Abstract

ABSTRACT SUBMISSION NURSING ETHICS CONFERENCE 2017CONTACT INFORMATIONPersonal details corresponding authorName: LairdFirst Name: ElizabethTitle: DrOrganisation: School of Nursing / Institute of Nursing and Health Research, Ulster University……..Email Address: ea.laird@ulster.ac.uk……..Street Address: Northland Road……..Postal Code: BT48 7JL…….City: Derry……..Country: Northern Ireland……..Phone Number: 028 71675006TITLEA strengths based approach in a study of facilitated reminiscence ABSTRACT AimTo highlight the ethical issues that we encountered and addressed in a dyad focused reminiscence study Background Without due attention, ageism and dementia-ism on the part of researchers can contribute to the malignant social psychology experienced by older adults living with dementia.Strengths based approach Our study, underpinned by values of personhood and empowerment focused on the strengths of older adults in the development of an i-Pad App to support individual specific reminiscence. In a joint approach, adults living with dementia and their family carers were considered dyads, with both having an equally active role throughout the entire research process. Collaborators in the planning of the study encompassed a lead dyad, reminiscence experts, and professionals employed in statutory memory services and the Alzheimer’s Society. Three phased studyPhase 1: The co-creation and testing of a reminiscence i-Pad App and user friendly information by a User Development Group comprising a sample of six dyads.Phase 2: A sample of 60 participants (30 dyads) recruited to a quasi-experimental study received guidance about facilitating reminiscence and the collection of memorabilia from trainers of the Reminiscence Network Northern Ireland, and training from an IT assistant in the use of the App to reminisce. Following this, the participants used the system in their own homes for three months. Data were collected pre-intervention and then at mid- and end- points during the intervention period. Outcome measures examined the impact of reminiscence on mutuality, wellbeing, quality of life and quality of the care-giving relationship. Phase 3: In a qualitative study, interviews were conducted with a sample of participants to explore their views and experience of using the reminiscence App. Ethical issues Each phase of the study presented the research team with ethical issues, and these will form the basis for the presentation. Ethical issues included: 1. Embracing inclusive ways in planning the study2. Developing sensitive use of language and rhetoric in verbal and written communications3. Utilising a co-creation model in the development and testing of the App and study documentation, and doing so in such a way that met the requirements of the ethics committees.4. Developing recruitment procedures that were appropriate, inclusive and not paternalistic.5. Managing the different needs of adults living with dementia and their carers in the context of a dyad focused research study.6. Facilitating informed consent in all stages of the study and in the presence of some aspects of cognitive decline.7. Observing a reappraisal of past painful memories. 8. Conducting interviews involving sensitive issues 9. Responding to disclosures about past events in situations where the adult living with dementia and the carer have different views on how to proceed.ConclusionThis study highlights how potential ethical challenges in a research study involving older adults living with dementia can be overcome through user engagement and reasonable adjustments. Such measures have facilitated the involvement of older adults living with dementia and their carers in the co-creation and utilisation of technology to positively impact quality of life and relationship. AUTHORSAssumpta Ryan, Brendan Bunting, Maurice Mulvenna, Kevin Curran, Elizabeth Laird, Claire McCauley, Aideen Gibson, Finola Ferry, Raymond BondUlster University…………
LanguageEnglish
Title of host publicationUnknown Host Publication
Pages68-69
Number of pages167
Publication statusE-pub ahead of print - 15 Sep 2017
Event18th Nursing Ethic Conference & 3rd International Ethics in Care Conference - Faculty of Medicine, KU Leuven, Belgium
Duration: 15 Sep 2017 → …

Conference

Conference18th Nursing Ethic Conference & 3rd International Ethics in Care Conference
Period15/09/17 → …

Fingerprint

Dementia
Ethics
Caregivers
Northern Ireland
Quality of Life
Research
Nursing Ethics
Ageism
Interviews
Personhood
Social Adjustment
School Nursing
Social Psychology
Nursing Research
Quality of Health Care
Disclosure
Informed Consent
Documentation
Names
Language

Keywords

  • Dementia
  • Ethics
  • Reminiscence
  • Research
  • Technology.

Cite this

@inproceedings{1340f002aae3402abb4a7d33a36e76bb,
title = "A strengths based approach in a study of facilitated reminiscence",
abstract = "ABSTRACT SUBMISSION NURSING ETHICS CONFERENCE 2017CONTACT INFORMATIONPersonal details corresponding authorName: LairdFirst Name: ElizabethTitle: DrOrganisation: School of Nursing / Institute of Nursing and Health Research, Ulster University……..Email Address: ea.laird@ulster.ac.uk……..Street Address: Northland Road……..Postal Code: BT48 7JL…….City: Derry……..Country: Northern Ireland……..Phone Number: 028 71675006TITLEA strengths based approach in a study of facilitated reminiscence ABSTRACT AimTo highlight the ethical issues that we encountered and addressed in a dyad focused reminiscence study Background Without due attention, ageism and dementia-ism on the part of researchers can contribute to the malignant social psychology experienced by older adults living with dementia.Strengths based approach Our study, underpinned by values of personhood and empowerment focused on the strengths of older adults in the development of an i-Pad App to support individual specific reminiscence. In a joint approach, adults living with dementia and their family carers were considered dyads, with both having an equally active role throughout the entire research process. Collaborators in the planning of the study encompassed a lead dyad, reminiscence experts, and professionals employed in statutory memory services and the Alzheimer’s Society. Three phased studyPhase 1: The co-creation and testing of a reminiscence i-Pad App and user friendly information by a User Development Group comprising a sample of six dyads.Phase 2: A sample of 60 participants (30 dyads) recruited to a quasi-experimental study received guidance about facilitating reminiscence and the collection of memorabilia from trainers of the Reminiscence Network Northern Ireland, and training from an IT assistant in the use of the App to reminisce. Following this, the participants used the system in their own homes for three months. Data were collected pre-intervention and then at mid- and end- points during the intervention period. Outcome measures examined the impact of reminiscence on mutuality, wellbeing, quality of life and quality of the care-giving relationship. Phase 3: In a qualitative study, interviews were conducted with a sample of participants to explore their views and experience of using the reminiscence App. Ethical issues Each phase of the study presented the research team with ethical issues, and these will form the basis for the presentation. Ethical issues included: 1. Embracing inclusive ways in planning the study2. Developing sensitive use of language and rhetoric in verbal and written communications3. Utilising a co-creation model in the development and testing of the App and study documentation, and doing so in such a way that met the requirements of the ethics committees.4. Developing recruitment procedures that were appropriate, inclusive and not paternalistic.5. Managing the different needs of adults living with dementia and their carers in the context of a dyad focused research study.6. Facilitating informed consent in all stages of the study and in the presence of some aspects of cognitive decline.7. Observing a reappraisal of past painful memories. 8. Conducting interviews involving sensitive issues 9. Responding to disclosures about past events in situations where the adult living with dementia and the carer have different views on how to proceed.ConclusionThis study highlights how potential ethical challenges in a research study involving older adults living with dementia can be overcome through user engagement and reasonable adjustments. Such measures have facilitated the involvement of older adults living with dementia and their carers in the co-creation and utilisation of technology to positively impact quality of life and relationship. AUTHORSAssumpta Ryan, Brendan Bunting, Maurice Mulvenna, Kevin Curran, Elizabeth Laird, Claire McCauley, Aideen Gibson, Finola Ferry, Raymond BondUlster University…………",
keywords = "Dementia, Ethics, Reminiscence, Research, Technology.",
author = "Assumpta Ryan and Brendan Bunting and Maurice Mulvenna and K Curran and Laird, {Liz/ EA} and Claire McCauley and Aideen Gibson and Finola Ferry and Raymond Bond",
note = "Reference text: Brooker DJ, Latham I, Evans SC, Jacobson N, Perry W, Bray J, Ballard C, Fossey J, Pickett J. 2016. FITS into practice: translating research into practice in reducing the use of anti-psychotic medication for people with dementia living in care homes. Aging & Mental Health, 20 (7): doi.org/10.1080/13607863.2015.1063102. Gibson A, McCauley C, Mulvenna M, Ryan A., Laird EA, Curran K, Bunting B, Ferry F, Bond R. 2016. Assessing usability testing for people living with dementia. Proceedings of the 4th Workshop on ICTs for improving patients. Rehab Research Technology, 16: 25 – 31. National Institute of Health Research. 2017. What is public involvement in research? http://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/ Saris WE, Satorra A, van der Veld W. 2009. Testing structural equation models or detection of misspecifications? Structural Equation Modelling, 16: 561-82. Webster JD, Bohlmeijer ET, Westerhof GJ. 2010. Mapping the Future of Reminiscence: A conceptual guide for research and practice. Research on Aging, 32: 527-64. World Health Organisation. Dementia – A Public Health Priority. 2017. Available at: http://www.who.int/mental_health/neurology/dementia/infographic_dementia_en.pdf?ua=1",
year = "2017",
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Ryan, A, Bunting, B, Mulvenna, M, Curran, K, Laird, LEA, McCauley, C, Gibson, A, Ferry, F & Bond, R 2017, A strengths based approach in a study of facilitated reminiscence. in Unknown Host Publication. pp. 68-69, 18th Nursing Ethic Conference & 3rd International Ethics in Care Conference, 15/09/17.

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T1 - A strengths based approach in a study of facilitated reminiscence

AU - Ryan, Assumpta

AU - Bunting, Brendan

AU - Mulvenna, Maurice

AU - Curran, K

AU - Laird, Liz/ EA

AU - McCauley, Claire

AU - Gibson, Aideen

AU - Ferry, Finola

AU - Bond, Raymond

N1 - Reference text: Brooker DJ, Latham I, Evans SC, Jacobson N, Perry W, Bray J, Ballard C, Fossey J, Pickett J. 2016. FITS into practice: translating research into practice in reducing the use of anti-psychotic medication for people with dementia living in care homes. Aging & Mental Health, 20 (7): doi.org/10.1080/13607863.2015.1063102. Gibson A, McCauley C, Mulvenna M, Ryan A., Laird EA, Curran K, Bunting B, Ferry F, Bond R. 2016. Assessing usability testing for people living with dementia. Proceedings of the 4th Workshop on ICTs for improving patients. Rehab Research Technology, 16: 25 – 31. National Institute of Health Research. 2017. What is public involvement in research? http://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/ Saris WE, Satorra A, van der Veld W. 2009. Testing structural equation models or detection of misspecifications? Structural Equation Modelling, 16: 561-82. Webster JD, Bohlmeijer ET, Westerhof GJ. 2010. Mapping the Future of Reminiscence: A conceptual guide for research and practice. Research on Aging, 32: 527-64. World Health Organisation. Dementia – A Public Health Priority. 2017. Available at: http://www.who.int/mental_health/neurology/dementia/infographic_dementia_en.pdf?ua=1

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Y1 - 2017/9/15

N2 - ABSTRACT SUBMISSION NURSING ETHICS CONFERENCE 2017CONTACT INFORMATIONPersonal details corresponding authorName: LairdFirst Name: ElizabethTitle: DrOrganisation: School of Nursing / Institute of Nursing and Health Research, Ulster University……..Email Address: ea.laird@ulster.ac.uk……..Street Address: Northland Road……..Postal Code: BT48 7JL…….City: Derry……..Country: Northern Ireland……..Phone Number: 028 71675006TITLEA strengths based approach in a study of facilitated reminiscence ABSTRACT AimTo highlight the ethical issues that we encountered and addressed in a dyad focused reminiscence study Background Without due attention, ageism and dementia-ism on the part of researchers can contribute to the malignant social psychology experienced by older adults living with dementia.Strengths based approach Our study, underpinned by values of personhood and empowerment focused on the strengths of older adults in the development of an i-Pad App to support individual specific reminiscence. In a joint approach, adults living with dementia and their family carers were considered dyads, with both having an equally active role throughout the entire research process. Collaborators in the planning of the study encompassed a lead dyad, reminiscence experts, and professionals employed in statutory memory services and the Alzheimer’s Society. Three phased studyPhase 1: The co-creation and testing of a reminiscence i-Pad App and user friendly information by a User Development Group comprising a sample of six dyads.Phase 2: A sample of 60 participants (30 dyads) recruited to a quasi-experimental study received guidance about facilitating reminiscence and the collection of memorabilia from trainers of the Reminiscence Network Northern Ireland, and training from an IT assistant in the use of the App to reminisce. Following this, the participants used the system in their own homes for three months. Data were collected pre-intervention and then at mid- and end- points during the intervention period. Outcome measures examined the impact of reminiscence on mutuality, wellbeing, quality of life and quality of the care-giving relationship. Phase 3: In a qualitative study, interviews were conducted with a sample of participants to explore their views and experience of using the reminiscence App. Ethical issues Each phase of the study presented the research team with ethical issues, and these will form the basis for the presentation. Ethical issues included: 1. Embracing inclusive ways in planning the study2. Developing sensitive use of language and rhetoric in verbal and written communications3. Utilising a co-creation model in the development and testing of the App and study documentation, and doing so in such a way that met the requirements of the ethics committees.4. Developing recruitment procedures that were appropriate, inclusive and not paternalistic.5. Managing the different needs of adults living with dementia and their carers in the context of a dyad focused research study.6. Facilitating informed consent in all stages of the study and in the presence of some aspects of cognitive decline.7. Observing a reappraisal of past painful memories. 8. Conducting interviews involving sensitive issues 9. Responding to disclosures about past events in situations where the adult living with dementia and the carer have different views on how to proceed.ConclusionThis study highlights how potential ethical challenges in a research study involving older adults living with dementia can be overcome through user engagement and reasonable adjustments. Such measures have facilitated the involvement of older adults living with dementia and their carers in the co-creation and utilisation of technology to positively impact quality of life and relationship. AUTHORSAssumpta Ryan, Brendan Bunting, Maurice Mulvenna, Kevin Curran, Elizabeth Laird, Claire McCauley, Aideen Gibson, Finola Ferry, Raymond BondUlster University…………

AB - ABSTRACT SUBMISSION NURSING ETHICS CONFERENCE 2017CONTACT INFORMATIONPersonal details corresponding authorName: LairdFirst Name: ElizabethTitle: DrOrganisation: School of Nursing / Institute of Nursing and Health Research, Ulster University……..Email Address: ea.laird@ulster.ac.uk……..Street Address: Northland Road……..Postal Code: BT48 7JL…….City: Derry……..Country: Northern Ireland……..Phone Number: 028 71675006TITLEA strengths based approach in a study of facilitated reminiscence ABSTRACT AimTo highlight the ethical issues that we encountered and addressed in a dyad focused reminiscence study Background Without due attention, ageism and dementia-ism on the part of researchers can contribute to the malignant social psychology experienced by older adults living with dementia.Strengths based approach Our study, underpinned by values of personhood and empowerment focused on the strengths of older adults in the development of an i-Pad App to support individual specific reminiscence. In a joint approach, adults living with dementia and their family carers were considered dyads, with both having an equally active role throughout the entire research process. Collaborators in the planning of the study encompassed a lead dyad, reminiscence experts, and professionals employed in statutory memory services and the Alzheimer’s Society. Three phased studyPhase 1: The co-creation and testing of a reminiscence i-Pad App and user friendly information by a User Development Group comprising a sample of six dyads.Phase 2: A sample of 60 participants (30 dyads) recruited to a quasi-experimental study received guidance about facilitating reminiscence and the collection of memorabilia from trainers of the Reminiscence Network Northern Ireland, and training from an IT assistant in the use of the App to reminisce. Following this, the participants used the system in their own homes for three months. Data were collected pre-intervention and then at mid- and end- points during the intervention period. Outcome measures examined the impact of reminiscence on mutuality, wellbeing, quality of life and quality of the care-giving relationship. Phase 3: In a qualitative study, interviews were conducted with a sample of participants to explore their views and experience of using the reminiscence App. Ethical issues Each phase of the study presented the research team with ethical issues, and these will form the basis for the presentation. Ethical issues included: 1. Embracing inclusive ways in planning the study2. Developing sensitive use of language and rhetoric in verbal and written communications3. Utilising a co-creation model in the development and testing of the App and study documentation, and doing so in such a way that met the requirements of the ethics committees.4. Developing recruitment procedures that were appropriate, inclusive and not paternalistic.5. Managing the different needs of adults living with dementia and their carers in the context of a dyad focused research study.6. Facilitating informed consent in all stages of the study and in the presence of some aspects of cognitive decline.7. Observing a reappraisal of past painful memories. 8. Conducting interviews involving sensitive issues 9. Responding to disclosures about past events in situations where the adult living with dementia and the carer have different views on how to proceed.ConclusionThis study highlights how potential ethical challenges in a research study involving older adults living with dementia can be overcome through user engagement and reasonable adjustments. Such measures have facilitated the involvement of older adults living with dementia and their carers in the co-creation and utilisation of technology to positively impact quality of life and relationship. AUTHORSAssumpta Ryan, Brendan Bunting, Maurice Mulvenna, Kevin Curran, Elizabeth Laird, Claire McCauley, Aideen Gibson, Finola Ferry, Raymond BondUlster University…………

KW - Dementia

KW - Ethics

KW - Reminiscence

KW - Research

KW - Technology.

M3 - Conference contribution

SP - 68

EP - 69

BT - Unknown Host Publication

ER -