An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders

Nicola Black; Sophie Chung; Calvert Tisdale; Luz Sousa Fialho; Apinun Aramrattana; Sawitri Assanangkornchai; Alex Blaszczynski; Henrietta Bowden-Jones; Wim van den Brink; Adrian Brown; Qiana L Brown; Linda B Cottler; Maury Elsasser; Marica Ferri; Maria Florence; Ralitza Gueorguieva; Ryan Hampton; Suzie Hudson; Peter J Kelly; Nicholas Lintzeris; Lynette Murphy; Abhijit Nadkarni; Joanne Neale; Daniel Rosen; Hans-Jürgen Rumpf; Brian Rush; Gabriel Segal; Gillian W Shorter; Marta Torrens; Christopher Wait; Katherine Young; Michael Farrell

doi:10.3390/jcm13072154

An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders

Nicola Black
, Sophie Chung
, Calvert Tisdale
, Luz Sousa Fialho
, Apinun Aramrattana
, Sawitri Assanangkornchai
, Alex Blaszczynski
, Henrietta Bowden-Jones
, Wim van den Brink
, Adrian Brown
, Qiana L Brown
, Linda B Cottler
, Maury Elsasser
, Marica Ferri
, Maria Florence
, Ralitza Gueorguieva
, Ryan Hampton
, Suzie Hudson
, Peter J Kelly
, Nicholas Lintzeris

Lynette Murphy, Abhijit Nadkarni, Joanne Neale, Daniel Rosen, Hans-Jürgen Rumpf, Brian Rush, Gabriel Segal, Gillian W Shorter, Marta Torrens, Christopher Wait, Katherine Young, Michael Farrell

Psychology Research

Research output: Contribution to journal › Article › peer-review

20 Citations (Scopus)

76 Downloads (Pure)

Abstract

Background: In 1990, the United States' Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. Methods: To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience (n = 5; 19%), convened over 16 months (December 2018-March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. Results: The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Conclusions: Use of consistent and meaningful outcome measurement facilitates carer-patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.

Original language	English
Article number	2154
Pages (from-to)	1-20
Number of pages	20
Journal	Journal of clinical medicine
Volume	13
Issue number	7
Early online date	8 Apr 2024
DOIs	https://doi.org/10.3390/jcm13072154
Publication status	Published (in print/issue) - 8 Apr 2024

Bibliographical note

Data Availability Statement

The final set of patient-centred outcome measures, as well as data dictionary and reference guide are freely available at this link: https://connect.ichom.org/patient-centered-outcome-measures/disorders-related-to-substance-abuse-or-addictive-behaviours/, accessed on 21 February 2024. Data are included in the article and Supplementary Materials as aggregated values; further inquiries can be directed to the corresponding author.

Funding

This project was made possible thanks to the generous contributions of strategic partnerships with NHS England and NHS Improvement; the NSW Agency for Clinical Innovation, Australia; Providence Health Care, USA; and Region V\u00E4stra G\u00F6taland, Sweden. Members of the working group did not receive financial compensation for their participation. The opinions expressed in this article are those of the authors; no representation of the views of the funding sources is implied. The funders played no role in the study design, collection, analysis or interpretation of the data, writing of the report, or the decision to submit the article for publication.

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Addiction
Outcome Measures
Patient-centered
Substance Use
Delphi
Gambling Disorder
Addictive Disorders
Core Outcome Set
Gaming Disorder
Ichom
Consensus Set
outcome measures
addiction
ICHOM
core outcome set
addictive disorders
patient-centered
substance use
consensus set
gaming disorder
gambling disorder

Access to Document

10.3390/jcm13072154

jcm-13-02154Final published version, 1.37 MBLicence: CC BY

Cite this

Black, N., Chung, S., Tisdale, C., Fialho, L. S., Aramrattana, A., Assanangkornchai, S., Blaszczynski, A., Bowden-Jones, H., van den Brink, W., Brown, A., Brown, Q. L., Cottler, L. B., Elsasser, M., Ferri, M., Florence, M., Gueorguieva, R., Hampton, R., Hudson, S., Kelly, P. J., ... Farrell, M. (2024). An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders. Journal of clinical medicine, 13(7), 1-20. Article 2154. https://doi.org/10.3390/jcm13072154

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abstract = "Background: In 1990, the United States' Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. Methods: To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience (n = 5; 19\%), convened over 16 months (December 2018-March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. Results: The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Conclusions: Use of consistent and meaningful outcome measurement facilitates carer-patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.",

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Black, N, Chung, S, Tisdale, C, Fialho, LS, Aramrattana, A, Assanangkornchai, S, Blaszczynski, A, Bowden-Jones, H, van den Brink, W, Brown, A, Brown, QL, Cottler, LB, Elsasser, M, Ferri, M, Florence, M, Gueorguieva, R, Hampton, R, Hudson, S, Kelly, PJ, Lintzeris, N, Murphy, L, Nadkarni, A, Neale, J, Rosen, D, Rumpf, H-J, Rush, B, Segal, G, Shorter, GW, Torrens, M, Wait, C, Young, K & Farrell, M 2024, 'An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders', Journal of clinical medicine, vol. 13, no. 7, 2154, pp. 1-20. https://doi.org/10.3390/jcm13072154

TY - JOUR

T1 - An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders

AU - Black, Nicola

AU - Chung, Sophie

AU - Tisdale, Calvert

AU - Fialho, Luz Sousa

AU - Aramrattana, Apinun

AU - Assanangkornchai, Sawitri

AU - Blaszczynski, Alex

AU - Bowden-Jones, Henrietta

AU - van den Brink, Wim

AU - Brown, Adrian

AU - Brown, Qiana L

AU - Cottler, Linda B

AU - Elsasser, Maury

AU - Ferri, Marica

AU - Florence, Maria

AU - Gueorguieva, Ralitza

AU - Hampton, Ryan

AU - Hudson, Suzie

AU - Kelly, Peter J

AU - Lintzeris, Nicholas

AU - Murphy, Lynette

AU - Nadkarni, Abhijit

AU - Neale, Joanne

AU - Rosen, Daniel

AU - Rumpf, Hans-Jürgen

AU - Rush, Brian

AU - Segal, Gabriel

AU - Shorter, Gillian W

AU - Torrens, Marta

AU - Wait, Christopher

AU - Young, Katherine

AU - Farrell, Michael

PY - 2024/4/8

Y1 - 2024/4/8

N2 - Background: In 1990, the United States' Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. Methods: To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience (n = 5; 19%), convened over 16 months (December 2018-March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. Results: The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Conclusions: Use of consistent and meaningful outcome measurement facilitates carer-patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.

AB - Background: In 1990, the United States' Institute of Medicine promoted the principles of outcomes monitoring in the alcohol and other drugs treatment field to improve the evidence synthesis and quality of research. While various national outcome measures have been developed and employed, no global consensus on standard measurement has been agreed for addiction. It is thus timely to build an international consensus. Convened by the International Consortium for Health Outcomes Measurement (ICHOM), an international, multi-disciplinary working group reviewed the existing literature and reached consensus for a globally applicable minimum set of outcome measures for people who seek treatment for addiction. Methods: To this end, 26 addiction experts from 11 countries and 5 continents, including people with lived experience (n = 5; 19%), convened over 16 months (December 2018-March 2020) to develop recommendations for a minimum set of outcome measures. A structured, consensus-building, modified Delphi process was employed. Evidence-based proposals for the minimum set of measures were generated and discussed across eight videoconferences and in a subsequent structured online consultation. The resulting set was reviewed by 123 professionals and 34 people with lived experience internationally. Results: The final consensus-based recommendation includes alcohol, substance, and tobacco use disorders, as well as gambling and gaming disorders in people aged 12 years and older. Recommended outcome domains are frequency and quantity of addictive disorders, symptom burden, health-related quality of life, global functioning, psychosocial functioning, and overall physical and mental health and wellbeing. Standard case-mix (moderator) variables and measurement time points are also recommended. Conclusions: Use of consistent and meaningful outcome measurement facilitates carer-patient relations, shared decision-making, service improvement, benchmarking, and evidence synthesis for the evaluation of addiction treatment services and the dissemination of best practices. The consensus set of recommended outcomes is freely available for adoption in healthcare settings globally.

KW - Addiction

KW - Outcome Measures

KW - Patient-centered

KW - Substance Use

KW - Delphi

KW - Gambling Disorder

KW - Addictive Disorders

KW - Core Outcome Set

KW - Gaming Disorder

KW - Ichom

KW - Consensus Set

KW - outcome measures

KW - addiction

KW - ICHOM

KW - core outcome set

KW - addictive disorders

KW - patient-centered

KW - substance use

KW - consensus set

KW - gaming disorder

KW - gambling disorder

UR - https://www.scopus.com/pages/publications/85190298412

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DO - 10.3390/jcm13072154

M3 - Article

C2 - 38610919

SN - 2077-0383

VL - 13

SP - 1

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JO - Journal of clinical medicine

JF - Journal of clinical medicine

IS - 7

M1 - 2154

ER -

An International, Multidisciplinary Consensus Set of Patient-Centered Outcome Measures for Substance-Related and Addictive Disorders

Abstract

Bibliographical note

Data Availability Statement

Funding

UN SDGs

Keywords

Access to Document

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Cite this