Education in pulmonary rehabilitation: The patient's perspective

Julie S Wilson, Brenda O'Neill, Jacqueline Reilly, Joseph MacMahon, Judy M Bradley

Research output: Contribution to journalArticle

Abstract

Abstract: Wilson JS, O’Neill B, Reilly J, MacMahon J, Bradley JM. Education in pulmonary rehabilitation: the patient’s perspective.Objectives: To ascertain from patients’ perspectives what should be included in the educational component of pulmonary rehabilitation and how it should be delivered, and to compare those perspectives with the views of health professionals.Design: Qualitative research method using focus groups of patients and health professionals.Setting: A regional respiratory center and outpatient clinic.Participants: Purposive samples of 32 patients with chronic obstructive pulmonary disease (COPD) (forced expiratory volume in 1 second, 18%–67% predicted) divided into 6 focus groups; 8 health professionals knowledgeable about COPD and pulmonary rehabilitation who attended a multidisciplinary focus group meeting.Interventions: Participants attended focus group meetings (2–3h) guided by a series of questions and topics; results were posted to the participants for their verification.Main Outcome Measure: The educational content of a pulmonary rehabilitation program.Results: Deficits in patients’ knowledge, understanding, and management of their disease were identified. Six key educational topics resulted: disease education, management of breathlessness, management of an exacerbation, medication, psychosocial support, and welfare and benefits systems. Patients and health professionals preferred group information sessions provided by knowledgeable people speaking layman’s language, with oral presentations being supplemented by written information.Conclusions: Gaining a greater understanding of patients’ educational needs permits health professionals who design pulmonary rehabilitation programs to include these requirements in a format that is acceptable to patients. The key topics, content, and format for delivery of the educational component for pulmonary rehabilitation were identified. Future research should focus on the development of an educational package and assessment of its efficacy, which would facilitate equitable patient access to education in pulmonary rehabilitation.
LanguageEnglish
Pages1704-1709
JournalArchives of Physical Medicine and Rehabilitation
Volume88
Issue number12
DOIs
Publication statusPublished - Dec 2007

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Rehabilitation
Education
Lung
Focus Groups
Health
Group Processes
Chronic Obstructive Pulmonary Disease
Educational Measurement
Respiratory Center
Knowledge Management
Qualitative Research
Forced Expiratory Volume
Disease Management
Ambulatory Care Facilities
Dyspnea
Language
Outcome Assessment (Health Care)

Keywords

  • Education
  • Focus Group
  • Pulmonary Diseases
  • Rehabilitation

Cite this

Wilson, Julie S ; O'Neill, Brenda ; Reilly, Jacqueline ; MacMahon, Joseph ; Bradley, Judy M. / Education in pulmonary rehabilitation: The patient's perspective. In: Archives of Physical Medicine and Rehabilitation. 2007 ; Vol. 88, No. 12. pp. 1704-1709.
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abstract = "Abstract: Wilson JS, O’Neill B, Reilly J, MacMahon J, Bradley JM. Education in pulmonary rehabilitation: the patient’s perspective.Objectives: To ascertain from patients’ perspectives what should be included in the educational component of pulmonary rehabilitation and how it should be delivered, and to compare those perspectives with the views of health professionals.Design: Qualitative research method using focus groups of patients and health professionals.Setting: A regional respiratory center and outpatient clinic.Participants: Purposive samples of 32 patients with chronic obstructive pulmonary disease (COPD) (forced expiratory volume in 1 second, 18{\%}–67{\%} predicted) divided into 6 focus groups; 8 health professionals knowledgeable about COPD and pulmonary rehabilitation who attended a multidisciplinary focus group meeting.Interventions: Participants attended focus group meetings (2–3h) guided by a series of questions and topics; results were posted to the participants for their verification.Main Outcome Measure: The educational content of a pulmonary rehabilitation program.Results: Deficits in patients’ knowledge, understanding, and management of their disease were identified. Six key educational topics resulted: disease education, management of breathlessness, management of an exacerbation, medication, psychosocial support, and welfare and benefits systems. Patients and health professionals preferred group information sessions provided by knowledgeable people speaking layman’s language, with oral presentations being supplemented by written information.Conclusions: Gaining a greater understanding of patients’ educational needs permits health professionals who design pulmonary rehabilitation programs to include these requirements in a format that is acceptable to patients. The key topics, content, and format for delivery of the educational component for pulmonary rehabilitation were identified. Future research should focus on the development of an educational package and assessment of its efficacy, which would facilitate equitable patient access to education in pulmonary rehabilitation.",
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Education in pulmonary rehabilitation: The patient's perspective. / Wilson, Julie S; O'Neill, Brenda; Reilly, Jacqueline; MacMahon, Joseph; Bradley, Judy M.

In: Archives of Physical Medicine and Rehabilitation, Vol. 88, No. 12, 12.2007, p. 1704-1709.

Research output: Contribution to journalArticle

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AU - Reilly, Jacqueline

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N2 - Abstract: Wilson JS, O’Neill B, Reilly J, MacMahon J, Bradley JM. Education in pulmonary rehabilitation: the patient’s perspective.Objectives: To ascertain from patients’ perspectives what should be included in the educational component of pulmonary rehabilitation and how it should be delivered, and to compare those perspectives with the views of health professionals.Design: Qualitative research method using focus groups of patients and health professionals.Setting: A regional respiratory center and outpatient clinic.Participants: Purposive samples of 32 patients with chronic obstructive pulmonary disease (COPD) (forced expiratory volume in 1 second, 18%–67% predicted) divided into 6 focus groups; 8 health professionals knowledgeable about COPD and pulmonary rehabilitation who attended a multidisciplinary focus group meeting.Interventions: Participants attended focus group meetings (2–3h) guided by a series of questions and topics; results were posted to the participants for their verification.Main Outcome Measure: The educational content of a pulmonary rehabilitation program.Results: Deficits in patients’ knowledge, understanding, and management of their disease were identified. Six key educational topics resulted: disease education, management of breathlessness, management of an exacerbation, medication, psychosocial support, and welfare and benefits systems. Patients and health professionals preferred group information sessions provided by knowledgeable people speaking layman’s language, with oral presentations being supplemented by written information.Conclusions: Gaining a greater understanding of patients’ educational needs permits health professionals who design pulmonary rehabilitation programs to include these requirements in a format that is acceptable to patients. The key topics, content, and format for delivery of the educational component for pulmonary rehabilitation were identified. Future research should focus on the development of an educational package and assessment of its efficacy, which would facilitate equitable patient access to education in pulmonary rehabilitation.

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