Developing a person-centred support service for families caring for children with significant disabilities in rural and urban areas

Lesley-Ann Black, Roy McConkey, Paul Roberts, Pauline Ferguson

    Research output: Contribution to journalArticle

    9 Citations (Scopus)

    Abstract

    The article describes an innovative, person-centredservice provided to families who had a child or teenager withsevere learning (intellectual) disabilities. It was delivered in threeareas within Northern Ireland: two urban and one rural.Theservice promoted the social inclusion of young people involunteer-run community activities, based around a personcentredplan developed with the child’s family. A three-yearformative evaluation of the service was undertaken (2006–2008)via interviews and focus groups with parents (N = 48), youngpeople (N = 19), volunteers (N = 7), community workers (N = 4)and referring social services staff (N = 14).The service wassuccessfully implemented in all three areas. In particular, it helpedparents to clarify their individual support needs and engaged theirchild in ordinary community activities. The distinctive features ofthe service and the changed ethos it represents are discussed.
    LanguageEnglish
    Pages111-131
    JournalJournal of Intellectual Disabilities
    Volume14
    Issue number2
    DOIs
    Publication statusPublished - 1 Oct 2010

    Fingerprint

    Disabled Children
    Northern Ireland
    Learning Disorders
    Focus Groups
    Social Work
    Intellectual Disability
    Volunteers
    Parents
    Interviews

    Cite this

    Black, Lesley-Ann ; McConkey, Roy ; Roberts, Paul ; Ferguson, Pauline. / Developing a person-centred support service for families caring for children with significant disabilities in rural and urban areas. In: Journal of Intellectual Disabilities. 2010 ; Vol. 14, No. 2. pp. 111-131.
    @article{2d44b4c60d0e490b9ca755c748b0522d,
    title = "Developing a person-centred support service for families caring for children with significant disabilities in rural and urban areas",
    abstract = "The article describes an innovative, person-centredservice provided to families who had a child or teenager withsevere learning (intellectual) disabilities. It was delivered in threeareas within Northern Ireland: two urban and one rural.Theservice promoted the social inclusion of young people involunteer-run community activities, based around a personcentredplan developed with the child’s family. A three-yearformative evaluation of the service was undertaken (2006–2008)via interviews and focus groups with parents (N = 48), youngpeople (N = 19), volunteers (N = 7), community workers (N = 4)and referring social services staff (N = 14).The service wassuccessfully implemented in all three areas. In particular, it helpedparents to clarify their individual support needs and engaged theirchild in ordinary community activities. The distinctive features ofthe service and the changed ethos it represents are discussed.",
    author = "Lesley-Ann Black and Roy McConkey and Paul Roberts and Pauline Ferguson",
    year = "2010",
    month = "10",
    day = "1",
    doi = "10.1177/1744629510381941",
    language = "English",
    volume = "14",
    pages = "111--131",
    journal = "Journal of Intellectual Disabilities",
    issn = "1744-6295",
    number = "2",

    }

    Developing a person-centred support service for families caring for children with significant disabilities in rural and urban areas. / Black, Lesley-Ann; McConkey, Roy; Roberts, Paul; Ferguson, Pauline.

    In: Journal of Intellectual Disabilities, Vol. 14, No. 2, 01.10.2010, p. 111-131.

    Research output: Contribution to journalArticle

    TY - JOUR

    T1 - Developing a person-centred support service for families caring for children with significant disabilities in rural and urban areas

    AU - Black, Lesley-Ann

    AU - McConkey, Roy

    AU - Roberts, Paul

    AU - Ferguson, Pauline

    PY - 2010/10/1

    Y1 - 2010/10/1

    N2 - The article describes an innovative, person-centredservice provided to families who had a child or teenager withsevere learning (intellectual) disabilities. It was delivered in threeareas within Northern Ireland: two urban and one rural.Theservice promoted the social inclusion of young people involunteer-run community activities, based around a personcentredplan developed with the child’s family. A three-yearformative evaluation of the service was undertaken (2006–2008)via interviews and focus groups with parents (N = 48), youngpeople (N = 19), volunteers (N = 7), community workers (N = 4)and referring social services staff (N = 14).The service wassuccessfully implemented in all three areas. In particular, it helpedparents to clarify their individual support needs and engaged theirchild in ordinary community activities. The distinctive features ofthe service and the changed ethos it represents are discussed.

    AB - The article describes an innovative, person-centredservice provided to families who had a child or teenager withsevere learning (intellectual) disabilities. It was delivered in threeareas within Northern Ireland: two urban and one rural.Theservice promoted the social inclusion of young people involunteer-run community activities, based around a personcentredplan developed with the child’s family. A three-yearformative evaluation of the service was undertaken (2006–2008)via interviews and focus groups with parents (N = 48), youngpeople (N = 19), volunteers (N = 7), community workers (N = 4)and referring social services staff (N = 14).The service wassuccessfully implemented in all three areas. In particular, it helpedparents to clarify their individual support needs and engaged theirchild in ordinary community activities. The distinctive features ofthe service and the changed ethos it represents are discussed.

    U2 - 10.1177/1744629510381941

    DO - 10.1177/1744629510381941

    M3 - Article

    VL - 14

    SP - 111

    EP - 131

    JO - Journal of Intellectual Disabilities

    T2 - Journal of Intellectual Disabilities

    JF - Journal of Intellectual Disabilities

    SN - 1744-6295

    IS - 2

    ER -