Abstract
Objectives: This systematic review aimed to determine the content, mode of delivery, assessment, and outcomes of educational interventions to equip health and social care professionals when delivering end of life supportive care for parents dying with cancer who have dependent children. Data Sources: A mixed-methods systematic review was undertaken. Six electronic database were searched from their inception until September 2023 (Medline OVID, CINAHL, EMBASE, PsycINFO, Web of Science, and ERIC), supplemented by citation chaining, grey literature searches using Google Advanced Search and relevant professional bodies. Quality assessment was conducted independently by two researchers on the included studies. A convergent integrated approach was utilised for data synthesis. Conclusion: The review identified two educational interventions; highlighting a dearth of training opportunities to equip health and social care professionals to provide supportive care to families when a parent is at end of life with cancer. Despite health and social care professionals reported need and desire for upskilling in this area of clinical practice, there is a severe lack of evidence-based educational interventions. It is imperative that effective educational interventions are made accessible to professionals. Implications for Nursing Practice: There is an imminent need for robust educational interventions to be developed, as health and social care professionals often lack the knowledge, skills and confidence on how best to support families when a parent of dependent children is at end of life. Health and social care professionals engagement with high-quality, evidence-based and theory-driven educational interventions has the potential to impact professionals’ provision of family-centred cancer care at end of life. This could lead to better mental and physical outcomes for the whole family at end of life and in bereavement.
Original language | English |
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Article number | 151474 |
Pages (from-to) | 1-11 |
Number of pages | 12 |
Journal | Seminars in oncology nursing |
Volume | 39 |
Issue number | 5 |
Early online date | 21 Jul 2023 |
DOIs | |
Publication status | Published online - 21 Jul 2023 |
Bibliographical note
Funding Information:This research received funding from the Higher Education Authority North South Research Programme. The authors alone are responsible for the content of this report. Prof Cherith Semple was a Guest Editor for the Parental Cancer in Young Families’ Special Issue of Seminars in Oncology Nursing. As an author of this paper, she did not participate in any editorial process or decision-making, which was handled by another editor. Dr Amanda Drury an Associate Editor for Seminars in Oncology Nursing. As an author of this paper, she did not participate in any editorial process or decision-making, which was handled by another editor. CON and CS conceptualized and secured funding for this study. JH developed the initial review protocol, with support from CON, CS, AD and TMC. JH developed the search strategy and ran the searches. JH and SS were involved with screening the search results. SS and JH engaged with data extraction and quality assessment of included studies. SS synthesized the findings and drafted the initial paper. All authors (CON, CS, JH, SS, AD, TMC) were involved with the interpretation of the findings, critically reviewed, and approved the final manuscript. Data generated are available from authors by reasonable request. The authors would like to acknowledge the contribution of Dr Katie Gillespie to the review and the contribution of subject librarians at University College Dublin and Ulster University, including Kelly McCoo and Diarmuid Stokes, in the development of the search strategy.
Funding Information:
This research received funding from the Higher Education Authority North South Research Programme. The authors alone are responsible for the content of this report.
Publisher Copyright:
© 2023 The Authors
Keywords
- Family-centred care
- End of Life
- Cancer
- Children
- Systematic Review
- Parents
- Family-centered care
- Systematic review
- End of life