Critical features of short break and community support services to families and disabled young people whose behaviour is severely challenging.

Roy McConkey, Clare Gent, Emma Scowcroft

    Research output: Contribution to journalArticle

    10 Citations (Scopus)

    Abstract

    Parenting a child with severely challenging behaviours is very stressful and threatens family well-being. Short break (respite) services are commonly provided as a support to families but surprisingly little attention has been paid to adapting these services when children and families have complex needs. This article describes the model of service that has evolved in three separate locations which successfully provides overnight short breaks and/or community-based support to families. The model was documented and validated through individual and group interviews with a range of stakeholders – around 30 in all. The services are embedded within multi-agency partnerships and four particular features are highlighted: the values and ethos underpinning the service; the service procedures; the organization of short breaks; and the role of an intensive support/outreach service. The rationale for complex service models is discussed and the key lessons for replicating this model are reviewed.
    Original languageEnglish
    Pages (from-to)252-268
    JournalJournal of Intellectual Disabilities
    Volume15
    Issue number4
    DOIs
    Publication statusPublished - 21 Dec 2011

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