A study protocol for a pilot RCT of a structured education programme (DESMOND-ID) for adults with intellectual disabilities and Type 2 diabetes

Laurence Taggart, Maria Truesdale-Kennedy, Vivien Coates

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Abstract

Aim: To explore whether we can design an RCT that will test if DESMOND-ID is more effective than usual care in adults with ID to reduce Hb1Ac. Method: The RCT is a two armed, individually randomised, pilot trail in adults with ID and T2D, and their carers comparing the DESMOND-ID programme with usual routine care. 60 adults with mild-moderate ID from N Ireland, Scotland and Wales will be recruited: 20 participants from each country. Participants will be assigned to 1 of 2 conditions via the use of a computerised random number selection system. The DESMOND-ID programme is based upon amendments that have been made to the original programme. A range of data will be collected from the adults with ID (bio-medical data, psycho-social and self-management strategies) and from their family/paid carers. Focus groups with all the participants will assess the acceptability of the intervention. Discussion: The lack of planning appropriate structured education programmes and educational materials for adults with ID and T2D will continue lead to additional health conditions developing. There are significant benefits to be gained in adapting structured education programmes shown to be effective in the non-ID population for people with ID.
LanguageEnglish
Pages297-297
JournalJournal of Applied Research in Intellectual Disabilities
Volume27
Issue number4
Publication statusPublished - Jul 2014

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Intellectual Disability
Type 2 Diabetes Mellitus
Caregivers
chronic illness
disability
Education
Wales
Scotland
Self Care
Focus Groups
Ireland
education
Health
Population
amendment
planning
lack
health
management
Group

Cite this

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abstract = "Aim: To explore whether we can design an RCT that will test if DESMOND-ID is more effective than usual care in adults with ID to reduce Hb1Ac. Method: The RCT is a two armed, individually randomised, pilot trail in adults with ID and T2D, and their carers comparing the DESMOND-ID programme with usual routine care. 60 adults with mild-moderate ID from N Ireland, Scotland and Wales will be recruited: 20 participants from each country. Participants will be assigned to 1 of 2 conditions via the use of a computerised random number selection system. The DESMOND-ID programme is based upon amendments that have been made to the original programme. A range of data will be collected from the adults with ID (bio-medical data, psycho-social and self-management strategies) and from their family/paid carers. Focus groups with all the participants will assess the acceptability of the intervention. Discussion: The lack of planning appropriate structured education programmes and educational materials for adults with ID and T2D will continue lead to additional health conditions developing. There are significant benefits to be gained in adapting structured education programmes shown to be effective in the non-ID population for people with ID.",
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AU - Truesdale-Kennedy, Maria

AU - Coates, Vivien

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AB - Aim: To explore whether we can design an RCT that will test if DESMOND-ID is more effective than usual care in adults with ID to reduce Hb1Ac. Method: The RCT is a two armed, individually randomised, pilot trail in adults with ID and T2D, and their carers comparing the DESMOND-ID programme with usual routine care. 60 adults with mild-moderate ID from N Ireland, Scotland and Wales will be recruited: 20 participants from each country. Participants will be assigned to 1 of 2 conditions via the use of a computerised random number selection system. The DESMOND-ID programme is based upon amendments that have been made to the original programme. A range of data will be collected from the adults with ID (bio-medical data, psycho-social and self-management strategies) and from their family/paid carers. Focus groups with all the participants will assess the acceptability of the intervention. Discussion: The lack of planning appropriate structured education programmes and educational materials for adults with ID and T2D will continue lead to additional health conditions developing. There are significant benefits to be gained in adapting structured education programmes shown to be effective in the non-ID population for people with ID.

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