Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study

Kirsten J Moore, Bridget Candy, Sarah Davis, Anna Gola, Jane Harrington, Nuriye Kupeli, Victoria Vickerstaff, Michael King, Gerard Leavey, Irwin Nazareth, Rumana Z Omar, Louise Jones, Elizabeth L Sampson

    Research output: Contribution to journalArticle

    9 Citations (Scopus)

    Abstract

    Background Many people with dementia die in nursing homes, but quality of care may be suboptimal. We developed the theory-driven ‘Compassion Intervention’ to enhance end-of-life care in advanced dementia.Objectives To (1) understand how the Intervention operated in nursing homes in different health economies; (2) collect preliminary outcome data and costs of an interdisciplinary care leader (ICL) to facilitate the Intervention; (3) check the Intervention caused no harm. Design A naturalistic feasibility study of Interventionimplementation for 6 months. Settings Two nursing homes in northern London, UK. Participants Thirty residents with advanced dementia were assessed of whom nine were recruited for data collection; four of these residents’ family members were interviewed. Twenty-eight nursing home and external healthcare professionals participated in interviews at 7 (n=19), 11 (n=19) and 15 months (n=10). Intervention An ICL led two core Intervention components: (1) integrated, interdisciplinary assessment and care; (2)education and support for paid and family carers. Data collected Process and outcome data were collected.Symptoms were recorded monthly for recruited residents.Semistructured interviews were conducted at 7, 11 and 15months with nursing home staff and external healthcareprofessionals and at 7months with family carers. ICLhours were costed using Department of Health and HealthEducation England tariffs.Results Contextual differences were identified betweensites: nursing home 2 had lower involvement withexternal healthcare services. Core components wereimplemented at both sites but multidisciplinary meetingswere only established in nursing home 1. The Interventionprompted improvements in advance care planning, painmanagement and person-centred care; we observed noharm. Six-month ICL costs were £18 255.Conclusions Implementation was feasible to differingdegrees across sites, dependent on context. Our data informfuture testing to identify the Intervention’s effectiveness inimproving end-of-life care in advanced dementia.
    LanguageEnglish
    Pages1-15
    JournalBMJ Open
    Volume7
    Issue number6
    Early online date10 Jul 2017
    DOIs
    Publication statusE-pub ahead of print - 10 Jul 2017

    Fingerprint

    Feasibility Studies
    Nursing Homes
    Dementia
    Terminal Care
    Costs and Cost Analysis
    Caregivers
    Advance Care Planning
    Interviews
    Delivery of Health Care
    Quality of Health Care
    Nursing Staff
    Health
    Home Care Services
    England
    Education

    Keywords

    • Implementing the compassion intervention
    • a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study

    Cite this

    Moore, Kirsten J ; Candy, Bridget ; Davis, Sarah ; Gola, Anna ; Harrington, Jane ; Kupeli, Nuriye ; Vickerstaff, Victoria ; King, Michael ; Leavey, Gerard ; Nazareth, Irwin ; Omar, Rumana Z ; Jones, Louise ; Sampson, Elizabeth L. / Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study. In: BMJ Open. 2017 ; Vol. 7, No. 6. pp. 1-15.
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    abstract = "Background Many people with dementia die in nursing homes, but quality of care may be suboptimal. We developed the theory-driven ‘Compassion Intervention’ to enhance end-of-life care in advanced dementia.Objectives To (1) understand how the Intervention operated in nursing homes in different health economies; (2) collect preliminary outcome data and costs of an interdisciplinary care leader (ICL) to facilitate the Intervention; (3) check the Intervention caused no harm. Design A naturalistic feasibility study of Interventionimplementation for 6 months. Settings Two nursing homes in northern London, UK. Participants Thirty residents with advanced dementia were assessed of whom nine were recruited for data collection; four of these residents’ family members were interviewed. Twenty-eight nursing home and external healthcare professionals participated in interviews at 7 (n=19), 11 (n=19) and 15 months (n=10). Intervention An ICL led two core Intervention components: (1) integrated, interdisciplinary assessment and care; (2)education and support for paid and family carers. Data collected Process and outcome data were collected.Symptoms were recorded monthly for recruited residents.Semistructured interviews were conducted at 7, 11 and 15months with nursing home staff and external healthcareprofessionals and at 7months with family carers. ICLhours were costed using Department of Health and HealthEducation England tariffs.Results Contextual differences were identified betweensites: nursing home 2 had lower involvement withexternal healthcare services. Core components wereimplemented at both sites but multidisciplinary meetingswere only established in nursing home 1. The Interventionprompted improvements in advance care planning, painmanagement and person-centred care; we observed noharm. Six-month ICL costs were £18 255.Conclusions Implementation was feasible to differingdegrees across sites, dependent on context. Our data informfuture testing to identify the Intervention’s effectiveness inimproving end-of-life care in advanced dementia.",
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    author = "Moore, {Kirsten J} and Bridget Candy and Sarah Davis and Anna Gola and Jane Harrington and Nuriye Kupeli and Victoria Vickerstaff and Michael King and Gerard Leavey and Irwin Nazareth and Omar, {Rumana Z} and Louise Jones and Sampson, {Elizabeth L}",
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    Moore, KJ, Candy, B, Davis, S, Gola, A, Harrington, J, Kupeli, N, Vickerstaff, V, King, M, Leavey, G, Nazareth, I, Omar, RZ, Jones, L & Sampson, EL 2017, 'Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study', BMJ Open, vol. 7, no. 6, pp. 1-15. https://doi.org/10.1136/bmjopen-2016-015515

    Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study. / Moore, Kirsten J; Candy, Bridget; Davis, Sarah; Gola, Anna; Harrington, Jane; Kupeli, Nuriye; Vickerstaff, Victoria; King, Michael; Leavey, Gerard; Nazareth, Irwin; Omar, Rumana Z; Jones, Louise; Sampson, Elizabeth L.

    In: BMJ Open, Vol. 7, No. 6, 10.07.2017, p. 1-15.

    Research output: Contribution to journalArticle

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    AU - Moore, Kirsten J

    AU - Candy, Bridget

    AU - Davis, Sarah

    AU - Gola, Anna

    AU - Harrington, Jane

    AU - Kupeli, Nuriye

    AU - Vickerstaff, Victoria

    AU - King, Michael

    AU - Leavey, Gerard

    AU - Nazareth, Irwin

    AU - Omar, Rumana Z

    AU - Jones, Louise

    AU - Sampson, Elizabeth L

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    N2 - Background Many people with dementia die in nursing homes, but quality of care may be suboptimal. We developed the theory-driven ‘Compassion Intervention’ to enhance end-of-life care in advanced dementia.Objectives To (1) understand how the Intervention operated in nursing homes in different health economies; (2) collect preliminary outcome data and costs of an interdisciplinary care leader (ICL) to facilitate the Intervention; (3) check the Intervention caused no harm. Design A naturalistic feasibility study of Interventionimplementation for 6 months. Settings Two nursing homes in northern London, UK. Participants Thirty residents with advanced dementia were assessed of whom nine were recruited for data collection; four of these residents’ family members were interviewed. Twenty-eight nursing home and external healthcare professionals participated in interviews at 7 (n=19), 11 (n=19) and 15 months (n=10). Intervention An ICL led two core Intervention components: (1) integrated, interdisciplinary assessment and care; (2)education and support for paid and family carers. Data collected Process and outcome data were collected.Symptoms were recorded monthly for recruited residents.Semistructured interviews were conducted at 7, 11 and 15months with nursing home staff and external healthcareprofessionals and at 7months with family carers. ICLhours were costed using Department of Health and HealthEducation England tariffs.Results Contextual differences were identified betweensites: nursing home 2 had lower involvement withexternal healthcare services. Core components wereimplemented at both sites but multidisciplinary meetingswere only established in nursing home 1. The Interventionprompted improvements in advance care planning, painmanagement and person-centred care; we observed noharm. Six-month ICL costs were £18 255.Conclusions Implementation was feasible to differingdegrees across sites, dependent on context. Our data informfuture testing to identify the Intervention’s effectiveness inimproving end-of-life care in advanced dementia.

    AB - Background Many people with dementia die in nursing homes, but quality of care may be suboptimal. We developed the theory-driven ‘Compassion Intervention’ to enhance end-of-life care in advanced dementia.Objectives To (1) understand how the Intervention operated in nursing homes in different health economies; (2) collect preliminary outcome data and costs of an interdisciplinary care leader (ICL) to facilitate the Intervention; (3) check the Intervention caused no harm. Design A naturalistic feasibility study of Interventionimplementation for 6 months. Settings Two nursing homes in northern London, UK. Participants Thirty residents with advanced dementia were assessed of whom nine were recruited for data collection; four of these residents’ family members were interviewed. Twenty-eight nursing home and external healthcare professionals participated in interviews at 7 (n=19), 11 (n=19) and 15 months (n=10). Intervention An ICL led two core Intervention components: (1) integrated, interdisciplinary assessment and care; (2)education and support for paid and family carers. Data collected Process and outcome data were collected.Symptoms were recorded monthly for recruited residents.Semistructured interviews were conducted at 7, 11 and 15months with nursing home staff and external healthcareprofessionals and at 7months with family carers. ICLhours were costed using Department of Health and HealthEducation England tariffs.Results Contextual differences were identified betweensites: nursing home 2 had lower involvement withexternal healthcare services. Core components wereimplemented at both sites but multidisciplinary meetingswere only established in nursing home 1. The Interventionprompted improvements in advance care planning, painmanagement and person-centred care; we observed noharm. Six-month ICL costs were £18 255.Conclusions Implementation was feasible to differingdegrees across sites, dependent on context. Our data informfuture testing to identify the Intervention’s effectiveness inimproving end-of-life care in advanced dementia.

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