Determining the need for a breast cancer awareness educational intervention for women with mild/moderate levels of intellectual disability: A qualitative descriptive study

Susan Walsh , Josephine Hegarty , Elaine Lehane , Dawn Farrell, Laurence Taggart, Louise Kelly , Laura Sham , Maria Corrigian , Maria Caples , Ann Marie Martin , Sabin Tabirca, Mark Corrigian , Mairin O'Mahony

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Abstract

Objective: Following a review of the existing body of literature, this study aimed to explore the need for a breast cancer awareness intervention specifically targeted at women with mild/moderate levels of intellectual disability (ID) and provide perspectives on the preferred processes and content underpinning an intervention. Methods: A qualitative, descriptive design using semi-structured, individual (n = 5) and focus group (n = 5) interviews were used to engage with a non-probability, purposive sample of key stakeholders (n = 25) including women with mild/moderate levels of ID, caregivers and healthcare professionals. Data were analysed using qualitative content analysis. Results: Findings highlighted that an educational intervention should focus on breast awareness as opposed to breast cancer awareness. Additionally, findings identified that a combined breast awareness and healthy living intervention could be effective. However, the intervention needs to have a multimodal, hands-on, person-centred approach to learning which is underpinned by theory. Furthermore, integrating the caregivers and healthcare professionals into the intervention is recommended. Conclusion: Findings from this study provide a foundation for developing and implementing a theoretically underpinned, multimodal, breast awareness and healthy living educational intervention for women with mild/moderate levels of ID.

Original languageEnglish
Article numbere13590
Pages (from-to)1-11
Number of pages11
JournalEuropean Journal of Cancer Care
Early online date7 Apr 2022
DOIs
Publication statusE-pub ahead of print - 7 Apr 2022

Bibliographical note

Funding Information:
I owe many thanks to the late Ms Aine Byrne (Cope Foundation, Speech and Language Therapy Department, Cork, Ireland) for her contribution to this body of research. This research was funded by the Health Research Board (PDG/2015/2). Open access funding provided by IReL.

Publisher Copyright:
© 2022 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd.

Keywords

  • breast awareness
  • breast cancer awareness
  • education
  • healthy living
  • intellectual disability
  • qualitative
  • ORIGINAL ARTICLE
  • Oncology

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