Individual specific reminiscence in dementiaCommissioned Research – Dementia Care

Rationale The focus of this study is individual specific, home-based reminiscence which will address many of the limitations identified in previous studies (Upton et al. 2011; Subramaniam & Woods 2012; Woods et al. 2012) in relation to use of reminiscence in dementia. AimThe aim of this study is to develop and assess the feasibility of individual specific reminiscence activity facilitated through the use of bespoke software (InspireD) among people with dementia and their family carers. The objectives are:1. to identify and refine the specification for the software (InspireD) and its application to tablet devices;2. to test the usability of the revised system; 3. to examine the impact of facilitated reminiscence activity on the person with dementia and their family carer using a range of outcome measures;4. to explore users’ views on InspireD;5. to enhance independence and quality of life; 6. to incorporate a health economic component which will inform the design of a potential future cost-effectiveness analysis from a societal perspective alongside an RCT. Study Design and MethodsA user centred design process philosophy will guide the development of InspireD. Then a quasi-experimental study incorporating a paired sample (person with dementia and his/her carer), with repeated measures design will be conducted. Phase 1 - will identify and refine the specification for the software. Phase 2 – reminiscence training, and training in use of InspireD will be rolled out across the study site. Participants will use InspireD at home, with testing pre-intervention, and comparison of outcomes at specified time points after implementation. Phase 3 - one-to-one interviews with a sample of participants.Sample The intention is to recruit a total of 60 individuals: 30 dyads (person with dementia and their carer). The sample will be recruited from the Western Health and Social Care Trust catchment area which has approximately 1830 people on its primary care dementia register. Timescale for study The study is designed to be completed within two years. Year 1 will focus on refinement and testing whereas Year 2 will focus on delivery and measurement of outcomes. Plan for dissemination A website will enable us to create a central hub for sharing aspects of the project with interested stakeholders. Anticipated publications and conferences presentations will focus on the technology development, methodology and findings from the quasi-experimental study. It is anticipated that the results will be valuable in extending the body of knowledge in relation to reminiscence work for people with dementia and their carers.