Caregivers of people with multiple sclerosis: experiences of support

Research output: Contribution to journalArticle

41 Citations (Scopus)

Abstract

The aim of this phenomenological study was to gain an understanding of the experiences of a group of caregivers of people with multiple sclerosis (MS). Sixteen caregivers from Northern Ireland and the Republic of Ireland participated in focus group inter views. The theme of support, either sought or received, emerged as a major aspect of the experiences described. Caregivers' feelings about, and experiences of, support appeared to change over time. Four common phases that caregivers experienced in relation to support were identified as: `rejecting', `resisting', `seeking' and `accepting' support. This paper will present and discuss these four phases. The study findings highlight the complexity of issues surrounding a caregiver's decision to seek and accept support. It is hoped that the phases identified within this study are useful in depicting how caregivers of people with MS may progress through stages in their desire for, and acceptance of, support. Findings from this study are useful to healthcare professionals who work with people with MS and their caregivers by increasing awareness that a caregiver's attitude toward and acceptance of support changes over time.
LanguageEnglish
Pages219-230
JournalMultiple Sclerosis
Volume10
Issue number2
DOIs
Publication statusPublished - 2004

Fingerprint

Caregivers
Multiple Sclerosis
Northern Ireland
Focus Groups
Ireland
Emotions
Delivery of Health Care

Keywords

  • caregivers
  • community networks
  • delivery of healthcare
  • health personnel
  • multiple sclerosis
  • social support

Cite this

@article{677c2046c13743baa9dc136d822fe133,
title = "Caregivers of people with multiple sclerosis: experiences of support",
abstract = "The aim of this phenomenological study was to gain an understanding of the experiences of a group of caregivers of people with multiple sclerosis (MS). Sixteen caregivers from Northern Ireland and the Republic of Ireland participated in focus group inter views. The theme of support, either sought or received, emerged as a major aspect of the experiences described. Caregivers' feelings about, and experiences of, support appeared to change over time. Four common phases that caregivers experienced in relation to support were identified as: `rejecting', `resisting', `seeking' and `accepting' support. This paper will present and discuss these four phases. The study findings highlight the complexity of issues surrounding a caregiver's decision to seek and accept support. It is hoped that the phases identified within this study are useful in depicting how caregivers of people with MS may progress through stages in their desire for, and acceptance of, support. Findings from this study are useful to healthcare professionals who work with people with MS and their caregivers by increasing awareness that a caregiver's attitude toward and acceptance of support changes over time.",
keywords = "caregivers, community networks, delivery of healthcare, health personnel, multiple sclerosis, social support",
author = "LP McKeown and Alison Porter-Armstrong and GD Baxter",
year = "2004",
doi = "10.1191/1352458504ms1008oa",
language = "English",
volume = "10",
pages = "219--230",
journal = "Multiple Sclerosis",
issn = "1352-4585",
number = "2",

}

Caregivers of people with multiple sclerosis: experiences of support. / McKeown, LP; Porter-Armstrong, Alison; Baxter, GD.

In: Multiple Sclerosis, Vol. 10, No. 2, 2004, p. 219-230.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Caregivers of people with multiple sclerosis: experiences of support

AU - McKeown, LP

AU - Porter-Armstrong, Alison

AU - Baxter, GD

PY - 2004

Y1 - 2004

N2 - The aim of this phenomenological study was to gain an understanding of the experiences of a group of caregivers of people with multiple sclerosis (MS). Sixteen caregivers from Northern Ireland and the Republic of Ireland participated in focus group inter views. The theme of support, either sought or received, emerged as a major aspect of the experiences described. Caregivers' feelings about, and experiences of, support appeared to change over time. Four common phases that caregivers experienced in relation to support were identified as: `rejecting', `resisting', `seeking' and `accepting' support. This paper will present and discuss these four phases. The study findings highlight the complexity of issues surrounding a caregiver's decision to seek and accept support. It is hoped that the phases identified within this study are useful in depicting how caregivers of people with MS may progress through stages in their desire for, and acceptance of, support. Findings from this study are useful to healthcare professionals who work with people with MS and their caregivers by increasing awareness that a caregiver's attitude toward and acceptance of support changes over time.

AB - The aim of this phenomenological study was to gain an understanding of the experiences of a group of caregivers of people with multiple sclerosis (MS). Sixteen caregivers from Northern Ireland and the Republic of Ireland participated in focus group inter views. The theme of support, either sought or received, emerged as a major aspect of the experiences described. Caregivers' feelings about, and experiences of, support appeared to change over time. Four common phases that caregivers experienced in relation to support were identified as: `rejecting', `resisting', `seeking' and `accepting' support. This paper will present and discuss these four phases. The study findings highlight the complexity of issues surrounding a caregiver's decision to seek and accept support. It is hoped that the phases identified within this study are useful in depicting how caregivers of people with MS may progress through stages in their desire for, and acceptance of, support. Findings from this study are useful to healthcare professionals who work with people with MS and their caregivers by increasing awareness that a caregiver's attitude toward and acceptance of support changes over time.

KW - caregivers

KW - community networks

KW - delivery of healthcare

KW - health personnel

KW - multiple sclerosis

KW - social support

U2 - 10.1191/1352458504ms1008oa

DO - 10.1191/1352458504ms1008oa

M3 - Article

VL - 10

SP - 219

EP - 230

JO - Multiple Sclerosis

T2 - Multiple Sclerosis

JF - Multiple Sclerosis

SN - 1352-4585

IS - 2

ER -