Effects of stroke on informal carers

Rachel O'Shea, Deborah Goode

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

Informal carers have a pivotal role in caring for patients who have had a stroke. Research has shown that informal carers have unmet information, psychological and social needs. There is a lack of research about how informal carers in Northern Ireland manage the role of caring for a patient who has experienced stroke, and what kind of support they need and receive. This literature review explores the experiences of informal carers providing stroke care in the home. The issues highlighted in the article are relevant worldwide, because the incidence of stroke is increasing in developed and developing countries.
LanguageEnglish
Pages43-47
JournalNursing Standard
Volume28
Issue number15
Publication statusPublished - 11 Dec 2013

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Caregivers
Stroke
Northern Ireland
Home Care Services
Research
Developed Countries
Developing Countries
Psychology
Incidence

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O'Shea, Rachel ; Goode, Deborah. / Effects of stroke on informal carers. In: Nursing Standard. 2013 ; Vol. 28, No. 15. pp. 43-47.
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abstract = "Informal carers have a pivotal role in caring for patients who have had a stroke. Research has shown that informal carers have unmet information, psychological and social needs. There is a lack of research about how informal carers in Northern Ireland manage the role of caring for a patient who has experienced stroke, and what kind of support they need and receive. This literature review explores the experiences of informal carers providing stroke care in the home. The issues highlighted in the article are relevant worldwide, because the incidence of stroke is increasing in developed and developing countries.",
author = "Rachel O'Shea and Deborah Goode",
note = "Reference text: Berg A, Palom{\"a}ki H, Lehtihalmes M,L{\"o}nnqvist J, Kaste M (2003) Poststroke depression: an 18-month follow-up. Stroke. 34, 1, 138-143. Berg A, Palom{\"a}ki H, L{\"o}nnqvist J, Lehtihalmes M, Kaste M (2005) Depression among caregivers of stroke survivors. Stroke. 36, 3, 639-643. Brereton L, Carroll C, Barnston S (2007) Interventions for adult family carers of people who have had a stroke: a systematic review. Clinical Rehabilitation. 21, 10, 867-884. British Heart Foundation (2012) Coronary Heart Disease Statistics.A Compendium of Health Statistics.2012 Edition. British Heart Foundation, London. Bulley C, Shiels J, Wilkie K, Salisbury L (2010) Carer experiences of life after stroke – a qualitative analysis. Disability and Rehabilitation. 32, 17, 1406-1413. Cecil R, Parahoo K, Thompson K, McCaughan E, Power M, Campbell Y (2011) ‘The hard work starts now’: a glimpse into the lives of carersof community-dwelling stroke survivors. Journal of Clinical Nursing. 20, 11-12, 1723-1730. Department of Health (2008) Carers at the Heart of 21st-Century Families and Communities. TheStationery Office, London. Department of Health, Social Services and Public Safety (2006) Caring for Carers: Recognising, Valuing and Supporting the CaringRole. DHSSPS, Belfast. Department of Health, Social Services and Public Safety (2008) Improving Stroke Services in Northern Ireland. DHSSPS, Belfast. Department of Health, SocialServices and Public Safety (2013a) A Fitter Future for All. Framework for Preventing and Addressing Overweight and Obesity in NorthernIreland 2012-2022. DHSSPS,Belfast. Department of Health, Social Services and Public Safety (2013b) Carers. www.dhsspsni.gov.uk/ ec-carers (Last accessed: November 26 2013.) Gillespie D, Campbell F (2011) Effect of stroke on family carers and family relationships. Nursing Standard. 26, 2, 39-46. Gordon NF, Gulanick M, Costa F (2004) Physical activity and exercise recommendations for stroke survivors: an American Heart Association scientific statement from the Council on Clinical Cardiology, Subcommittee on Exercise, Cardiac Rehabilitation, and Prevention; the Council on Cardiovascular Nursing; the Council on Nutrition, Physical Activity, and Metabolism; and the Stroke Council. Circulation. 27, 109, 2031-2041. Gosman-Hedstr{\"o}m G,Dahlin-Ivanoff S (2012) ‘Mastering an unpredictable everyday life after stroke’ – older women’s experiences of caring and living with their partners. Scandinavian Journal of Caring Sciences. 26, 3, 587-597. Green TL, King KM (2009) Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: a descriptive qualitative study. International Journal of Nursing Studies. 46, 9, 1194-1200. Greenwood N, Mackenzie A, Wilson N, Cloud G (2009a) Managing uncertainty in life after stroke: a qualitative study of the experiences of established and new informal carers in the first 3 months after discharge. International Journal of Nursing Studies. 46, 8, 1122-1133. Greenwood N, Mackenzie A, Cloud GC, Wilson N (2009b) Informal primary carers of stroke survivors living at home– challenges, satisfactions and coping: a systematic review of qualitative studies. Disability and Rehabilitation. 31, 5, 337-351. Greenwood N, Mackenzie A, Cloud G, Wilson N (2010) Loss of autonomy, control and independence when caring: a qualitative study of informal carers of stroke survivors in the first three months after discharge. Disability and Rehabilitation. 32, 2, 125-133. Haley WE, Allen JY, Grant JS, Clay OJ, Perkins M, Roth DL (2009) Problems and benefits reported by stroke family caregivers: results from a prospective epidemiological study. Stroke. 40, 6, 2129-2133. Henriksson A, Andershed B (2007) A support group programme for relatives during the late palliative phase. International Journal of Palliative Nursing.13, 4, 175-183. Kalra L, Evans A, Perez I (2004) Training carers of stroke patients: randomised controlled trial. British Medical Journal.328, 7448, 1099-1104. Lilley SA, Lincoln NB, Francis VM (2003) A qualitative study of stroke patients’ and carers’ perceptions of the stroke family support organizer service. Clinical Rehabilitation. 17, 5, 540-547. Mackenzie A, Perry L, Lockhart E, Cottee M, Cloud G, Mann H (2007) Family carers of stroke survivors: needs, knowledge, satisfaction and competence in caring. Disability and Rehabilitation. 29, 2, 111-121. McCullagh E, Brigstocke G,Donaldson N, Kalra L (2005) Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 36, 10, 2181-2186. Northern Health and Social Care Trust (2012) NHSCT Carers’ Strategy. 2012-2017. www.northerntrust.hscni.net/images/NHSCT_Carers_Strategy.pdf (Last accessed:November 26 2013.) Northern Ireland Statistics and Research Agency (2011) Census 2011. tinyurl.com/NIcen2011 (Last accessed: November 26 2013.) Royal College of Physicians (2012) National ClinicalGuideline for Stroke. Fourth edition. RCP, London. Saka {\"O}, McGuire A, Wolfe C (2009) Cost of stroke in the United Kingdom. Age and Ageing. 38, 1, 27-32. Simon C, Kumar S, Kendrick T (2008) Formal support of stroke survivors and their informal carers in the community: a cohort study. Health and Social Care in the Community. 16, 6, 582-592. Simon C, Kumar S, Kendrick T (2009) Cohort study of informal carers of first-time stroke survivors:profile of health and social changes in the first year of caregiving. Social Science and Medicine. 69, 3, 404-410. Smith LN, Lawrence M, Kerr SM, Longhorne P, Lees KR (2004) Informal carers’ experience of caring for stroke survivors.Journal of Advanced Nursing. 46, 3, 235-244. Stoltz P, Ud{\'e}n G, Willman A (2004) Support for family carers who care for an elderly person at home– a systematic literature review. Scandinavian Journal of Caring Sciences. 18, 2, 111-119. Stroke Association (2013)Stroke Facts and Statistics for Your Area. www.stroke.org.uk/ news/stroke-facts-and-statisticsyour-area (Last accessed: November 26 2013.) Strudwick A, Morris R (2010) A qualitative study exploring the experiences of African-Caribbean informal stroke carers in the UK. Clinical Rehabilitation. 24, 2,159-167. Twiddy M, House A, Jones F (2012) The association between discrepancy in illness representations on distress in stroke patients and carers. Journal of Psychosomatic Research. 72, 3, 220-225. van Exel NJ, Koopmanschap MA, van den Berg B, Brouwer WB, van den Bos GA (2005) Burden of informal caregiving for stroke patients. Identification of caregivers at risk of adverse health effects. Cerebrovascular Diseases. 19, 1,11-17. Visser-Meily A, Post M, Gorter JW, Berdenis SB, Van Den Bos T, Lindeman E (2006) Rehabilitation of stroke patients needs a family-centred approach. Disability and Rehabilitation. 28, 24,1557-1561. World Health Organization (2005) Global Burden of Stroke. www.who.int/cardiovascular_ diseases/en/cvd_atlas_15_burden_stroke.pdf (Last accessed: November 26 2013.) World Heart Federation (2013) Stroke. www.world-heartfederation.org/cardiovascularhealth/ stroke (Last accessed:November 26 2013.) World Stroke Organization (2013) World Stroke Campaign. www. worldstrokecampaign.org/2012/Pages/Home.aspx (Last accessed:November 26 2013.)",
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O'Shea, R & Goode, D 2013, 'Effects of stroke on informal carers', Nursing Standard, vol. 28, no. 15, pp. 43-47.

Effects of stroke on informal carers. / O'Shea, Rachel; Goode, Deborah.

In: Nursing Standard, Vol. 28, No. 15, 11.12.2013, p. 43-47.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Effects of stroke on informal carers

AU - O'Shea, Rachel

AU - Goode, Deborah

N1 - Reference text: Berg A, Palomäki H, Lehtihalmes M,Lönnqvist J, Kaste M (2003) Poststroke depression: an 18-month follow-up. Stroke. 34, 1, 138-143. Berg A, Palomäki H, Lönnqvist J, Lehtihalmes M, Kaste M (2005) Depression among caregivers of stroke survivors. Stroke. 36, 3, 639-643. Brereton L, Carroll C, Barnston S (2007) Interventions for adult family carers of people who have had a stroke: a systematic review. Clinical Rehabilitation. 21, 10, 867-884. British Heart Foundation (2012) Coronary Heart Disease Statistics.A Compendium of Health Statistics.2012 Edition. British Heart Foundation, London. Bulley C, Shiels J, Wilkie K, Salisbury L (2010) Carer experiences of life after stroke – a qualitative analysis. Disability and Rehabilitation. 32, 17, 1406-1413. Cecil R, Parahoo K, Thompson K, McCaughan E, Power M, Campbell Y (2011) ‘The hard work starts now’: a glimpse into the lives of carersof community-dwelling stroke survivors. Journal of Clinical Nursing. 20, 11-12, 1723-1730. Department of Health (2008) Carers at the Heart of 21st-Century Families and Communities. TheStationery Office, London. Department of Health, Social Services and Public Safety (2006) Caring for Carers: Recognising, Valuing and Supporting the CaringRole. DHSSPS, Belfast. Department of Health, Social Services and Public Safety (2008) Improving Stroke Services in Northern Ireland. DHSSPS, Belfast. Department of Health, SocialServices and Public Safety (2013a) A Fitter Future for All. Framework for Preventing and Addressing Overweight and Obesity in NorthernIreland 2012-2022. DHSSPS,Belfast. Department of Health, Social Services and Public Safety (2013b) Carers. www.dhsspsni.gov.uk/ ec-carers (Last accessed: November 26 2013.) Gillespie D, Campbell F (2011) Effect of stroke on family carers and family relationships. Nursing Standard. 26, 2, 39-46. Gordon NF, Gulanick M, Costa F (2004) Physical activity and exercise recommendations for stroke survivors: an American Heart Association scientific statement from the Council on Clinical Cardiology, Subcommittee on Exercise, Cardiac Rehabilitation, and Prevention; the Council on Cardiovascular Nursing; the Council on Nutrition, Physical Activity, and Metabolism; and the Stroke Council. Circulation. 27, 109, 2031-2041. Gosman-Hedström G,Dahlin-Ivanoff S (2012) ‘Mastering an unpredictable everyday life after stroke’ – older women’s experiences of caring and living with their partners. Scandinavian Journal of Caring Sciences. 26, 3, 587-597. Green TL, King KM (2009) Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: a descriptive qualitative study. International Journal of Nursing Studies. 46, 9, 1194-1200. Greenwood N, Mackenzie A, Wilson N, Cloud G (2009a) Managing uncertainty in life after stroke: a qualitative study of the experiences of established and new informal carers in the first 3 months after discharge. International Journal of Nursing Studies. 46, 8, 1122-1133. Greenwood N, Mackenzie A, Cloud GC, Wilson N (2009b) Informal primary carers of stroke survivors living at home– challenges, satisfactions and coping: a systematic review of qualitative studies. Disability and Rehabilitation. 31, 5, 337-351. Greenwood N, Mackenzie A, Cloud G, Wilson N (2010) Loss of autonomy, control and independence when caring: a qualitative study of informal carers of stroke survivors in the first three months after discharge. Disability and Rehabilitation. 32, 2, 125-133. Haley WE, Allen JY, Grant JS, Clay OJ, Perkins M, Roth DL (2009) Problems and benefits reported by stroke family caregivers: results from a prospective epidemiological study. Stroke. 40, 6, 2129-2133. Henriksson A, Andershed B (2007) A support group programme for relatives during the late palliative phase. International Journal of Palliative Nursing.13, 4, 175-183. Kalra L, Evans A, Perez I (2004) Training carers of stroke patients: randomised controlled trial. British Medical Journal.328, 7448, 1099-1104. Lilley SA, Lincoln NB, Francis VM (2003) A qualitative study of stroke patients’ and carers’ perceptions of the stroke family support organizer service. Clinical Rehabilitation. 17, 5, 540-547. Mackenzie A, Perry L, Lockhart E, Cottee M, Cloud G, Mann H (2007) Family carers of stroke survivors: needs, knowledge, satisfaction and competence in caring. Disability and Rehabilitation. 29, 2, 111-121. McCullagh E, Brigstocke G,Donaldson N, Kalra L (2005) Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 36, 10, 2181-2186. Northern Health and Social Care Trust (2012) NHSCT Carers’ Strategy. 2012-2017. www.northerntrust.hscni.net/images/NHSCT_Carers_Strategy.pdf (Last accessed:November 26 2013.) Northern Ireland Statistics and Research Agency (2011) Census 2011. tinyurl.com/NIcen2011 (Last accessed: November 26 2013.) Royal College of Physicians (2012) National ClinicalGuideline for Stroke. Fourth edition. RCP, London. Saka Ö, McGuire A, Wolfe C (2009) Cost of stroke in the United Kingdom. Age and Ageing. 38, 1, 27-32. Simon C, Kumar S, Kendrick T (2008) Formal support of stroke survivors and their informal carers in the community: a cohort study. Health and Social Care in the Community. 16, 6, 582-592. Simon C, Kumar S, Kendrick T (2009) Cohort study of informal carers of first-time stroke survivors:profile of health and social changes in the first year of caregiving. Social Science and Medicine. 69, 3, 404-410. Smith LN, Lawrence M, Kerr SM, Longhorne P, Lees KR (2004) Informal carers’ experience of caring for stroke survivors.Journal of Advanced Nursing. 46, 3, 235-244. Stoltz P, Udén G, Willman A (2004) Support for family carers who care for an elderly person at home– a systematic literature review. Scandinavian Journal of Caring Sciences. 18, 2, 111-119. Stroke Association (2013)Stroke Facts and Statistics for Your Area. www.stroke.org.uk/ news/stroke-facts-and-statisticsyour-area (Last accessed: November 26 2013.) Strudwick A, Morris R (2010) A qualitative study exploring the experiences of African-Caribbean informal stroke carers in the UK. Clinical Rehabilitation. 24, 2,159-167. Twiddy M, House A, Jones F (2012) The association between discrepancy in illness representations on distress in stroke patients and carers. Journal of Psychosomatic Research. 72, 3, 220-225. van Exel NJ, Koopmanschap MA, van den Berg B, Brouwer WB, van den Bos GA (2005) Burden of informal caregiving for stroke patients. Identification of caregivers at risk of adverse health effects. Cerebrovascular Diseases. 19, 1,11-17. Visser-Meily A, Post M, Gorter JW, Berdenis SB, Van Den Bos T, Lindeman E (2006) Rehabilitation of stroke patients needs a family-centred approach. Disability and Rehabilitation. 28, 24,1557-1561. World Health Organization (2005) Global Burden of Stroke. www.who.int/cardiovascular_ diseases/en/cvd_atlas_15_burden_stroke.pdf (Last accessed: November 26 2013.) World Heart Federation (2013) Stroke. www.world-heartfederation.org/cardiovascularhealth/ stroke (Last accessed:November 26 2013.) World Stroke Organization (2013) World Stroke Campaign. www. worldstrokecampaign.org/2012/Pages/Home.aspx (Last accessed:November 26 2013.)

PY - 2013/12/11

Y1 - 2013/12/11

N2 - Informal carers have a pivotal role in caring for patients who have had a stroke. Research has shown that informal carers have unmet information, psychological and social needs. There is a lack of research about how informal carers in Northern Ireland manage the role of caring for a patient who has experienced stroke, and what kind of support they need and receive. This literature review explores the experiences of informal carers providing stroke care in the home. The issues highlighted in the article are relevant worldwide, because the incidence of stroke is increasing in developed and developing countries.

AB - Informal carers have a pivotal role in caring for patients who have had a stroke. Research has shown that informal carers have unmet information, psychological and social needs. There is a lack of research about how informal carers in Northern Ireland manage the role of caring for a patient who has experienced stroke, and what kind of support they need and receive. This literature review explores the experiences of informal carers providing stroke care in the home. The issues highlighted in the article are relevant worldwide, because the incidence of stroke is increasing in developed and developing countries.

M3 - Article

VL - 28

SP - 43

EP - 47

JO - Nursing Standard

T2 - Nursing Standard

JF - Nursing Standard

SN - 0029-6570

IS - 15

ER -