Experiences of caring for a technologically dependent child at home with an emphasis on home ventilation: An Interpretive Phenomenological Analysis

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

IntroductionOccasionally, children for a variety of reasons develop an intractable respiratory disorder that necessitates lifelong ventilation at home. Also, there exists a cohort of children with underlying pathologies that make them dependent on ventilators either from birth or after a period of time. Aim:The aim of the study is to explore parents (and where possible the children themselves and their siblings) experiences of ventilation at home and provide a narrative account of their interpretations of this. DesignThe study consisted of three distinct phasesPhase 1To determine the extent of current service provision a survey was undertaken that described the population using home ventilation. From this data the sample was identified and contacted to ascertain their willingness to participate.Phase 2At this point health care professionals involved in the care of this group of children will be interviewed. To be carried out.Phase 3To understand parents (and where possible children's and siblings) experiences of home ventilation in depth interviews will be used. To be carried outData analysisPhase 1 will be analysed using descriptive statistics and presented at the conferenceExpected outcome:This presentation will show the outcome from phase one and paint a picture of the population of children using ventilation at home
LanguageEnglish
Title of host publicationUnknown Host Publication
Number of pages8
Publication statusPublished - 12 Sep 2008
Event9th European Doctoral Conference in Nursing Science - Maastricht, Holland
Duration: 12 Sep 2008 → …

Conference

Conference9th European Doctoral Conference in Nursing Science
Period12/09/08 → …

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Ventilation
Siblings
Parents
Point-of-Care Systems
Paint
Mechanical Ventilators
Child Care
Population
Parturition
Interviews
Pathology
Delivery of Health Care

Keywords

  • Ventilation
  • Spreadsheets
  • descriptive statistics

Cite this

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title = "Experiences of caring for a technologically dependent child at home with an emphasis on home ventilation: An Interpretive Phenomenological Analysis",
abstract = "IntroductionOccasionally, children for a variety of reasons develop an intractable respiratory disorder that necessitates lifelong ventilation at home. Also, there exists a cohort of children with underlying pathologies that make them dependent on ventilators either from birth or after a period of time. Aim:The aim of the study is to explore parents (and where possible the children themselves and their siblings) experiences of ventilation at home and provide a narrative account of their interpretations of this. DesignThe study consisted of three distinct phasesPhase 1To determine the extent of current service provision a survey was undertaken that described the population using home ventilation. From this data the sample was identified and contacted to ascertain their willingness to participate.Phase 2At this point health care professionals involved in the care of this group of children will be interviewed. To be carried out.Phase 3To understand parents (and where possible children's and siblings) experiences of home ventilation in depth interviews will be used. To be carried outData analysisPhase 1 will be analysed using descriptive statistics and presented at the conferenceExpected outcome:This presentation will show the outcome from phase one and paint a picture of the population of children using ventilation at home",
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Experiences of caring for a technologically dependent child at home with an emphasis on home ventilation: An Interpretive Phenomenological Analysis. / McGowan, Brian.

Unknown Host Publication. 2008.

Research output: Chapter in Book/Report/Conference proceedingConference contribution

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N2 - IntroductionOccasionally, children for a variety of reasons develop an intractable respiratory disorder that necessitates lifelong ventilation at home. Also, there exists a cohort of children with underlying pathologies that make them dependent on ventilators either from birth or after a period of time. Aim:The aim of the study is to explore parents (and where possible the children themselves and their siblings) experiences of ventilation at home and provide a narrative account of their interpretations of this. DesignThe study consisted of three distinct phasesPhase 1To determine the extent of current service provision a survey was undertaken that described the population using home ventilation. From this data the sample was identified and contacted to ascertain their willingness to participate.Phase 2At this point health care professionals involved in the care of this group of children will be interviewed. To be carried out.Phase 3To understand parents (and where possible children's and siblings) experiences of home ventilation in depth interviews will be used. To be carried outData analysisPhase 1 will be analysed using descriptive statistics and presented at the conferenceExpected outcome:This presentation will show the outcome from phase one and paint a picture of the population of children using ventilation at home

AB - IntroductionOccasionally, children for a variety of reasons develop an intractable respiratory disorder that necessitates lifelong ventilation at home. Also, there exists a cohort of children with underlying pathologies that make them dependent on ventilators either from birth or after a period of time. Aim:The aim of the study is to explore parents (and where possible the children themselves and their siblings) experiences of ventilation at home and provide a narrative account of their interpretations of this. DesignThe study consisted of three distinct phasesPhase 1To determine the extent of current service provision a survey was undertaken that described the population using home ventilation. From this data the sample was identified and contacted to ascertain their willingness to participate.Phase 2At this point health care professionals involved in the care of this group of children will be interviewed. To be carried out.Phase 3To understand parents (and where possible children's and siblings) experiences of home ventilation in depth interviews will be used. To be carried outData analysisPhase 1 will be analysed using descriptive statistics and presented at the conferenceExpected outcome:This presentation will show the outcome from phase one and paint a picture of the population of children using ventilation at home

KW - Ventilation

KW - Spreadsheets

KW - descriptive statistics

M3 - Conference contribution

BT - Unknown Host Publication

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