Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-00: a case study of an academic-practice network

Corinna Grindle; Louise  Denne; Emily  Roberts Tyler; Suzi Sapiets; Magda Apanasionok; Carl  Hughes; Richard Hastings; Nick  Gore; Peter Baker; Claire McDowell

doi:10.1108/TLDR-08-2023-0018

Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-00: a case study of an academic-practice network

Corinna Grindle
, Louise Denne
, Emily Roberts Tyler
, Suzi Sapiets
, Magda Apanasionok
, Carl Hughes
, Richard Hastings
, Nick Gore
, Peter Baker
, Claire McDowell

Research output: Contribution to journal › Article › peer-review

4 Citations (Scopus)

114 Downloads (Pure)

Abstract

Purpose

With a historic lack of attention to synthesis methods such as systematic review and meta-analysis and a lack of randomised controlled trials, the evidence base for behavioural interventions for children and adults who are autistic or are diagnosed with developmental disabilities is patchy. The Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN), a network of like-minded researchers and practitioners across the UK, aims to address this. The purpose of this paper is to describe the network’s work and provide the context for the remaining articles in the special issue that exemplify network projects.
Design/methodology/approach

In this case study paper, the authors describe how the SF-DDARIN works and is resourced, detailing the process used to maximise research opportunities by facilitating network members working together. The authors outline the progressive research steps that the SF-DDARIN has identified are needed to develop and improve the evidence base for behavioural interventions systematically and, with examples, describe how the network delivers these steps.
Findings

Since its establishment in 2016, the SF-DDARIN network members have collectively worked on more than 53 projects involving over 50 researchers, had over 120 special schools contribute to projects and have recruited over 500 participants. This has been achieved through funding from the Sharland Foundation, primarily to cover the staffing costs of a small support team and internship partnerships with external organisations. Some projects have attracted external funding.
Originality/value

SF-DDARIN may provide an innovative, effective and resource-efficient model for other groups seeking to develop and extend their evidence base in developmental disability research.

Original language	English
Article number	1
Pages (from-to)	5-13
Number of pages	9
Journal	Tizard Learning Disability Review
Volume	29
Issue number	1
DOIs	https://doi.org/10.1108/TLDR-08-2023-0018
Publication status	Published (in print/issue) - 29 Apr 2024

Bibliographical note

Publisher Copyright:
© 2024, Emerald Publishing Limited.

Funding

The Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN) is a network of like-minded researchers and practitioners. Its overarching purpose is to increase the reach and impact of evidence-based behavioural interventions for children and adults with developmental disabilities (including learning disabilities and/or autism) to support their independence and increased quality of life. Established in the UK in 2016, with funding from the Sharland Foundation, it is a collaboration between the centre for research in intellectual and developmental disabilities at the University of Warwick; Bangor University; Ulster University; and the Tizard Centre, University of Kent. Now into its fourth round of funding, the network has 39 active members, comprising 23 academics (some of whom are researcher-practitioners) from 10 universities and 16 practitioners working across 11 applied settings in the UK. Members from applied settings include those working in schools, colleges or community service settings for individuals with developmental disabilities. Membership is by invitation, and apart from the roles outlined below, individual member contributions are not funded. SF-DDARIN members contribute to network activities in their own time while gaining access to the network\u2019s resources (e.g. databases developed, access to Masters and PhD projects). The network is directed and managed by a core management team which oversees and prioritises projects and resource allocation. The management team includes seven members drawn from each of the collaborating universities. A critical factor in sustaining projects for which there is otherwise no external funding is the availability of project management and research assistant resources. The management team is supported by a network manager (currently 0.2 FTE), two post-doc researchers (0.6 FTE each, based at the Centre for Research in Intellectual and Developmental Disabilities and the Tizard Centre) and a PhD student.

Funders
University of Warwick
Bangor University

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being
SDG 4 Quality Education
SDG 5 Gender Equality
SDG 10 Reduced Inequalities

Keywords

evidence based
practice
developmental disabilities
behavioural interventions
research and impact
Behavioural interventions
Evidence-based practice
Developmental disabilities
Research and impact

Access to Document

10.1108/TLDR-08-2023-0018

Author Accepted ManuscriptAuthor Accepted Manuscript, 131 KB

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Cite this

Grindle, C., Denne, L., Roberts Tyler, E., Sapiets, S., Apanasionok, M., Hughes, C., Hastings, R., Gore, N., Baker, P., & McDowell, C. (2024). Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-00: a case study of an academic-practice network. Tizard Learning Disability Review, 29(1), 5-13. Article 1. https://doi.org/10.1108/TLDR-08-2023-0018

Grindle, Corinna ; Denne, Louise ; Roberts Tyler, Emily et al. / Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-00 : a case study of an academic-practice network. In: Tizard Learning Disability Review. 2024 ; Vol. 29, No. 1. pp. 5-13.

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Grindle, C, Denne, L, Roberts Tyler, E, Sapiets, S, Apanasionok, M, Hughes, C, Hastings, R, Gore, N, Baker, P & McDowell, C 2024, 'Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-00: a case study of an academic-practice network', Tizard Learning Disability Review, vol. 29, no. 1, 1, pp. 5-13. https://doi.org/10.1108/TLDR-08-2023-0018

Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-00: a case study of an academic-practice network. / Grindle, Corinna; Denne, Louise ; Roberts Tyler, Emily et al.
In: Tizard Learning Disability Review, Vol. 29, No. 1, 1, 29.04.2024, p. 5-13.

Research output: Contribution to journal › Article › peer-review

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Grindle C, Denne L, Roberts Tyler E, Sapiets S, Apanasionok M, Hughes C et al. Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2023-00: a case study of an academic-practice network. Tizard Learning Disability Review. 2024 Apr 29;29(1):5-13. 1. doi: 10.1108/TLDR-08-2023-0018