Experiences and Needs of Bereaved Carers during Palliative and End-of-Life Care for People with Chronic Obstructive Pulmonary Disease

Felicity Hasson, Alison Spence, Mary Waldron, George Kernohan, Dorry McLaughlin, Barbara Watson, Barbara Cochrane

Research output: Contribution to journalArticle

28 Citations (Scopus)

Abstract

AIM: This study explored the experiences of palliative care that bereaved carers had while providing care to a dying loved one with chronic obstructive pulmonary disease (COPD). METHOD: Semi-structured interviews were undertaken with nine carers who had lost a loved one in the preceding 6 to 24 months. These interviews explored levels of satisfaction with disease management, symptom management, and end-of-life care. With permission, interviews were tape recorded, transcribed, and subjected to content analysis. FINDINGS: Three themes emerged from the data: the impact of the caring experience, the lack of support services, and end-of-life and bereavement support. Carers experienced carer burden, lack of access to support services, a need for palliative care, and bereavement support. CONCLUSION: The findings provide a first insight into the experiences of carers of patients with advanced COPD. Bereaved carers of patients who had suffered advanced COPD reported that they had received inadequate support and had a range of unmet palliative care needs. Special attention should be paid to educating and supporting carers during their caring and bereavement periods to ensure that their quality of life is maintained or enhanced.
LanguageEnglish
Pages157-163
JournalJournal of Palliative Care
Volume25
Issue number3
Publication statusPublished - 2009

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Terminal Care
Chronic Obstructive Pulmonary Disease
Caregivers
Bereavement
Palliative Care
Interviews
Disease Management
Quality of Life

Cite this

Hasson, Felicity ; Spence, Alison ; Waldron, Mary ; Kernohan, George ; McLaughlin, Dorry ; Watson, Barbara ; Cochrane, Barbara. / Experiences and Needs of Bereaved Carers during Palliative and End-of-Life Care for People with Chronic Obstructive Pulmonary Disease. In: Journal of Palliative Care. 2009 ; Vol. 25, No. 3. pp. 157-163.
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Experiences and Needs of Bereaved Carers during Palliative and End-of-Life Care for People with Chronic Obstructive Pulmonary Disease. / Hasson, Felicity; Spence, Alison; Waldron, Mary; Kernohan, George; McLaughlin, Dorry; Watson, Barbara; Cochrane, Barbara.

In: Journal of Palliative Care, Vol. 25, No. 3, 2009, p. 157-163.

Research output: Contribution to journalArticle

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AB - AIM: This study explored the experiences of palliative care that bereaved carers had while providing care to a dying loved one with chronic obstructive pulmonary disease (COPD). METHOD: Semi-structured interviews were undertaken with nine carers who had lost a loved one in the preceding 6 to 24 months. These interviews explored levels of satisfaction with disease management, symptom management, and end-of-life care. With permission, interviews were tape recorded, transcribed, and subjected to content analysis. FINDINGS: Three themes emerged from the data: the impact of the caring experience, the lack of support services, and end-of-life and bereavement support. Carers experienced carer burden, lack of access to support services, a need for palliative care, and bereavement support. CONCLUSION: The findings provide a first insight into the experiences of carers of patients with advanced COPD. Bereaved carers of patients who had suffered advanced COPD reported that they had received inadequate support and had a range of unmet palliative care needs. Special attention should be paid to educating and supporting carers during their caring and bereavement periods to ensure that their quality of life is maintained or enhanced.

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