Ethical issues in palliative care for nursing homes:Development and testing of a survey instrument

Deborah Preshaw, Dorry McLaughlin, Kevin Brazil

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Aims and objectives: To develop and psychometrically assess a survey instrument identifying ethical issues during palliative care provision in nursing homes.Background: Registered nurses and healthcare assistants have reported ethical issues in everyday palliative care provision. Identifying these issues provides evidence to inform practice development to support healthcare workers.Design: Cross-sectional survey of Registered nurses and healthcare assistants in nursing homes in one region of the UK.Method: A survey instrument, “Ethical issues in Palliative Care for Nursing homes”, was developed through the findings of qualitative interviews with Registered nurses and healthcare assistants in nursing homes and a literature review. It was reviewed by an expert panel and piloted prior to implementation in a survey in 2015 with a convenience sample of 596 Registered nurses and healthcare assistants. Descriptive and exploratory factor analyses were used to assess the underlying structure of the Frequency and Distress Scales within the instrument.Results: Analysis of 201 responses (response rate = 33.7%) revealed four factors for the Frequency Scale and five factors for the Distress Scale that comprise the Ethical issues in Palliative Care for Nursing homes. Factors common to both scales included “Processes of care,” “Resident autonomy” and “Burdensome treatment.” Additionally, the Frequency Scale included “Competency,” and the Distress Scale included “Quality of care” and “Communication.”Conclusion: The Ethical issues in Palliative Care for Nursing homes instrument has added to the palliative care knowledge base by considering the ethical issues experienced specifically by Registered nurses and healthcare assistants within the nursing home. This research offers preliminary evidence of the psychometric properties of the Ethical issues in Palliative Care for Nursing homes survey instrument.Relevance to practice: The two largest factors highlight the need to address the organisational aspects of caring and provide training in negotiating conflicting ethical principles.
LanguageEnglish
Pages1-10
JournalJournal of Clinical Nursing
Volumeonline
Early online date20 Oct 2017
DOIs
Publication statusE-pub ahead of print - 20 Oct 2017

Fingerprint

Hospice and Palliative Care Nursing
Nursing Homes
Ethics
Allied Health Personnel
Nurses
Palliative Care
Knowledge Bases
Surveys and Questionnaires
Quality of Health Care
Negotiating
Psychometrics
Statistical Factor Analysis
Cross-Sectional Studies
Communication
Interviews

Keywords

  • ethical issues
  • instrument development
  • nursing homes
  • palliative care
  • survey

Cite this

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abstract = "Aims and objectives: To develop and psychometrically assess a survey instrument identifying ethical issues during palliative care provision in nursing homes.Background: Registered nurses and healthcare assistants have reported ethical issues in everyday palliative care provision. Identifying these issues provides evidence to inform practice development to support healthcare workers.Design: Cross-sectional survey of Registered nurses and healthcare assistants in nursing homes in one region of the UK.Method: A survey instrument, “Ethical issues in Palliative Care for Nursing homes”, was developed through the findings of qualitative interviews with Registered nurses and healthcare assistants in nursing homes and a literature review. It was reviewed by an expert panel and piloted prior to implementation in a survey in 2015 with a convenience sample of 596 Registered nurses and healthcare assistants. Descriptive and exploratory factor analyses were used to assess the underlying structure of the Frequency and Distress Scales within the instrument.Results: Analysis of 201 responses (response rate = 33.7{\%}) revealed four factors for the Frequency Scale and five factors for the Distress Scale that comprise the Ethical issues in Palliative Care for Nursing homes. Factors common to both scales included “Processes of care,” “Resident autonomy” and “Burdensome treatment.” Additionally, the Frequency Scale included “Competency,” and the Distress Scale included “Quality of care” and “Communication.”Conclusion: The Ethical issues in Palliative Care for Nursing homes instrument has added to the palliative care knowledge base by considering the ethical issues experienced specifically by Registered nurses and healthcare assistants within the nursing home. This research offers preliminary evidence of the psychometric properties of the Ethical issues in Palliative Care for Nursing homes survey instrument.Relevance to practice: The two largest factors highlight the need to address the organisational aspects of caring and provide training in negotiating conflicting ethical principles.",
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Ethical issues in palliative care for nursing homes:Development and testing of a survey instrument. / Preshaw, Deborah; McLaughlin, Dorry; Brazil, Kevin.

In: Journal of Clinical Nursing, Vol. online, 20.10.2017, p. 1-10.

Research output: Contribution to journalArticle

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