Developing a best practice model for partnership practice between specialist palliative care and intellectual disability services: A mixed methods study.

Dorry McLaughlin, Owen Barr, Sonja McIlfatrick, Roy McConkey

Research output: Contribution to journalArticle

14 Citations (Scopus)

Abstract

BACKGROUND: The lack of access to good quality palliative care for people with intellectual disabilities is highlighted in the international literature. In response, more partnership practice in end-of-life care is proposed.AIM: This study aimed to develop a best practice model to guide and promote partnership practice between specialist palliative care and intellectual disability services.DESIGN: A mixed methods research design involving two phases was used, underpinned by a conceptual model for partnership practice.SETTING/PARTICIPANTS: Phase 1 involved scoping end-of-life care to people with intellectual disability, based on self-completed questionnaires. In all, 47 of 66 (71.2%) services responded. In Phase 2, semi-structured interviews were undertaken with a purposive sample recruited of 30 health and social care professionals working in intellectual disability and palliative care services, who had provided palliative care to someone with intellectual disability. For both phases, data were collected from primary and secondary care in one region of the United Kingdom.RESULTS: In Phase 1, examples of good practice were apparent. However, partnership practice was infrequent and unmet educational needs were identified. Four themes emerged from the interviews in Phase 2: challenges and issues in end-of-life care, sharing and learning, supporting and empowering and partnership in practice.CONCLUSION: Joint working and learning between intellectual disability and specialist palliative care were seen as key and fundamental. A framework for partnership practice between both services has been developed which could have international applicability and should be explored with other services in end-of-life care.
LanguageEnglish
JournalPalliative Medicine
Volume28
Early online date19 Sep 2014
DOIs
Publication statusPublished - 1 Dec 2014

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Partnership Practice
Palliative Care
Practice Guidelines
Intellectual Disability
Terminal Care
Disabled Persons
Learning
Interviews
Secondary Care
Quality of Health Care
Primary Health Care
Research Design
Joints
Delivery of Health Care

Keywords

  • Partnership practice
  • intellectual disability
  • palliative care
  • questionnaires
  • interview

Cite this

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abstract = "BACKGROUND: The lack of access to good quality palliative care for people with intellectual disabilities is highlighted in the international literature. In response, more partnership practice in end-of-life care is proposed.AIM: This study aimed to develop a best practice model to guide and promote partnership practice between specialist palliative care and intellectual disability services.DESIGN: A mixed methods research design involving two phases was used, underpinned by a conceptual model for partnership practice.SETTING/PARTICIPANTS: Phase 1 involved scoping end-of-life care to people with intellectual disability, based on self-completed questionnaires. In all, 47 of 66 (71.2{\%}) services responded. In Phase 2, semi-structured interviews were undertaken with a purposive sample recruited of 30 health and social care professionals working in intellectual disability and palliative care services, who had provided palliative care to someone with intellectual disability. For both phases, data were collected from primary and secondary care in one region of the United Kingdom.RESULTS: In Phase 1, examples of good practice were apparent. However, partnership practice was infrequent and unmet educational needs were identified. Four themes emerged from the interviews in Phase 2: challenges and issues in end-of-life care, sharing and learning, supporting and empowering and partnership in practice.CONCLUSION: Joint working and learning between intellectual disability and specialist palliative care were seen as key and fundamental. A framework for partnership practice between both services has been developed which could have international applicability and should be explored with other services in end-of-life care.",
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