Experiences of people with Parkinson's disease and their carers of a specialist nursing service

Research output: Contribution to journalArticle

Abstract

The results of the second phase of a research study into the perceived roleof the Parkinson’s disease (PD) nurse specialist in an area health board arepresented and discussed in this article.Aim: The aim of the second phase of the study was to further clarify therole of the PD nurse specialist and make recommendations for enhancingthe role and improving services to those with PD and their families.Method: Questionnaires and semi-structured interviews were employed todetermine the perceptions of the role of the PD nurse specialist. Onehundred people with PD and 100 carers were sent questionnaires relating todifferent aspects of the role of the PD nurse specialist. Eight carers and 8people with PD were interviewed using semi-structured questionnaires.Quantitative data were analysed using descriptive statistics, and qualitativedata analysed for emerging themes and concepts.Findings: The results illustrate the pivotal role that the PD nurse specialisthas in enabling people with PD and their carers to live with the condition.Results are used to develop recommendations for future development ofthe role.
LanguageEnglish
Pages264-270
JournalBritish Journal of Neuroscience Nursing
Volume6
Issue number6
Publication statusPublished - Aug 2010

Fingerprint

Nursing Services
Caregivers
Parkinson Disease
Nurses
Interviews
Nurse Specialists

Cite this

@article{a44623b191124329b96973c9d3433a5a,
title = "Experiences of people with Parkinson's disease and their carers of a specialist nursing service",
abstract = "The results of the second phase of a research study into the perceived roleof the Parkinson’s disease (PD) nurse specialist in an area health board arepresented and discussed in this article.Aim: The aim of the second phase of the study was to further clarify therole of the PD nurse specialist and make recommendations for enhancingthe role and improving services to those with PD and their families.Method: Questionnaires and semi-structured interviews were employed todetermine the perceptions of the role of the PD nurse specialist. Onehundred people with PD and 100 carers were sent questionnaires relating todifferent aspects of the role of the PD nurse specialist. Eight carers and 8people with PD were interviewed using semi-structured questionnaires.Quantitative data were analysed using descriptive statistics, and qualitativedata analysed for emerging themes and concepts.Findings: The results illustrate the pivotal role that the PD nurse specialisthas in enabling people with PD and their carers to live with the condition.Results are used to develop recommendations for future development ofthe role.",
author = "Neal Cook and Deirdre McNamee and Brian McFetridge and Patrick Deeny",
year = "2010",
month = "8",
language = "English",
volume = "6",
pages = "264--270",
journal = "British Journal of Neuroscience Nursing",
issn = "1747-0307",
number = "6",

}

TY - JOUR

T1 - Experiences of people with Parkinson's disease and their carers of a specialist nursing service

AU - Cook, Neal

AU - McNamee, Deirdre

AU - McFetridge, Brian

AU - Deeny, Patrick

PY - 2010/8

Y1 - 2010/8

N2 - The results of the second phase of a research study into the perceived roleof the Parkinson’s disease (PD) nurse specialist in an area health board arepresented and discussed in this article.Aim: The aim of the second phase of the study was to further clarify therole of the PD nurse specialist and make recommendations for enhancingthe role and improving services to those with PD and their families.Method: Questionnaires and semi-structured interviews were employed todetermine the perceptions of the role of the PD nurse specialist. Onehundred people with PD and 100 carers were sent questionnaires relating todifferent aspects of the role of the PD nurse specialist. Eight carers and 8people with PD were interviewed using semi-structured questionnaires.Quantitative data were analysed using descriptive statistics, and qualitativedata analysed for emerging themes and concepts.Findings: The results illustrate the pivotal role that the PD nurse specialisthas in enabling people with PD and their carers to live with the condition.Results are used to develop recommendations for future development ofthe role.

AB - The results of the second phase of a research study into the perceived roleof the Parkinson’s disease (PD) nurse specialist in an area health board arepresented and discussed in this article.Aim: The aim of the second phase of the study was to further clarify therole of the PD nurse specialist and make recommendations for enhancingthe role and improving services to those with PD and their families.Method: Questionnaires and semi-structured interviews were employed todetermine the perceptions of the role of the PD nurse specialist. Onehundred people with PD and 100 carers were sent questionnaires relating todifferent aspects of the role of the PD nurse specialist. Eight carers and 8people with PD were interviewed using semi-structured questionnaires.Quantitative data were analysed using descriptive statistics, and qualitativedata analysed for emerging themes and concepts.Findings: The results illustrate the pivotal role that the PD nurse specialisthas in enabling people with PD and their carers to live with the condition.Results are used to develop recommendations for future development ofthe role.

M3 - Article

VL - 6

SP - 264

EP - 270

JO - British Journal of Neuroscience Nursing

T2 - British Journal of Neuroscience Nursing

JF - British Journal of Neuroscience Nursing

SN - 1747-0307

IS - 6

ER -