Assessment of pain in people with dementia at end of life: a systematic review

Research output: Contribution to journalArticlepeer-review


Background: People with dementia may not receive the same quality of palliative care as those with other life-limiting conditions, particularly at end of life (EOL). Aims: To understand the best way to examine pain for people with dementia. Methods: A systematic review of tools to assess pain in patients with dementia near the end of life, PubMed, Medline, Embase, (EBSCO Host) CINAHL Plus, Web of Science, Psycinfo, PsycArticles and Scopus were searched. Findings: 15
articles were identified which were synthesised qualitatively. Conclusion: There are a range of pain assessment tools which are appropriate for use for people with dementia, but 15 studies used a formal tool. A more robust approach is needed to improve the quality of research for measurement and management of pain in this population.
Original languageEnglish
Pages (from-to)334-346
Number of pages12
JournalInternational Journal of Palliative Nursing
Issue number1
Publication statusAccepted/In press - 17 Nov 2020


  • Dementia
  • Palliative care
  • Pain tools
  • Pain assessment
  • End of Life

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