Development of a complex arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis

Claire Elizabeth Carswell, Joanne Reid, Ian Walsh, William Johnston, Jenny B Lee, Helen McAneney, Robert Mullan, Hugh Nelson, Michael Matthews, Elizabeth Weatherup, Andrea Spencer, Jean Michelo, Anne Quail, Grainne Kielty, Alistair Mackenzie, Jenny Elliott, Helen Noble

Research output: Contribution to journalArticlepeer-review

2 Citations (Scopus)
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Abstract

Background: Patients with end-stage kidney disease who receive haemodialysis experience a protracted treatment regimen that can result in an increased risk of depression and anxiety. Arts-based interventions could address this unique issue; however, no arts-based interventions have been developed for delivery within a haemodialysis unit and evaluation within a randomised controlled trials (RCTs). 

Aim: To develop a complex arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis. Methods: The development process utilised the Arts in Health framework (Fancourt, 2017). The framework was addressed through the establishment of an interdisciplinary advisory group, collaboration and consultation with stakeholders, a scoping and realist review, shadowing of artists-in-residence, personal arts practice and logic modelling. 

Results: The intervention involved six 1-h long, one-to-one facilitated sessions focused on creative writing and visual art. Patients could choose between art form and self-select a subject matter. The sessions had a primary focus on skill development and were delivered using principles derived from the psychological theory of flow. 

Conclusion: The Arts in Health framework provided an appropriate and pragmatic approach to intervention development. Complex arts-based interventions can be developed for the purpose of evaluation within a trial framework. This intervention was designed to strike a balance between standardised components, and a person-centred approach necessary to address existential boredom. 

Original languageEnglish
Article number127 (2021)
Number of pages15
JournalPilot and Feasibility Studies
Volume7
Issue number1
Early online date16 Jun 2021
DOIs
Publication statusPublished online - 16 Jun 2021

Bibliographical note

Funding was obtained from the Northern Ireland Kidney Patient Association and Kidney Care UK for the materials for the intervention.

Keywords

  • Haemodialysis
  • Intervention development
  • End-stage kidney disease
  • Chronic disease
  • Arts-based intervention
  • Arts in health

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