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2025
An Interpretative Phenomenological Analysis That Seeks to Describe and Understand the Personal Experience of Burnout in General Practitioners
McCammon, L., Gillen, P., McLaughlin, D. F. & Kernohan, W. G., 31 Jan 2025, In: Qualitative Health Research. 35, 1, p. 118-131 14 p.Research output: Contribution to journal › Article › peer-review
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Antiretroviral drug exposure in pregnancy and risk of congenital anomalies: a European case/non-case malformed study
Saint-Lary, L., Beau, A.-B., Sommet, A., Leroy, V., Loane, M., Cavero Carbonell, C., Garne, E., Hoareau, J., Latos-Bieleńska, A., Monier, I., Nelen, V., Neville, A. J., O'Mahony, M., Perthus, I., Pierini, A., Rissmann, A., Rouget, F., Sichitiu, J., Tucker, D. & Dolk, H. & 1 others, , 26 Feb 2025, (Published online) In: European Journal of Clinical Pharmacology. 13 p.Research output: Contribution to journal › Article › peer-review
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Health Outcomes and drug utilisation in children with Noonan syndrome: a European cohort study
Santoro, M., Barisic, I., Coi, A., Tan, J., Garne, E., Loane, M., Odak, L., Abate, M. V., Ballardini, E., Cavero‑Carbonell, C., Gatt, M., Gissler, M., Klungsøyr, K., Lelong, N., Wellesley, D., Tucker, D. & Morris, J. K., 17 Feb 2025, (Published online) In: Orphanet Journal of Rare Diseases. 20, p. 1-9 9 p., 76 (2025).Research output: Contribution to journal › Article › peer-review
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People with dementia and family carers are welcoming of a model of dementia palliative care, but sceptical of its implementation
Fox, S., Faherty, M., Drennan, J., Guerin, S., Kernohan, W. G., Murphy, A. & Timmons, S., 31 Jan 2025, In: Dementia: The International Journal of Social Research and Practice. 24, 1, p. 91-110 20 p., DEM-23-0337r1.Research output: Contribution to journal › Article › peer-review
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Post‐Term Birth in Middle Income Countries: Data and Public Health Challenges
Dolk, H. & Cooke, I., 28 Feb 2025, In: Paediatric and Perinatal Epidemiology. 39, 2, p. 159-161 3 p.Research output: Contribution to journal › Comment/debate › peer-review
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Recommendations for improving surveillance of congenital anomalies in Europe using healthcare databases
Loane, M., Morris, J. K. & Garne, E., 28 Jan 2025, (Published online) In: Paediatric and Perinatal Epidemiology. 8 p.Research output: Contribution to journal › Article › peer-review
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Risk of congenital ocular anomaly after prenatal exposure to medications; a EUROmediCAT study
Castro, E. C., Beau, A.-B., Caillet, A., Frémont, F., Neville, A., Ballardini, E., Dolk, H., Loane, M., Garne, E., Khoshnood, B., Lelong, N., Rissmann, A., O’Mahony, M., Pierini, A., Gatt, M., Bergman, J., Krawczynski, M. R., Latos-Bielenska , A., Gonzalez de Gariba, L. E. & Cavero‑Carbonell, C. & 12 others, , 28 Feb 2025, In: Birth Defects Research. 117, 2, p. e2435 17 p., e2435.Research output: Contribution to journal › Article › peer-review
1 Citation (Scopus) -
Surgical Timing and Mortality in Nonsevere Paediatric Congenital Heart Disease: A EUROlinkCAT Cohort Analysis Across Europe
Damkjær, M., Ester, G., Loane, M., Urhøj, S., Ballardini, E., Cavero‑Carbonell, C., Coi, A., Garcia-Villodre, L., Given, J., Gissler, M., Heino, A., Jordan, S., Limb, E., Neville, A. J., Pierini, A., Rissmann, A., Tan, J., Scanlon, I. & Morris, J. K., 30 Jun 2025, In: Progress in Pediatric Cardiology. 77, 101808.Research output: Contribution to journal › Article › peer-review
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The healthcare needs of children with Down syndrome in the first year of life: an analysis of the EUROlinkCAT data linkage study
Seaton, S. E., Rankin, J., Cavero-Carbonell, C., Garne, E., Gissler, M., Loane, M., Neville, A. J., Santoro, M., Tan, J., Tucker, D. & Morris, J. K., 6 Feb 2025, (Published online) In: Paediatric and Perinatal Epidemiology. p. 1-8 8 p.Research output: Contribution to journal › Article › peer-review
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Voice Assisted Technology as a tool for speech problems in Parkinson's Disease and related conditions: a scoping review: English
Mills, J., Pedlow, K., Duffy, O. & Kernohan, G., 5 Feb 2025, (Published online).Research output: Contribution to conference › Poster › peer-review
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2024
Academic achievement at ages 11 and 16 in children born with congenital anomalies in England: A multi‐registry linked cohort study
Glinianaia, S., Tan, J., Morris, J. K., Brigden, J., Evans, H. E., Loane, M., Neville, A. J. & Rankin, J., 6 Feb 2024, (Published online) In: Paediatric and Perinatal Epidemiology. 38, 5, p. 411-425 15 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)41 Downloads (Pure) -
"Alexa, can you help me speak more clearly?"
Mills, J., Duffy, O., Kernohan, W. G. & Pedlow, K., 13 May 2024.Research output: Contribution to conference › Poster › peer-review
Open AccessFile16 Downloads (Pure) -
Application of design-thinking to the prevention and management of lower limb pressure ulcers
Neill, S., Kernohan, W. G., Hughes, C., Magee, J. & Donnelly, J., 9 May 2024.Research output: Contribution to conference › Poster › peer-review
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Application of design-thinking to the prevention and management of lower limb pressure ulcers.
Neill, S., Kernohan, W. G., Magee, J., Hughes, C. & Donnelly, J., 3 May 2024, (Unpublished).Research output: Contribution to conference › Poster › peer-review
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Birth Across the Borders: exploring contextual maternal health education in a conflict setting
Dornan, L., 16 Sept 2024, (Published online).Research output: Contribution to conference › Abstract › peer-review
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Birth Across the Borders: Exploring Service Provision through Saving Lives, Saving Babies
Dornan, L., Hanna-Trainor, L., Phyu-phyu, E., Sinclair, M., Kernohan, W. G. & McCoy, J., 7 Mar 2024.Research output: Contribution to conference › Abstract › peer-review
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Birth Across the Borders: Exploring the experiences of Mothers in Myanmar
Hanna-Trainor, L., Dornan, L., Kernohan, W. G., Sinclair, M. & McCoy, J., 7 Mar 2024.Research output: Contribution to conference › Abstract › peer-review
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Children with Hirschsprung’s disease have high morbidity in the first 5 years of life
Damkjær, M., Tan, J., Morris, J. K., Loane, M., Given, J., Cavero‑Carbonell, C., Gissler, M., Neville, A. J., Pierini, A., Rissmann, A., Tucker, D. & Garne, E., 7 May 2024, (Published online) In: Birth Defects Research. 116, 5, p. 1-7 7 p., e2338.Research output: Contribution to journal › Article › peer-review
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Climate Change and Congenital Anomalies: A Population-Based Study of the Effect of Prolonged Extreme Heat Exposure on the Risk of Neural Tube Defects in France
Bruckner, T., Trinh, N., Lelong, N., Madani, K., Slama, R., Given, J. & Khoshnood, B., 1 Sept 2024, In: Birth Defects Research. 116, 9, p. 1-8 8 p., e2397.Research output: Contribution to journal › Article › peer-review
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Design-based explorations of a 100 years of care journeys: Our Changing Care Needs and Abilities over 100 years
Neill, S. & Kernohan, W. G., 2024, Design-based explorations of a 100 years of care journeys: A 100 years of Care. Bremner, C., Rodgers, P. A., Innella, G. & Magee, J. (eds.). Belfast: Ulster University, p. 20-21 2 p. (Does Design Care...?).Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review
Open AccessFile4 Downloads (Pure) -
Gabapentinoids exposure in early pregnancy and risk of congenital anomalies a ConcePTION European case-malformed control study
Beau, A.-B., Castro, E. C., Karki, S., Beslay, M., Benevent, J., Addor, M.-C., Bergman, J., Cavero-Carbonell, C., Garne, E., Gatt, M., Hoareau, J., Den Hond, E., atos-Bielenska, A. L., Lelong, N., O’Mahony, M., Neville, A. J., Pierini, A., Dolk, H., Morris, J. & Loane, M. & 1 others, , 19 Nov 2024, p. e5891. 1 p.Research output: Contribution to conference › Poster › peer-review
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Heart Rate Variability Biofeedback to Reduce Anxiety in Autism Spectrum Disorder -a mini review
Coulter, H., Donnelly, M., Yakkundi, A., McAneney, H., Barr, O. & Kernohan, W. G., 13 Jun 2024, (Published online) In: Frontiers in Psychiatry. 15, p. 1-9 10 p., 1409173.Research output: Contribution to journal › Review article › peer-review
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Higher risk of cerebral palsy, seizures/epilepsy, visual- and hearing impairments, cancer, injury and child abuse in children with congenital anomalies – data from the EUROlinkCAT study
Kjær Urhøj, S., Morris, J., Loane, M., Ballardini, E., Barrachina-Bonet, L., Cavero‑Carbonell, C., Coi, A., Gissler, M., Given, J., Heino, A., Jordan, S., Neville, A., Santoro, M., Tan, J., Tucker, D., Wellesley, D., Ester, G. & Damkjær, M., 10 Apr 2024, In: Acta Paediatrica. 113, 5, p. 1024-1031 8 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)32 Downloads (Pure) -
Hospital care in the first 10 years of life of children with congenital anomalies in six European countries: data from the EUROlinkCAT cohort linkage study: Data from the EUROlinkCAT cohort linkage study
Morris, J. K., Loane, M., Wahlich, C., Tan, J., Baldacci, S., Ballardini, E., Cavero-Carbonell, C., Damkjaer, M., García-Villodre, L., Gissler, M., Given, J., Gorini, F., Heino , A., Limb , E., Lutke , L. R., Neville , A. J., Rissmann , A., Scanlon , I., Tucker , D. & Urhoj , S. K. & 2 others, , 19 Feb 2024, (Published online) In: Archives of disease in childhood. 109, 5, p. 402-408 7 p., archdischild-2023-326557.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)34 Downloads (Pure) -
Prevalence of Congenital Ocular Anomalies in 15 Countries of Europe: Results From the Medikeye Study
Dubucs, C., Caillet, A., Frémont, F., Delteil, L., N’Go, V., Neville, A. J., Ballardini, E., Dolk, H., Loane, M. & Garne, E., 25 Nov 2024, In: Birth Defects Research. 116, 11, p. 1-16 16 p., e2414.Research output: Contribution to journal › Article › peer-review
Open AccessFile2 Citations (Scopus)1 Downloads (Pure) -
Risk of Congenital Ocular Anomaly in EUROmediCAT: Assessment of the Potential Risk of Taking Medications during Pregnancy in Europe
Castro, E. C., Beau, A.-B., Caillet, A., Frémont, F., Neville, A. J., Ballardini, E., Dolk, H., Loane, M., Garne, E., Khoshnood, B., Lelong, N., Rissmann, A., O’Mahony, M., Pierini, A., Gatt, M., Latos-Bielenska , A., Echevarria Gonzalez, L., Cavero‑Carbonell, C., Addor, M.-C. & Tucker, D. & 9 others, , 19 Nov 2024, (Published online).Research output: Contribution to conference › Abstract › peer-review
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Seeking pregnancy experiences of women living as internally displaced persons in northern myanmar: a qualitative study protocol
Blinn, M., Dornan, L., Sinclair, M. & Kernohan, W. G., 3 Mar 2024, (Published online) BMJOpen: UCL’s Qualitative Health Research Network Conference Abstracts 2024. Issue Suppl 1 ed. Vol. 14. 1 p. (BMJOpen; vol. 14).Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review
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Specific congenital anomalies associated with maternal Multiple Sclerosis: A ConcePTION European case-malformed control study
Beslay, M., Castro, E. C., Karki, S., Beau, A.-B., Benevent, J., Addor, M.-C., Barisic, I., Bergman, J., Cavero‑Carbonell, C., Garne, E., Gatt, M., Hoareau, J., Den Hond, E., Latos-Bielenska , A., Lelong, N., O’Mahony, M., Neville, A. J., Pierini, A., Rissmann, A. & Morris, J. & 3 others, , 19 Nov 2024.Research output: Contribution to conference › Poster › peer-review
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The association of prenatal diagnoses with mortality and long-term morbidity in children with specific isolated congenital anomalies: a European register-based cohort study
Heino, A., Morris, J. K., Garne, E., Baldacci, S., Barisic, I., Cavero‑Carbonell, C., García-Villodre, L., Given, J., Jordan, S., Loane, M., Lutke , L. R., Neville , A. J., Santoro, M., Scanlon , I., Tan, J., de Walle, H. E. K., Kiuru-Kuhlefelt, S. & Gissler, M., 1 Jun 2024, In: Maternal and Child Health Journal. 28, 6, p. 1020-1030 11 p.Research output: Contribution to journal › Article › peer-review
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The Occurrence of Specific Congenital Anomalies Associated with Maternal Systemic Lupus Erythematosus: A ConcePTION Case-Malformed Control Study in EUROmediCAT
Karki, S., Beslay, M., Castro, E. C., Beau, A.-B., Benevent, J., Addor, M.-C., Barisic, I., Broekstra, D., Cavero‑Carbonell, C., Garne, E., Gatt, M., Hoareau, J., Den Hond, E., Latos-Bielenska , A., Lelong, N., O’Mahony, M., Pierini, A., Rissmann, A., Dolk, H. & Loane, M. & 2 others, , 30 Nov 2024.Research output: Contribution to conference › Abstract › peer-review
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2023
Accuracy of congenital anomaly coding in live birth children recorded in European health care databases, a EUROlinkCAT study
Bakker, M., Loane, M., Garne, E., Ballardini, E., Cavero-Carbonell, C., García, L., Gissler, M., Given, J., Heino, A., Jamry-Dziurla , A., Jordan, S., Kjaer Urhoj, S., Latos-Bieleńska, A., Limb, E., Lutke, R., Neville, A. J., Pierini, A., Santoro, M., Scanlon, I. & Tan, J. & 3 others, , 18 Feb 2023, (Published online) In: European Journal of Epidemiology. 38, 3, p. 325-334 10 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile13 Citations (Scopus)58 Downloads (Pure) -
A comparison of four dementia palliative care services using the RE-AIM framework
Fox, S., Drennan, J., Guerin, S., Kernohan, W. G., Murphy, A., O'Connor, N., Rukundo, A. & Timmons, S., 19 Oct 2023, In: BMC Geriatrics. 23, 1, p. 1-12 12 p., 677.Research output: Contribution to journal › Article › peer-review
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Amniotic band syndrome and limb body wall complex in Europe 1980-2019
Bergman, J. E., Barišić, I., Addor, M.-C., Cavero-Carbonell, C., Echevarría, L. J., Gatt, M., Hausler, M., Khoshnood, B., Klungsøyr, K., Latos-Bielenska , A., Dias, C. M., Mullaney, C., Nelen, V., Neville, A. J., O’Mahony, M., Perthus, I., Pierini, A., Queisser-Luft, A., Randrianaivo, H. & Rissmann, A. & 11 others, , 1 Apr 2023, In: American Journal of Medical Genetics Part A. 191, 4, p. 995-1006 12 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile5 Citations (Scopus)110 Downloads (Pure) -
An ethnographic study evaluating emergency obstetric care education and training in a remote, fragile region of Southeast Asia
Campbell, R., Sinclair, M., Kernohan, W. G. & Dornan, L., 5 Mar 2023, (Published online)Research output: Other contribution › Protocol
Open Access -
An ethnographic study evaluating emergency obstetric care education and training in a remote, fragile region of Southeast Asia: study protocol
Campbell, R., Kernohan, W. G., Dornan, L. & Sinclair, M., 13 Nov 2023, In: Nursing Open. 10, 12, p. 7860–7870 11 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)58 Downloads (Pure) -
Antiasthmatic prescriptions in children with and without congenital anomalies: a population-based study
Divin, N., Given, J. E., Tan, J., Astolfi, G., Ballardini, E., Barrachina-Bonet, L., Cavero-Carbonell, C., Coi, A., Garne, E., Gissler, M., Heino, A., Jordan, S., Pierini, A., Scanlon, I., Urhøj, S. K., Morris, J. K. & Loane, M., 13 Oct 2023, In: BMJ Open. 13, 10, p. 1-10 10 p., e068885.Research output: Contribution to journal › Article › peer-review
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A population-based matched cohort study of major congenital anomalies following COVID-19 vaccination and SARS-CoV-2 infection
Calvert, C., Carruthers, J., Denny, C., Donaghy, J., Hopcroft, L. E., Hopkins, L., Goulding, A., Lindsay, L., McLaughlin, T., Moore, E., Taylor, B., Loane, M., Dolk, H., Morris, J., Auyeung, B., Bhaskaran, K., Gibbons, C. L., Katikireddi, S. V., O'Leary, M. & McAllister, D. & 6 others, , 6 Jan 2023, (Published online) In: Nature Communications. 14, 1, p. 1-11 11 p., 107.Research output: Contribution to journal › Article › peer-review
Open AccessFile19 Citations (Scopus)31 Downloads (Pure) -
A reflection on Hodges' Health Career Model for integration of health innovation
Kernohan, W. G., Dornan, L. & Jones, P., 8 Mar 2023.Research output: Contribution to conference › Abstract › peer-review
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Causes of death in children with congenital anomalies up to age 10 in eight European countries
Rissmann, A., Tan, J., Glinianaia, S. V., Rankin, J., Pierini, A., Santoro, M., Coi, A., Garne, E., Loane, M., Given, J., Reid, A., Aizpurua, A., Akhmedzhanova, D., Ballardini, E., Barisic, I., Cavero-Carbonell, C., de Walle, H. E. K., Gatt, M., Gissler, M. & Heino, A. & 11 others, , 23 Jun 2023, (Published online) In: BMJ Paediatrics Open. 7, 1, p. 1-11 11 p., e001617.Research output: Contribution to journal › Article › peer-review
Open AccessFile6 Citations (Scopus)33 Downloads (Pure) -
Core evidence elements for generating medicine safety evidence for pregnancy using population-based data: Recommendations from IMI-ConcePTION
Neville, A., Geldhof, A., Coste, F., Jordan, S., Loane, M., Beau, A.-B., Benevent, J., Bromley, R. L., Given, J., Molgaard-Nielsen, D., Nordeng, H., Sabido, M., Morris, J. K., Zeitlin, J., Damase-Michel, C. & Wurst, K. E., 12 Oct 2023, p. 531-532. 1 p.Research output: Contribution to conference › Abstract › peer-review
Open AccessFile1 Citation (Scopus)1 Downloads (Pure) -
Creating a population-based cohort of children born with and without congenital anomalies using birth data matched to hospital discharge databases in 11 European regions: Assessment of linkage success and data quality
Loane, M., Given, J., Tan, J., Barišić, I., Barrachina-Bonet, L., Cavero-Carbonell, C., Coi, A., Densem, J., Garne, E., Gissler, M., Heino, A., Jordan, S., Lutke, L. R., Neville, A. J., Odak, L., Puccini, A., Santoro, M., Scanlon, I., Urhoj, S. K. & de Walle, H. E. K. & 2 others, , 30 Aug 2023, (Published online) In: PLoS ONE. 18, 8, p. 1-16 17 p., e0290711.Research output: Contribution to journal › Article › peer-review
Open AccessFile6 Citations (Scopus)21 Downloads (Pure) -
Cultural and contextual challenges of childbirth in conflict
Maudslay, S., Dornan, L. & Kernohan, W. G., 9 Mar 2023, (Published online).Research output: Contribution to conference › Abstract › peer-review
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Detection and evaluation of signals associated with exposure to individual and combination of medications in pregnancy: A signal detection study protocol
Subramanian, A., Lee, S. I., Hemali Sudasinghe, S. P. B., Wambua, S., Phillips, K., Singh, M., Azcoaga-Lorenzo, A., Cockburn, N., Wang, J., Fagbamigbe, A. F., Usman, M., Damase-Michel, C., Yau, C., Kent, L., McCowan, C., OâReilly, D., SANTORELLI, G., Hope, H., Kennedy, J. I. & Mhereeg, M. & 10 others, , 9 Oct 2023, (Published online) In: BMJ Open. 13, 10, p. 1-11 11 p., e073162.Research output: Contribution to journal › Article › peer-review
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Educational achievement of children with selected major congenital anomalies and associated factors: a Finnish registry-based study
Roustaei, Z., Heino, A., Kiuru-Kuhlefelt, S., Morris, J. K., Glinianaia, S. V., Garne, E., Loane, M., Rankin, J. & Gissler, M., 18 Aug 2023, (Published online) In: European Journal of Public Health. 33, 6, p. 1027-1034 8 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)27 Downloads (Pure) -
Effectiveness of Telephone-based Interpersonal Psychotherapy on Antenatal Depressive Symptoms: A Prospective Randomized Controlled Trial in The Kingdom of Jordan
Abujelban, S., Al-Omari, H., Issa, E., ALhamdan, A., Al-nabulsi, L., Mrayan, L., Mahmoud, K. & Kernohan, W. G., 6 May 2023, (Published online) In: Journal of the American Psychiatric Nurses Association. p. 1-11 11 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile2 Citations (Scopus)194 Downloads (Pure) -
Epicardial adiposity in people with atrial fibrillation modified by physical exercise: an umbrella review
Menzies, R., Breen, C. J. & Kernohan, W. G., 28 Jul 2023, (Published online) In: european journal of Cardiovascular Nursing. 22, Supplement_1Research output: Contribution to journal › Conference article › peer-review
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Ethics and legal requirements for data linkage in 14 European countries for children with congenital anomalies
Claridge, H., Tan, J., Loane, M., Garne, E., Barisic, I., Cavero‑Carbonell, C., Dias, C., Gatt, M., Jordan, S., Khoshnood, B., Kiuru-Kuhlefelt, S., Klungsoyr, K., Mokoroa Carolla, O., Nelen, V., Neville, A. J., Pierini, A., Randrianaivo , H., Rissmann, A., Tucker, D. & deWalle, H. & 1 others, , 27 Jul 2023, (Published online) In: BMJ Open. 13, 7, p. 1-5 5 p., e071687.Research output: Contribution to journal › Article › peer-review
Open AccessFile2 Citations (Scopus)8 Downloads (Pure) -
EUROlinkCAT: A linked European cohort of children with congenital anomalies
Loane, M., Morris, J. K., Ester, G. & Working Group, E., 14 Sept 2023, Conference Proceedings for ADR UK Conference 2023: Public Data for Resilience and Inclusion. 2 ed. Vol. 8. 1 p. 131. (International Journal of Population Data Science).Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review
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European study showed that children with congenital anomalies often underwent multiple surgical procedures at different ages across Europe
Ester, G., Loane, M., Tan, J., Ballardini, E., Brigden, J., Cavero-Carbonell, C., Coi, A., Damkjær, M., Garcia-Villodre, L., Gissler, M., Given, J., Heino, A., Jordan, S., Limb, E., Neville, A., Rissmann, A., Santoro, M., Scanlon, I., Kjær Urhøj, S. & Wellesley, D. & 1 others, , 1 Jun 2023, In: Acta Paediatrica. 112, 6, p. 1304-1311 8 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile3 Citations (Scopus)37 Downloads (Pure) -
Evaluating emergency obstetric care education and training in a remote, fragile region of Southeast Asia
Campbell, R., Kernohan, W. G. (Editor), Sinclair, M. (Editor) & Dornan, L. (Editor), 14 Jun 2023, (Unpublished).Research output: Contribution to conference › Paper