an 8-year period along with the recordedneeds for such services.Results Despite marked rises in the number of peoplereceiving respite breaks resulting from increased governmentfunding, there were marked inequalities in theavailability of provision across the country. In recentyears the inequalities decreased but still remained. Theproportion of families requiring breaks also rose and asimilar pattern of inequalities were found here too. Onlya small proportion of families who had a recorded needin 1999 were receiving respite services 8 years later andover one third had a continuing need recorded.Conclusion This study highlighted some of the complexitiesin reducing inequalities in the provision of respiteservices and in identifying the need for them. It wouldbe advantageous to develop more explicit criteriaregarding the need for respite provision and to recordthe family’s preferences for the form this provisionmight take. These adjustments would add to the valueof any national database as a service planning tool.
    LanguageEnglish
    Pages85-94
    JournalJournal of Applied Research in Intellectual Disabilities
    Volume23
    DOIs
    Publication statusPublished - 1 Mar 2010

    Fingerprint

    Disabled Persons
    Intellectual Disability
    Longitudinal Studies
    longitudinal study
    disability
    Databases
    Social Adjustment
    Caregivers
    parents
    Parents
    planning
    human being
    demand

    Keywords

    • family carers
    • inequality
    • intellectual disability
    • Ireland
    • respite
    • short breaks

    Cite this

    @article{0509cedd7f3245b3a5e1f7aeafbadbf0,
    title = "Inequalities in respite service provision: Insights from a national, longitudinal study of people with intellectual disabilities",
    abstract = "Background Respite or short breaks are frequently soughtby parents and demand for them usually exceeds theiravailability.Methods Using data from a national database in Irelandof around 16 000 persons living with family carers, theavailability of overnight respite provision was monitoredover an 8-year period along with the recordedneeds for such services.Results Despite marked rises in the number of peoplereceiving respite breaks resulting from increased governmentfunding, there were marked inequalities in theavailability of provision across the country. In recentyears the inequalities decreased but still remained. Theproportion of families requiring breaks also rose and asimilar pattern of inequalities were found here too. Onlya small proportion of families who had a recorded needin 1999 were receiving respite services 8 years later andover one third had a continuing need recorded.Conclusion This study highlighted some of the complexitiesin reducing inequalities in the provision of respiteservices and in identifying the need for them. It wouldbe advantageous to develop more explicit criteriaregarding the need for respite provision and to recordthe family’s preferences for the form this provisionmight take. These adjustments would add to the valueof any national database as a service planning tool.",
    keywords = "family carers, inequality, intellectual disability, Ireland, respite, short breaks",
    author = "Roy McConkey and F Kelly and H Mannan and S Craig",
    year = "2010",
    month = "3",
    day = "1",
    doi = "10.1111/j.1468-3148.2009.00547.x",
    language = "English",
    volume = "23",
    pages = "85--94",
    journal = "Journal of Applied Research in Intellectual Disabilities",
    issn = "1360-2322",

    }

    Inequalities in respite service provision: Insights from a national, longitudinal study of people with intellectual disabilities. / McConkey, Roy; Kelly, F; Mannan, H; Craig, S.

    In: Journal of Applied Research in Intellectual Disabilities, Vol. 23, 01.03.2010, p. 85-94.

    Research output: Contribution to journalArticle

    TY - JOUR

    T1 - Inequalities in respite service provision: Insights from a national, longitudinal study of people with intellectual disabilities

    AU - McConkey, Roy

    AU - Kelly, F

    AU - Mannan, H

    AU - Craig, S

    PY - 2010/3/1

    Y1 - 2010/3/1

    N2 - Background Respite or short breaks are frequently soughtby parents and demand for them usually exceeds theiravailability.Methods Using data from a national database in Irelandof around 16 000 persons living with family carers, theavailability of overnight respite provision was monitoredover an 8-year period along with the recordedneeds for such services.Results Despite marked rises in the number of peoplereceiving respite breaks resulting from increased governmentfunding, there were marked inequalities in theavailability of provision across the country. In recentyears the inequalities decreased but still remained. Theproportion of families requiring breaks also rose and asimilar pattern of inequalities were found here too. Onlya small proportion of families who had a recorded needin 1999 were receiving respite services 8 years later andover one third had a continuing need recorded.Conclusion This study highlighted some of the complexitiesin reducing inequalities in the provision of respiteservices and in identifying the need for them. It wouldbe advantageous to develop more explicit criteriaregarding the need for respite provision and to recordthe family’s preferences for the form this provisionmight take. These adjustments would add to the valueof any national database as a service planning tool.

    AB - Background Respite or short breaks are frequently soughtby parents and demand for them usually exceeds theiravailability.Methods Using data from a national database in Irelandof around 16 000 persons living with family carers, theavailability of overnight respite provision was monitoredover an 8-year period along with the recordedneeds for such services.Results Despite marked rises in the number of peoplereceiving respite breaks resulting from increased governmentfunding, there were marked inequalities in theavailability of provision across the country. In recentyears the inequalities decreased but still remained. Theproportion of families requiring breaks also rose and asimilar pattern of inequalities were found here too. Onlya small proportion of families who had a recorded needin 1999 were receiving respite services 8 years later andover one third had a continuing need recorded.Conclusion This study highlighted some of the complexitiesin reducing inequalities in the provision of respiteservices and in identifying the need for them. It wouldbe advantageous to develop more explicit criteriaregarding the need for respite provision and to recordthe family’s preferences for the form this provisionmight take. These adjustments would add to the valueof any national database as a service planning tool.

    KW - family carers

    KW - inequality

    KW - intellectual disability

    KW - Ireland

    KW - respite

    KW - short breaks

    U2 - 10.1111/j.1468-3148.2009.00547.x

    DO - 10.1111/j.1468-3148.2009.00547.x

    M3 - Article

    VL - 23

    SP - 85

    EP - 94

    JO - Journal of Applied Research in Intellectual Disabilities

    T2 - Journal of Applied Research in Intellectual Disabilities

    JF - Journal of Applied Research in Intellectual Disabilities

    SN - 1360-2322

    ER -