Diabetes in people with intellectual disabilities: A systematic review of the literature

S MacRea, M Brown, T Karatzias, Laurence Taggart, Maria Truesdale-Kennedy, R Walley, A Sierka, R Northway, M Carey, M Davie

Research output: Contribution to journalArticle

15 Citations (Scopus)

Abstract

Objective: To present an analysis of the evidence related to the prevalence of diabetes inpeople with intellectual disabilities(ID), their experiences of their condition andtreatment and those of their carers.Materials and methods: A systematic literature review was conducted. A total of 22 studiesexploring diabetes prevalence and exploring views and experiences of diabetes in peoplewith ID were identified and included. A narrative synthesis approach was utilised toamalgamate data extracted from the included studies regarding some 49,046 participantswith ID and diabetes and 31 care professionals and family members across Europe, NorthAmerica, New Zealand, Australia, China and Hong Kong.Results: Prevalence rates of diabetes in people with ID were highly varied, ranging from0.4% to 25%. 7 studies reported significantly higher rates of diabetes in people with ID thanthe general population. People with ID reported a basic understanding of diabetes andwanted to know more. Carers reported that they lack diabetes knowledge and do notroutinely encourage diabetes self-management skills. Several studies neglected to reportvital demographic information such as participants ’level of ID (13 studies) and diabetestype (16 studies) and the quality of included prevalence studies was variable.Conclusions: Further research in this field is required, notably prevalence studies whichcontrol for participant demographics and personal situations to obtain more accuratediabetes prevalence rates in this population group. People with ID and diabetes should beencouraged to participate in future research and we recommend exploring the feasibilityof adapting current mainstream diabetes management programmes for these individuals.
LanguageEnglish
Pages352-374
JournalResearch in Developmental Disabilities
Volume47
Early online date23 Oct 2015
DOIs
Publication statusPublished - Dec 2015

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Disabled Persons
Intellectual Disability
Caregivers
Cross-Sectional Studies
Demography
Hong Kong
Self Care
New Zealand
Population Groups
China
Research
Population

Keywords

  • intellectual disabilities
  • learning disabilities
  • diabetes
  • systematic review
  • prevalence

Cite this

MacRea, S., Brown, M., Karatzias, T., Taggart, L., Truesdale-Kennedy, M., Walley, R., ... Davie, M. (2015). Diabetes in people with intellectual disabilities: A systematic review of the literature. 47, 352-374. https://doi.org/10.1016/j.ridd.2015.10.003
MacRea, S ; Brown, M ; Karatzias, T ; Taggart, Laurence ; Truesdale-Kennedy, Maria ; Walley, R ; Sierka, A ; Northway, R ; Carey, M ; Davie, M. / Diabetes in people with intellectual disabilities: A systematic review of the literature. 2015 ; Vol. 47. pp. 352-374.
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MacRea, S, Brown, M, Karatzias, T, Taggart, L, Truesdale-Kennedy, M, Walley, R, Sierka, A, Northway, R, Carey, M & Davie, M 2015, 'Diabetes in people with intellectual disabilities: A systematic review of the literature', vol. 47, pp. 352-374. https://doi.org/10.1016/j.ridd.2015.10.003

Diabetes in people with intellectual disabilities: A systematic review of the literature. / MacRea, S; Brown, M; Karatzias, T; Taggart, Laurence; Truesdale-Kennedy, Maria; Walley, R; Sierka, A; Northway, R; Carey, M; Davie, M.

Vol. 47, 12.2015, p. 352-374.

Research output: Contribution to journalArticle

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AU - Brown, M

AU - Karatzias, T

AU - Taggart, Laurence

AU - Truesdale-Kennedy, Maria

AU - Walley, R

AU - Sierka, A

AU - Northway, R

AU - Carey, M

AU - Davie, M

PY - 2015/12

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