Active carers: living with chronic obstructive pulmonary disease in the family (102kb)

Alison Spence, Felicity Hasson, Mary Waldron, George Kernohan, Dorry McLaughlin, Barbara Cochrane, Barbara Watson

Research output: Contribution to journalArticle

Abstract

It has long been recognised that the majority of care provided in chronic illness comes not from health and social care professionals, but from family and friends. One such illness is chronic obstructive pulmonary disease (COPD), a leading cause of morbidity and mortality in the developed world. To explore the specific care needs of informal caregivers of patients with advanced COPD, interviews were conducted with seven active family caregivers. Interviews were taped, transcribed and content analysed to obtain the caregivers’ needs. Results confirm that family caregivers provide direct care with little support and assistance. Participants reported restricted activities of daily living and some emotional distress. There were knowledge deficiencies among caregivers relating to the COPD illness trajectory and little awareness of the potential of palliative care. Family caregivers need social and professional support while caring for a patient at home. This would help to ensure that their physical and emotional health does not suffer. There is a need to devise interventions to ensure family caregivers are supported.
LanguageEnglish
Pages368-372
JournalInternational Journal of Palliative Nursing
Volume14
Issue number8
Publication statusPublished - 1 Aug 2008

Fingerprint

Chronic Obstructive Pulmonary Disease
Caregivers
Interviews
Activities of Daily Living
Palliative Care
Patient Care
Chronic Disease
Morbidity
Delivery of Health Care
Mortality
Health

Cite this

Spence, A., Hasson, F., Waldron, M., Kernohan, G., McLaughlin, D., Cochrane, B., & Watson, B. (2008). Active carers: living with chronic obstructive pulmonary disease in the family (102kb). 14(8), 368-372.
Spence, Alison ; Hasson, Felicity ; Waldron, Mary ; Kernohan, George ; McLaughlin, Dorry ; Cochrane, Barbara ; Watson, Barbara. / Active carers: living with chronic obstructive pulmonary disease in the family (102kb). 2008 ; Vol. 14, No. 8. pp. 368-372.
@article{666b83586e4d4ee9a4b649de51d263a8,
title = "Active carers: living with chronic obstructive pulmonary disease in the family (102kb)",
abstract = "It has long been recognised that the majority of care provided in chronic illness comes not from health and social care professionals, but from family and friends. One such illness is chronic obstructive pulmonary disease (COPD), a leading cause of morbidity and mortality in the developed world. To explore the specific care needs of informal caregivers of patients with advanced COPD, interviews were conducted with seven active family caregivers. Interviews were taped, transcribed and content analysed to obtain the caregivers’ needs. Results confirm that family caregivers provide direct care with little support and assistance. Participants reported restricted activities of daily living and some emotional distress. There were knowledge deficiencies among caregivers relating to the COPD illness trajectory and little awareness of the potential of palliative care. Family caregivers need social and professional support while caring for a patient at home. This would help to ensure that their physical and emotional health does not suffer. There is a need to devise interventions to ensure family caregivers are supported.",
author = "Alison Spence and Felicity Hasson and Mary Waldron and George Kernohan and Dorry McLaughlin and Barbara Cochrane and Barbara Watson",
year = "2008",
month = "8",
day = "1",
language = "English",
volume = "14",
pages = "368--372",
number = "8",

}

Spence, A, Hasson, F, Waldron, M, Kernohan, G, McLaughlin, D, Cochrane, B & Watson, B 2008, 'Active carers: living with chronic obstructive pulmonary disease in the family (102kb)', vol. 14, no. 8, pp. 368-372.

Active carers: living with chronic obstructive pulmonary disease in the family (102kb). / Spence, Alison; Hasson, Felicity; Waldron, Mary; Kernohan, George; McLaughlin, Dorry; Cochrane, Barbara; Watson, Barbara.

Vol. 14, No. 8, 01.08.2008, p. 368-372.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Active carers: living with chronic obstructive pulmonary disease in the family (102kb)

AU - Spence, Alison

AU - Hasson, Felicity

AU - Waldron, Mary

AU - Kernohan, George

AU - McLaughlin, Dorry

AU - Cochrane, Barbara

AU - Watson, Barbara

PY - 2008/8/1

Y1 - 2008/8/1

N2 - It has long been recognised that the majority of care provided in chronic illness comes not from health and social care professionals, but from family and friends. One such illness is chronic obstructive pulmonary disease (COPD), a leading cause of morbidity and mortality in the developed world. To explore the specific care needs of informal caregivers of patients with advanced COPD, interviews were conducted with seven active family caregivers. Interviews were taped, transcribed and content analysed to obtain the caregivers’ needs. Results confirm that family caregivers provide direct care with little support and assistance. Participants reported restricted activities of daily living and some emotional distress. There were knowledge deficiencies among caregivers relating to the COPD illness trajectory and little awareness of the potential of palliative care. Family caregivers need social and professional support while caring for a patient at home. This would help to ensure that their physical and emotional health does not suffer. There is a need to devise interventions to ensure family caregivers are supported.

AB - It has long been recognised that the majority of care provided in chronic illness comes not from health and social care professionals, but from family and friends. One such illness is chronic obstructive pulmonary disease (COPD), a leading cause of morbidity and mortality in the developed world. To explore the specific care needs of informal caregivers of patients with advanced COPD, interviews were conducted with seven active family caregivers. Interviews were taped, transcribed and content analysed to obtain the caregivers’ needs. Results confirm that family caregivers provide direct care with little support and assistance. Participants reported restricted activities of daily living and some emotional distress. There were knowledge deficiencies among caregivers relating to the COPD illness trajectory and little awareness of the potential of palliative care. Family caregivers need social and professional support while caring for a patient at home. This would help to ensure that their physical and emotional health does not suffer. There is a need to devise interventions to ensure family caregivers are supported.

M3 - Article

VL - 14

SP - 368

EP - 372

IS - 8

ER -

Spence A, Hasson F, Waldron M, Kernohan G, McLaughlin D, Cochrane B et al. Active carers: living with chronic obstructive pulmonary disease in the family (102kb). 2008 Aug 1;14(8):368-372.