'I have to live with the decisions I make': laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses

Myra Bluebond-Langner, Darren Hargrave, Ellen M Henderson, Richard Langner

Research output: Contribution to journalReview articlepeer-review

20 Citations (Scopus)

Abstract

The relationship between parents and clinician is critical to the care and treatment of children with life-limiting conditions (LLCs) and life-threatening illnesses (LTIs). This relationship is built and maintained largely in consultations. In this article we lay out factors that bear on the success of clinical consultations and the maintenance of the essential clinician-parent relationship at progression or deterioration of LLCs or LTIs. We suggest an approach to engaging parents in conversations about care and treatment that recognises and appreciates the dilemmas which clinicians and parents face and in so doing provides a way for everyone to live with the decisions that are made. A close analysis of a consultation at progression and excerpts of encounters among parents, clinician and researcher are used to illustrate our approach to research, analysis and development of recommendations for clinical practice.

Original languageEnglish
Pages (from-to)468-471
Number of pages4
JournalArchives of disease in childhood
Volume102
Issue number5
Early online date5 Dec 2016
DOIs
Publication statusPublished - 19 Apr 2017

Keywords

  • Attitude to Health
  • Brain Stem Neoplasms/therapy
  • Child
  • Clinical Decision-Making
  • Critical Illness/therapy
  • Female
  • Glioma/therapy
  • Humans
  • Palliative Care/methods
  • Parents/psychology
  • Professional-Family Relations
  • Truth Disclosure

Fingerprint

Dive into the research topics of ''I have to live with the decisions I make': laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses'. Together they form a unique fingerprint.

Cite this