A 100 years of care: Lifelong Conditions but Lifelong Care

Kyle Boyd, Craig Bremner (Editor), Giovanni Inneilia (Editor), Paul Rodgers, Justin Magee (Editor)

Research output: Book/ReportBookpeer-review

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Abstract

This reflective piece examines the trajectory of healthcare support for individuals with lifelong conditions, highlighting the contrast between pediatric and adult care within the National Health Service (NHS) in Great Britain. Born prematurely and diagnosed with Cerebral Palsy at 18 months, my early years were characterised by comprehensive, coordinated medical support, including surgeries, therapies, and regular specialist care. However, upon reaching adulthood, the continuity of care sharply declined, leaving me to self-manage a condition that requires consistent intervention to maintain mobility and quality of life. This transition exposed a critical gap in healthcare provision, where essential services and therapies that significantly impact long-term well-being are markedly reduced or limited for adults. Through personal narrative, this piece underscores the necessity of sustained, lifelong care for individuals with chronic conditions, arguing that continuous, preventive interventions benefit both the individual and the healthcare system by averting complex, resource-intensive issues. Ultimately, this account advocates for a healthcare model that acknowledges and supports the enduring needs of those with lifelong conditions, promoting health and independence throughout all stages of life.
Original languageEnglish
PublisherUlster University
Number of pages2
ISBN (Print)978-1-85923-289-9
Publication statusPublished (in print/issue) - 16 Oct 2024

Keywords

  • design
  • Healthcare
  • infographic
  • care journey

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