Generic, disease specific and individualised approaches to measuring quality of life in people with heart disease

Mary M. Boyd, M Donnelly, Donna Fitzsimons

Research output: Contribution to journalArticle

13 Citations (Scopus)

Abstract

Increasing emphasis is being placed on the evaluation of health-related quality of life. However, there is no consensus on the definition of this concept and as a result there are a plethora of existing measurement instruments. Head-to-head comparisons of the psychometric properties of existing instruments are necessary to facilitate evidence-based decisions about which instrument should be chosen for routine use. Therefore, an individualised instrument (the modified Patient Generated Index (PGI)), a generic instrument (the Short Form 36) and a disease-specific instrument (the Quality of Life after Myocardial Infarction questionnaire) were administered to patients with ischaemic heart disease ( n = 117) and the evidence for the validity, reliability and sensitivity of each instrument was examined and compared. The modified PGI compared favourably with the other instruments but none of the instruments examined provided sound evidence for sensitivity to change. Therefore, any recommendation for the use of the individualised approach in the routine collection of health-related quality of life data in clinical practice must be conditional upon the submission of further evidence to support the sensitivity of such instruments.
LanguageEnglish
Pages447-457
JournalPsychology and Health
Volume17
Issue number4
DOIs
Publication statusPublished - 2002

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Heart Diseases
Quality of Life
Psychometrics
Reproducibility of Results
Myocardial Ischemia
Consensus
Myocardial Infarction
Surveys and Questionnaires

Cite this

@article{3e4ebc8e44f341379d13538c9e7afa37,
title = "Generic, disease specific and individualised approaches to measuring quality of life in people with heart disease",
abstract = "Increasing emphasis is being placed on the evaluation of health-related quality of life. However, there is no consensus on the definition of this concept and as a result there are a plethora of existing measurement instruments. Head-to-head comparisons of the psychometric properties of existing instruments are necessary to facilitate evidence-based decisions about which instrument should be chosen for routine use. Therefore, an individualised instrument (the modified Patient Generated Index (PGI)), a generic instrument (the Short Form 36) and a disease-specific instrument (the Quality of Life after Myocardial Infarction questionnaire) were administered to patients with ischaemic heart disease ( n = 117) and the evidence for the validity, reliability and sensitivity of each instrument was examined and compared. The modified PGI compared favourably with the other instruments but none of the instruments examined provided sound evidence for sensitivity to change. Therefore, any recommendation for the use of the individualised approach in the routine collection of health-related quality of life data in clinical practice must be conditional upon the submission of further evidence to support the sensitivity of such instruments.",
author = "Boyd, {Mary M.} and M Donnelly and Donna Fitzsimons",
note = "Reference text: Aron, A. and Aron, E.N. (1999). Statistics For Psychology, 2nd Edn. Prentice-Hall, London. Brazier, J.E., Harper, R., Jones, N.M.B., O’Cathain, A., Thomas, K.J., Usherwood, T. and Westlake, L. (1992). Validating the SF-36 health survey questionnaire: new outcome measure for primary care. British Medical Journal, 305, 160–164. COMPARING QoL INSTRUMENTS AMONG CARDIAC PATIENTS 455 Downloaded by [University of Ulster at Coleraine] at 02:13 20 March 2013 Billing, E., Hjemdahl, P. and Rehnqvist, N. (1997). Psychosocial variables in female vs male patients with stable angina pectoris and matched healthy controls. European Heart Journal, 18, 911–918. Campbell, N.C., Thain, J., Deans, H.G., Ritchie, L.D., Rawles, J.M. and Squair, J.L. (1998). Secondary prevention clinics for coronary heart disease: randomised trial of effect on health. British Medical Journal, 316, 1434–1437. Cupples, M., McKnight, A., O’Neill, C. and Normand, C. (1996). The effect of personal health education on the quality of life of patients with angina in general practice. Health Education Journal, 55, 75–83. Dempster, M., Bradley, J., Wallace, E. and McCoy, P. (1997). Measuring quality of life in cardiac rehabilitation: comparing the short form 36 and the Nottingham health profile. Coronary Health Care, 1, 211–217. Dempster, M. and Donnelly, M. (2000a). Measuring the health-related quality of life of people with ischaemic heart disease. Heart, 83, 641–644 . Dempster, M. and Donnelly, M. (2000b). How well do elderly people complete individualised quality of life measures: anexplorato ry study. Quality of Life Research, 9, 369–375. Duquette, R.L., Dupuis, G. and Perrault, J. (1994). A new approach for quality of life assessment in cardiac patients: rationale and validation of the quality of life systemic inventory. Canadian Journal of Cardiology, 10, 106–112. Fekkes, M., Kamphuis, R.P., Ottenkamp, J., Verrips, E., Vogels, T., Kamphuis, M. and Verloove-Vanhorick, S.P. (2001). Health-related quality of life in young adults with minor congenital heart disease. Psychology and Health, 16, 239–250. Ferrans, C.E. and Powers, M.J. (1985). Quality of Life Index: development and psychometric properties. Advances in Nursing Science, 8, 15–24. Fife-Schaw, C. (2000). Levels of measurement. In: Breakwell, G.M. Hammond, S. and Fife-Schaw, C. (Eds.)., Research Methods in Psychology, 2nd Edn. Sage, London. Fitzpatrick, R. (2000). Measurement issues in health-related quality of life: Challenges for health psychology. Psychology and Health, 15, 99–108. Garratt, A.M., Ruta, D.A., Abdalla, M.I. and Russell, I.T. (1994). SF-36 health survey questionnaire: II. Responsiveness to changes in health status in four common clinical conditions. Quality in Health Care, 3, 186–192. Guyatt, G.H., Nogradi, S., Halcrow, S., Singer, J., Sullivan, M.J. and Fallen, E.L. (1989). Development and testing of a new measure of health status for clinical trials in heart failure. Journal of General Internal Medicine, 4, 102–107. Herd, R.M., Tidman, M.J., Ruta, D.A. and Hunter, J.A. (1997). Measurement of quality of life in atopic dermatitis: correlation and validation of two different methods. British Journal of Dermatology, 136, 502–507. Hillers, T.K., Guyatt, G.H., Oldridge, N., Crowe, J., Willan, A., Griffith, L. and Feeny, D. (1994). Quality of life after myocardial infarction. Journal of Clinical Epidemiology, 47, 1287–1296. Jenkinson, C., Stradling, J. and Petersen, S. (1998). How should we evaluate health status? A comparison of three methods in patients presenting with obstructive sleep apnoea. Quality of Life Research, 7, 95–100. Jette, D.U. and Downing, J. (1994). Health status of individuals entering a cardiac rehabilitation program as measured by the Medical Outcomes Study 36 item short form survey. Physical Therapy, 74, 521–527. Kee, F., McDonald, P. and Gaffney, B. (1997). Risks and benefits of coronary angioplasty: the patient’s perspective: a preliminary study. Quality in Health Care, 6, 131–139. Labovitz, S. (1971). In defense of assigning numbers to ranks. American Sociological Review, 36, 521–522. Lim, L.L-Y., Valenti, L.A., Knapp, J.C., Dobson, A.J., Plotnikoff, R., Higginbotham, N. and Heller, R.F. (1993). A self administered quality of life questionnaire after acute myocardial infarction. Journal of Clinical Epidemiology, 46, 1249–1256. Lukkarinen, H. and Hentinen, M. (1997). Assessment of quality of life with the Nottingham Health Profile among patients with coronary heart disease. Journal of Advanced Nursing, 26, 73–84. Macduff, C. and Russell, E. (1998). The problem of measuring change in individual health-related quality of life by postal questionnaire: use of the patient-generated index in a disabled population. Quality of Life Research, 7, 761–769. Marquis, P., Fayol, C., Joire, J.E. and Leple`ge, A. (1995). Psychometric properties of a specific quality of life questionnaire in angina pectoris patients. Quality of Life Research, 4, 540–546. O’Boyle, C.A., Browne, J., Hickey, A., McGee, H.M., and Joyce, C.R.B. (1993). Schedule for the Evaluation of Individual Quality of Life (SEIQoL): A Direct Weighting Procedure for Quality of Life Domains (SEIQoLDW) Administration Manual. Department of Psychology, Royal College of Surgeons in Ireland, Dublin. O’Boyle, C.A., McGee, H., Hickey, A., O’Malley, K. and Joyce, C.R.B. (1992). Individual quality of life in patients undergoing hip replacement. Lancet, 339, 1088–1091. O’Keeffe, S.T., Lye, M., Donnellan, C. and Carmichael, D.N. (1998). Reproducibility and responsiveness of quality of life assessment and six minute walk test in elderly heart failure patients. Heart, 80, 377–382. Papadantonaki, A., Stotts, N.A. and Paul, S.M. (1994). Comparison of quality of life before and after coronary artery bypass surgery and percutaneous transluminal angioplasty. Heart and Lung, 23, 45–52. 456 M. DEMPSTER et al. Downloaded by [University of Ulster at Coleraine] at 02:13 20 March 2013 Pearlman, R.A. and Uhlmann, R.F. (1988). Quality of life in chronic diseases – perceptions of elderly patients. Journal of Gerontology, 43, M25–M30. Ruta, D.A., Garratt, A.M., Leng, M., Russell, I.T. and MacDonald, L.M. (1994). A new approach to the measurement of quality of life: the Patient Generated Index. Medical Care, 32, 1109–1126. Smith, H.J., Taylor, R. and Mitchell, A. (2000). A comparison of four quality of life instruments in cardiac patients: SF-36, QLI, QLMI, and SEIQoL. Heart, 84, 390–394. Staples, P. and Jeffrey, J. (1997). Quality of life, hope, and uncertainty of cardiac patients and their spouses before coronary artery bypass surgery. Canadian Journal of Cardiovascular Nursing, 8, 7–16. Tullis, D.E. and Guyatt, G.H. (1995). Quality of life in cystic fibrosis. Pharmacoeconomics, 8, 23–33. Valenti, L., Lim, L., Heller, R.F. and Knapp, J. (1996). An improved questionnaire for assessing quality of life after acute myocardial infarction. Quality of Life Research, 5, 151–161. Ware, J.E., Snow, K.K., Kosinski, M.K. and Gandek, B. (1993). SF-36 Health Survey Manual and Interpretation Guide. The Health Institute, New England Medical Center, Boston. World Health Organization. (1958). The First Ten Years of the World Health Organization. World Health Organization, Geneva. COMPARING QoL INSTRUMENTS AMONG CARDIAC PATIENTS 457 Downloaded",
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Generic, disease specific and individualised approaches to measuring quality of life in people with heart disease. / Boyd, Mary M.; Donnelly, M; Fitzsimons, Donna.

In: Psychology and Health, Vol. 17, No. 4, 2002, p. 447-457.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Generic, disease specific and individualised approaches to measuring quality of life in people with heart disease

AU - Boyd, Mary M.

AU - Donnelly, M

AU - Fitzsimons, Donna

N1 - Reference text: Aron, A. and Aron, E.N. (1999). Statistics For Psychology, 2nd Edn. Prentice-Hall, London. Brazier, J.E., Harper, R., Jones, N.M.B., O’Cathain, A., Thomas, K.J., Usherwood, T. and Westlake, L. (1992). Validating the SF-36 health survey questionnaire: new outcome measure for primary care. British Medical Journal, 305, 160–164. COMPARING QoL INSTRUMENTS AMONG CARDIAC PATIENTS 455 Downloaded by [University of Ulster at Coleraine] at 02:13 20 March 2013 Billing, E., Hjemdahl, P. and Rehnqvist, N. (1997). Psychosocial variables in female vs male patients with stable angina pectoris and matched healthy controls. European Heart Journal, 18, 911–918. Campbell, N.C., Thain, J., Deans, H.G., Ritchie, L.D., Rawles, J.M. and Squair, J.L. (1998). Secondary prevention clinics for coronary heart disease: randomised trial of effect on health. British Medical Journal, 316, 1434–1437. Cupples, M., McKnight, A., O’Neill, C. and Normand, C. (1996). The effect of personal health education on the quality of life of patients with angina in general practice. Health Education Journal, 55, 75–83. Dempster, M., Bradley, J., Wallace, E. and McCoy, P. (1997). Measuring quality of life in cardiac rehabilitation: comparing the short form 36 and the Nottingham health profile. Coronary Health Care, 1, 211–217. Dempster, M. and Donnelly, M. (2000a). Measuring the health-related quality of life of people with ischaemic heart disease. Heart, 83, 641–644 . Dempster, M. and Donnelly, M. (2000b). How well do elderly people complete individualised quality of life measures: anexplorato ry study. Quality of Life Research, 9, 369–375. Duquette, R.L., Dupuis, G. and Perrault, J. (1994). A new approach for quality of life assessment in cardiac patients: rationale and validation of the quality of life systemic inventory. Canadian Journal of Cardiology, 10, 106–112. Fekkes, M., Kamphuis, R.P., Ottenkamp, J., Verrips, E., Vogels, T., Kamphuis, M. and Verloove-Vanhorick, S.P. (2001). Health-related quality of life in young adults with minor congenital heart disease. Psychology and Health, 16, 239–250. Ferrans, C.E. and Powers, M.J. (1985). Quality of Life Index: development and psychometric properties. Advances in Nursing Science, 8, 15–24. Fife-Schaw, C. (2000). Levels of measurement. In: Breakwell, G.M. Hammond, S. and Fife-Schaw, C. (Eds.)., Research Methods in Psychology, 2nd Edn. Sage, London. Fitzpatrick, R. (2000). Measurement issues in health-related quality of life: Challenges for health psychology. Psychology and Health, 15, 99–108. Garratt, A.M., Ruta, D.A., Abdalla, M.I. and Russell, I.T. (1994). SF-36 health survey questionnaire: II. Responsiveness to changes in health status in four common clinical conditions. Quality in Health Care, 3, 186–192. Guyatt, G.H., Nogradi, S., Halcrow, S., Singer, J., Sullivan, M.J. and Fallen, E.L. (1989). Development and testing of a new measure of health status for clinical trials in heart failure. Journal of General Internal Medicine, 4, 102–107. Herd, R.M., Tidman, M.J., Ruta, D.A. and Hunter, J.A. (1997). Measurement of quality of life in atopic dermatitis: correlation and validation of two different methods. British Journal of Dermatology, 136, 502–507. Hillers, T.K., Guyatt, G.H., Oldridge, N., Crowe, J., Willan, A., Griffith, L. and Feeny, D. (1994). Quality of life after myocardial infarction. Journal of Clinical Epidemiology, 47, 1287–1296. Jenkinson, C., Stradling, J. and Petersen, S. (1998). How should we evaluate health status? A comparison of three methods in patients presenting with obstructive sleep apnoea. Quality of Life Research, 7, 95–100. Jette, D.U. and Downing, J. (1994). Health status of individuals entering a cardiac rehabilitation program as measured by the Medical Outcomes Study 36 item short form survey. Physical Therapy, 74, 521–527. Kee, F., McDonald, P. and Gaffney, B. (1997). Risks and benefits of coronary angioplasty: the patient’s perspective: a preliminary study. Quality in Health Care, 6, 131–139. Labovitz, S. (1971). In defense of assigning numbers to ranks. American Sociological Review, 36, 521–522. Lim, L.L-Y., Valenti, L.A., Knapp, J.C., Dobson, A.J., Plotnikoff, R., Higginbotham, N. and Heller, R.F. (1993). A self administered quality of life questionnaire after acute myocardial infarction. Journal of Clinical Epidemiology, 46, 1249–1256. Lukkarinen, H. and Hentinen, M. (1997). Assessment of quality of life with the Nottingham Health Profile among patients with coronary heart disease. Journal of Advanced Nursing, 26, 73–84. Macduff, C. and Russell, E. (1998). The problem of measuring change in individual health-related quality of life by postal questionnaire: use of the patient-generated index in a disabled population. Quality of Life Research, 7, 761–769. Marquis, P., Fayol, C., Joire, J.E. and Leple`ge, A. (1995). Psychometric properties of a specific quality of life questionnaire in angina pectoris patients. Quality of Life Research, 4, 540–546. O’Boyle, C.A., Browne, J., Hickey, A., McGee, H.M., and Joyce, C.R.B. (1993). Schedule for the Evaluation of Individual Quality of Life (SEIQoL): A Direct Weighting Procedure for Quality of Life Domains (SEIQoLDW) Administration Manual. Department of Psychology, Royal College of Surgeons in Ireland, Dublin. O’Boyle, C.A., McGee, H., Hickey, A., O’Malley, K. and Joyce, C.R.B. (1992). Individual quality of life in patients undergoing hip replacement. Lancet, 339, 1088–1091. O’Keeffe, S.T., Lye, M., Donnellan, C. and Carmichael, D.N. (1998). Reproducibility and responsiveness of quality of life assessment and six minute walk test in elderly heart failure patients. Heart, 80, 377–382. Papadantonaki, A., Stotts, N.A. and Paul, S.M. (1994). Comparison of quality of life before and after coronary artery bypass surgery and percutaneous transluminal angioplasty. Heart and Lung, 23, 45–52. 456 M. DEMPSTER et al. Downloaded by [University of Ulster at Coleraine] at 02:13 20 March 2013 Pearlman, R.A. and Uhlmann, R.F. (1988). Quality of life in chronic diseases – perceptions of elderly patients. Journal of Gerontology, 43, M25–M30. Ruta, D.A., Garratt, A.M., Leng, M., Russell, I.T. and MacDonald, L.M. (1994). A new approach to the measurement of quality of life: the Patient Generated Index. Medical Care, 32, 1109–1126. Smith, H.J., Taylor, R. and Mitchell, A. (2000). A comparison of four quality of life instruments in cardiac patients: SF-36, QLI, QLMI, and SEIQoL. Heart, 84, 390–394. Staples, P. and Jeffrey, J. (1997). Quality of life, hope, and uncertainty of cardiac patients and their spouses before coronary artery bypass surgery. Canadian Journal of Cardiovascular Nursing, 8, 7–16. Tullis, D.E. and Guyatt, G.H. (1995). Quality of life in cystic fibrosis. Pharmacoeconomics, 8, 23–33. Valenti, L., Lim, L., Heller, R.F. and Knapp, J. (1996). An improved questionnaire for assessing quality of life after acute myocardial infarction. Quality of Life Research, 5, 151–161. Ware, J.E., Snow, K.K., Kosinski, M.K. and Gandek, B. (1993). SF-36 Health Survey Manual and Interpretation Guide. The Health Institute, New England Medical Center, Boston. World Health Organization. (1958). The First Ten Years of the World Health Organization. World Health Organization, Geneva. COMPARING QoL INSTRUMENTS AMONG CARDIAC PATIENTS 457 Downloaded

PY - 2002

Y1 - 2002

N2 - Increasing emphasis is being placed on the evaluation of health-related quality of life. However, there is no consensus on the definition of this concept and as a result there are a plethora of existing measurement instruments. Head-to-head comparisons of the psychometric properties of existing instruments are necessary to facilitate evidence-based decisions about which instrument should be chosen for routine use. Therefore, an individualised instrument (the modified Patient Generated Index (PGI)), a generic instrument (the Short Form 36) and a disease-specific instrument (the Quality of Life after Myocardial Infarction questionnaire) were administered to patients with ischaemic heart disease ( n = 117) and the evidence for the validity, reliability and sensitivity of each instrument was examined and compared. The modified PGI compared favourably with the other instruments but none of the instruments examined provided sound evidence for sensitivity to change. Therefore, any recommendation for the use of the individualised approach in the routine collection of health-related quality of life data in clinical practice must be conditional upon the submission of further evidence to support the sensitivity of such instruments.

AB - Increasing emphasis is being placed on the evaluation of health-related quality of life. However, there is no consensus on the definition of this concept and as a result there are a plethora of existing measurement instruments. Head-to-head comparisons of the psychometric properties of existing instruments are necessary to facilitate evidence-based decisions about which instrument should be chosen for routine use. Therefore, an individualised instrument (the modified Patient Generated Index (PGI)), a generic instrument (the Short Form 36) and a disease-specific instrument (the Quality of Life after Myocardial Infarction questionnaire) were administered to patients with ischaemic heart disease ( n = 117) and the evidence for the validity, reliability and sensitivity of each instrument was examined and compared. The modified PGI compared favourably with the other instruments but none of the instruments examined provided sound evidence for sensitivity to change. Therefore, any recommendation for the use of the individualised approach in the routine collection of health-related quality of life data in clinical practice must be conditional upon the submission of further evidence to support the sensitivity of such instruments.

U2 - 10.1080/0887044022000004939

DO - 10.1080/0887044022000004939

M3 - Article

VL - 17

SP - 447

EP - 457

JO - Psychology and Health

T2 - Psychology and Health

JF - Psychology and Health

SN - 0887-0446

IS - 4

ER -